Saving Sophia
Donation protected
Rhizomelic Chondrodysplasia Punctata (RCDP) is a rare terminal form of dwarfism.
At just a few days old my daughter Sophia was unexpectedly diagnosed with RCDP. I was told it would be a miracle for her to see her first birthday.
At almost 2 years old Sophia continues to fight, she has gone through 5 surgeries, and has spent a good amount of her life in the hospital.
Even though we have been told Sophia's life will be cut very short that hasn't stop us from praying, and believing that she will live happy and that she will break odds.
Just a few months ago i received an e-mail stating that there is a new trial of injections that could possibly not only help Sophia evolve and grow, it may save her life.
As a single mother for almost 2 years, the thought of my baby being taken away from me so young runs through my head every day. You could only imagine how happy I must be finding out there is something out there that might save her life.
I'm not just happy, I'm scared. As a single mother traveling several states away from our home several times a year isn't financially realistic. If we cannot get to these places I could miss out on possibly saving Sophia's life.
This is where Sophia and I are asking for help. We have to travel to Alabama once a year for research and Delaware every 6 months for the injections. Every dollar donated is getting Sophia one step closer to a better life.
At just a few days old my daughter Sophia was unexpectedly diagnosed with RCDP. I was told it would be a miracle for her to see her first birthday.
At almost 2 years old Sophia continues to fight, she has gone through 5 surgeries, and has spent a good amount of her life in the hospital.
Even though we have been told Sophia's life will be cut very short that hasn't stop us from praying, and believing that she will live happy and that she will break odds.
Just a few months ago i received an e-mail stating that there is a new trial of injections that could possibly not only help Sophia evolve and grow, it may save her life.
As a single mother for almost 2 years, the thought of my baby being taken away from me so young runs through my head every day. You could only imagine how happy I must be finding out there is something out there that might save her life.
I'm not just happy, I'm scared. As a single mother traveling several states away from our home several times a year isn't financially realistic. If we cannot get to these places I could miss out on possibly saving Sophia's life.
This is where Sophia and I are asking for help. We have to travel to Alabama once a year for research and Delaware every 6 months for the injections. Every dollar donated is getting Sophia one step closer to a better life.
Organizer
Colby Jackman
Organizer
Newburyport, MA
