Kallens intensive feeding therapy
Donation protected
To begin I only put a number amount in because it made me.
Kallen received a Gtube in 2012 at 5mos old for Failure to Thrive and feeding aversion. We have done multiple test on Kallen to figure out why he refused to eat solid foods. We ran gastric emptying scan and it showed some slow motility in his gut which slows how fast he digest food. He also had a manomtery study done that showed some nerve damage in the small bowel. It's is called Dysautonomia Centralized to the Gi tract. A few more diagnosis he has are Sensory processing disorder, ADHD, Generalized anxiety disorder, Feeding aversion and a lot of unknowns. We have tried Speech and Occupational therapy multiple times to increase his oral intake with very little success. Kallen has always limited on how much he will eat at one sitting and what he will eat. He is up to about 200 calories a day of solid foods but very limited on what he likes and will try. He is still on a hospital grade formula called Neocate Splash. We have been accepted to Children's Hospital of Richmond VCU, Richmond Virginia. We will be going July 20 for approx 8 weeks. We have been told that we will have to pay some out pocket because they don't accept NC Medicaid. We are applying for a grant to help offset some of the cost for this too. Luckily we got into the Ronald McDonald house and many have already donated for us and for that we are very grateful. We've been told by his GI doctor at UNC that his hands are tied until we try this therapy and see if this helps. He states that Kallen is a complex kid and he has too many variables that he can't answer questions to. He wants us to try this and see if they can help us get rid of his feeding tube. We also want to say goodbye to this tube forever. This is a chance that we will never know if it helps unless we try. So if you decide to give we will be very grateful! Thank you-Kallen Heath and family
Kallen received a Gtube in 2012 at 5mos old for Failure to Thrive and feeding aversion. We have done multiple test on Kallen to figure out why he refused to eat solid foods. We ran gastric emptying scan and it showed some slow motility in his gut which slows how fast he digest food. He also had a manomtery study done that showed some nerve damage in the small bowel. It's is called Dysautonomia Centralized to the Gi tract. A few more diagnosis he has are Sensory processing disorder, ADHD, Generalized anxiety disorder, Feeding aversion and a lot of unknowns. We have tried Speech and Occupational therapy multiple times to increase his oral intake with very little success. Kallen has always limited on how much he will eat at one sitting and what he will eat. He is up to about 200 calories a day of solid foods but very limited on what he likes and will try. He is still on a hospital grade formula called Neocate Splash. We have been accepted to Children's Hospital of Richmond VCU, Richmond Virginia. We will be going July 20 for approx 8 weeks. We have been told that we will have to pay some out pocket because they don't accept NC Medicaid. We are applying for a grant to help offset some of the cost for this too. Luckily we got into the Ronald McDonald house and many have already donated for us and for that we are very grateful. We've been told by his GI doctor at UNC that his hands are tied until we try this therapy and see if this helps. He states that Kallen is a complex kid and he has too many variables that he can't answer questions to. He wants us to try this and see if they can help us get rid of his feeding tube. We also want to say goodbye to this tube forever. This is a chance that we will never know if it helps unless we try. So if you decide to give we will be very grateful! Thank you-Kallen Heath and family
Organizer
Brandi Monroe Heath
Organizer
Rockingham, NC
