Surgery for Stephanie

Hi! My name is Stephanie. I'm 18 years old. I was born with several chronic diseases and deformities in my spine and brain. I'm in desperate need of brain and spinal surgery. I live in Rhode Island, but the closest place to where I live that the surgery is performed is in Maryland. My health insurance covers most of it, but there's still $40,000 my family and I need to pay out of pocket for not only the cost of the surgery, hospital stay, and medications; but for travel expenses, and for my parents to stay in a hotel close by. 

I have a tethered spinal cord, Chiari Malformation, Kyphosis, and Syringomyelia (all shown in the MRIs above), along with Ehlers-Danlos Syndrome, systemic Reflex Sympathetic Dystrophy, Postural Orthostatic Tachycardia, dysautonomia, and Gasteoparesis.

If I am unable to get this surgery, I could face complications such as becoming paralyzed or crippled due to the extent, severity, and prognosis of my conditions.

ANYTHING HELPS. It would mean the world to me if you even donated a dollar. It really would. 

If you do, PLEASE let me know so I can send you a personal thank you letter.

If you can't, I want to sincerely thank you for reading this, and it would mean a lot to me if you shared this post, not only for donations, but to spread awareness about my conditions.

If you have any questions, want to talk to me, etc.:
send me an email: [email redacted] 

Thank you so so so much <3