Ok, so the time has come. I have been ordered to get a PICC line placed in my arm so I can have IV meds delivered 2 times a day 3 days a week. My body has stopped responding to oral meds and I can hardly eat or drink. This treatment will ease the pressure on my GI system. I need help with obtaining the supplies. My insurance will kick in after the start up. But that is $1,500. After that I only need to raise about $250 a month. I have tried to work to earn this money, but I am too ill. Doctor says if I take to this, I should start to show real improvement in a matter of months. Please help in any way you can! I need to raise the money quickly; please spread the word.
Me in the hospital.
A week of pills last year. It's doubled.
Systems are getting harder to manage. Medical care seems impossible to manage. However, I find myself more motivated than I have been in quite some time. Find more details at lymieliving.blogspot.com.
I hope everyone had a wonderful holiday! I am also hoping for a bit of assistance. When I came home from visiting family, I had a medical bill in my mailbox stating that by the 4th of January, I owe $530.55. Yup, I have one week to come up with it. Here's hoping that I have an angel out there who can help me come up with it. Thanks to everyone who shares, donates, and/or provides moral support.
This week was a roller coaster ride of medical professionals mysteriously denying help and others truly wanting to help. The main problem in sight is funding. At this point, while waiting for IV therapy, we are looking at only needing $300 a month towards doctor visits and medication. With no idea what that number will be once in IV therapy, it is an absolute need in the meantime. Please continue to share Erin's story. She needs a bunch of help right now.
Ok, Erin is going to war. IV treatment will hopefully start soon, but in the mean time, we desperately need to rally the troops to help her raise some money. She needs to be assessed by a Lyme literate neurologist and prepare for a PICC line to be put in, but in the meantime, she has even more pills to buy, (choke down,) and tests to be endured and paid. Please spread the word. Even pocket change helps. We are looking at a minimum of 12-18 months more of treatment. (Also, take a look at the update on the gofundme page porfavor.) Thanks, Everyone!
Provided Erin can get the transportation next week, she will finally be seen by the LLMD. However, that costs a little bit of money ($400 if by car). If you have some spare pocket change, please consider sending it towards those costs. Thanks!
It has been a very tough recovery from surgery. Thanks for sending prayers and good vibes! Please consider donating as well; every dollar helps pay for meds and living expenses until Erin can get back to work. You can help through this site or if you prefer Paypal, you can send to the email: email@example.com. Hopefully, we can get a blog post up soon with a more detailed update.
Whew, Erin did start treatment, but it is hitting her very hard. These co-infections aren't dying without a huge fight. $267 was spent on meds for immune system support today which will cover her for the next month or so. Also, within the next two weeks she will be getting her gallbladder out and possibly her appendix. Please keep spreading the word so we can get though the beginning of treatment (it will get better soon, but we have to keep moving).
Erin is so close to treatment. Only $500 away from starting. We would love to hit this mark by June 1 so she can start on the 6th. Please help if you can and share with your friends and family. Again, thank you!
A week spent working with big pharma yielded big results. By June 1, $1,739.04 is still needed, after that Erin will be able to mostly manage with just a few hundred each month. The new total for the campaign will sustain her for a full year. Please do what you can. We are so close to getting treatment. Thanks to Everyone for helping!
Well, after returning from the Specialist, we have learned that Erin is in worse shape than even she was prepared to deal with. We have to start treating now, but that means that the just-scraping-by monthly expenses will be $3954.35. That excludes saving for the one time expenses. Please give a dollar or 5 if you got 'em. And please share Erin's story. Also, if you feel called to provide in part or in whole for something on the wish list, please do.
Less than two weeks until the next big trip to the specialist doctor!
We are back up after fine tuning some of the inner workings. Please continue to spread the word for Erin and her cause.
Well, I am a month and a half into the antibiotic treatment and it is seriously kicking my butt. Each day is a struggle and fight. I will need more financial help very soon. I have enough to get to November. I have applied for SSDI and am waiting. It can take some time. Thank you all very much for everything! Please continue to spread the word. If you want to follow my progress on a more personal and day to day (ish) level, please visit: lymieliving.blogspot.com.
The total amount has been updated to cover past expenses. Once those are paid in full, Erin will have a much easier time moving forward. We hope she will start IV treatment soon. However, we are completely in the dark about how much that will cost. At the very least we are hoping to come at it financially with a clean slate. Thanks, Everyone for all of you help and love.
9/20/13 UpdateDonating here will go directly to doctors and pharmacy bills.Here are Erin's monthly expenses:
Rent & Utilities $500 (monthly- obviously)
Medical Bills $600 (monthly- goes to some misc. treatment expenses and old medical/living bills)
Current over the over the counter meds $160 per month. (Vitamins and other supplements to keep my organs from failing.)
Current prescription meds $200 per month *subject to grow*
LLMD Doctor appointments $175 (Every 6-8 weeks for the foreseeable future) This does not include gas money for an 8 hour drive.
Lyme Literate Neurologist $150 and up depending on time appointment takes and tests ordered per visit.
Full bill for scoliosis treatment $1295
*Please note that the numbers on the wish list are higher. This is due to the gofundme fees when a donation is given. If you would like to forego these fees, send a message and we can tell you where to send checks etc. Thanks!
SSDI & SSI gives her $710 a month. See the problem? Her just-staying-alive costs roughly $1900 monthly. Leaving her to cover housing and not much else. She desperately needs an additional $1,200 monthly. Now when you donate here, a friend actually will handle the payments to the docs etc. so you won't actually be affecting Erin negatively; it doesn't count towards her income. Medical donations don't count. SSI will give her more/less depending on income that actually enters Erin's hands/accounts or covers something other than medical necessities. Someone else paying the medical bills is different.
Additionally, if you want to pay the doctor, pharmacy etc directly, I can give you the contact info in a private message.
Also, if you want to help but cannot financially assist, we have a list of people willing to run Erin to and from doctors and other errands. Please let me know if you want to be added. We affectionately named this list, Erin's Army, after Dumbledore's Army. Because in her words, "I am not a dork or anything." ;)
*The current goal amount has been edited to show the most immediate needs. After those are met, we will either create a new page or continue to let the goal grow. All in all we need to raise an additional $22,000 to cover the next 18 months minimum, but for the moment, raising $8,000 is very important. We can worry about the rest when we get there.
This page has been created to help our friend Erin pay for treatment and debts incurred while searching for a diagnosis. We have linked it to her Facebook as part of the gofundme verification process. She will check on here from time to time to give thanks to her angels. The money you donate will go into an account to directly cover her medical and living expenses while she is treating and unable to work. She and I know that the goal amount is huge. Please understand that it took years to find out what is actually going on in her body and the road ahead is very pricey. Below is a summary that she wrote (with a bit of help).
You can follow her "day to day" (it's a strain to post so it's rare that there is a new post each day) here: LymieLiving
Hi,thanks for visiting! After nearly 2 decades without a proper diagnosis, one finally arrived. I need help paying for treatment for this debilitating illness. I used to be a gymnast and a soccer player. But when I was eight years old, I started to develop a strange, debilitating illness. It started with a severe headache, then I began blacking out, and finally passing out. My body started to exhibit violent muscular tremors, severe arm and leg pain, and occasional periods of blindness. By the time I was thirteen, my life in sports was over. I am now 27. I have spent 18 years, practically my entire life, in and out of hospitals and taking up to 30 pills a day. After countless misdiagnoses and false hopes, I have finally been correctly diagnosed with Borreliosis, Bartonellosis, Babesiosis, and several other bacterial infections of the brain, nervous system, and practically all bodily tissues. It began with a tick bite, and has infected my brain, heart, ovaries, liver, and most of my muscle tissue. Every day, I struggle to function with constant, excruciating pain. I have not been able to hold a job in 19 months. I tried selling Mary Kay to support myself and pay my medical bills, but in the last year, I have been unable even to do that. When I can get out of bed, I use a cane or wheelchair to get around. Lately I have begun to hallucinate, develop terrifying delusions, and forget who or where I am. And most of my family and friends have fled from the magnitude of my problems, or they simply refuse to believe that anyone could feel this bad and still be alive. I have wished for death, but it will not come. So I am asking for your help.
I need money to cover my medical costs and some basic, essential living costs until I am able to go back to work. For example, medicine alone is anywhere between $500-5000 a month. Each doctor's appointment is $175 (usually 1 per month) and is 8 hours away. My rent and utility bills runs about $600 a month. I have applied for food stamps, but I won't know if I qualify for another few weeks. I have disability but it just covers a fraction of what is due, and am working to get Medicaid. I am behind on medical bills as I have been unable to work full time in over 2 years. To stay on top of those payments and continue with treatment, I need $2,000 a month to go to bills.
I truly want to heal and get on with my life. However, without assistance right now to be able to have a roof over my head and medical costs be met, I will not be able to heal. I fear organ failure. I know it sounds extreme, but I have a friend my age, with the same condition, who was in kidney failure before treatment. She is now beginning to return to her life.
I really need help to get started and to sustain my living until I can go back to work.
I have dreams of founding a theatre company. I do not want to give up. There are many days where giving up seems like my only option. This is why I am asking for help. I know if I get treatment, I can be not only ok, but successful in life.