McNeely Family HEART fund
Donation protected
Brandon McNeely Heart fund!
Brandon is suffering from chemo congestive heart failure caused by treatment of childhood osteogenic sarcoma, a type of cancer.
He will be getting either an LVAD or a transplant. The LVAD is like a bandaid. Short term effect. A heart transplant will definitely be needed.
Money is desperately needed for piling up medical bills (present and future) and his weekly medical treatment is very expensive. Kimberly will need to take 1 month off of work to care for him when the lvad or transplant takes place.
Every dollar counts! Please consider donating what you can and share this with your friends and family !
Update: 03-14-2016
Twenty years. God has given him to me for more years than his parent had him. When you think about it that seems like a lot. Twenty birthdays. Twenty Christmases. I have known Brandon 7,280 days. If you ask me if that's enough, I would say...
Twenty more wouldn't be enough. There aren't enough days tni hi ount that would be long enough.
As we step to the next stage in this part of our live I reflect on things that mean the most to me. Holding hands at night while we go to sleep, giving him the evil eye when he chomps his ice, hearing Larkyn say "daddy snuggle with me" and seeing Nevaeh laugh at his stupid jokes are the things that will be the hardest to not have while he is in the hospital.
"If I live to be 100, I hope you live to 101 so I don't have to live one day without you"
To love you means letting go of you for a short time, so you can come back to me whole! I love you with every selfish bone in my body.
Kimberly A note from his wife,
On December 14, 1996 I stood in front of God, friends and family to promise “in sickness and in health, to love and to cherish until death we part”. I remember choking up as I said these words to the man of my dreams. We say these words. We mean these words. We believe these words. We don’t fully understand the true implication of these words. Not really. Not at first. Not until we are faced with losing the one we have looked in the eyes and promised these things do we understand how big of a vow this truly is.
This is not our whole story. This is just a chapter. Unfortunately, it’s the chapter we are living right now. We have lived some of our best chapters. Adopting our daughter and seeing our 2nd daughter born, were some of the most beautiful chapters ever written. We’ve definitely seen the darker side of the story as well. I am not ready for the end of my story just yet.
January 2, 2010. This is the day my vow would be put to the test. I remember the gut punch as we were told that my then 33 year old husband has (Chemotherapy induced) Congestive Heart Failure. The very thing that saved his life as a child could potentially take him away from me and our daughter. After a pacemaker/difib, DVTs, CVICU and many scary nights, we thought we were at least safe for a little while. It’s amazing how feeling safe for even a short time can make one forget reality.
May 13, 2015. I’ve always considered myself a strong and self-sufficient person, until this day. The reality of standing in front of a Doctor that you have just met and having them tell you the only way your husband will potentially see your baby girls graduate is if he has an LVAD or Heart Transplant, is an ice bucket in life that no one is ever ready for. Those vows take on a life of their own. It becomes REAL. The overwhelming fog of feeling like you are living in someone else’s nightmare is something that is not shaken. I want to wake up.
Real time. I will never be one to discredit that there are people that I am sure have it worse in so many ways. I just know that if one life can be touched, one more moment can be savored, one more laugh to ring over and over in my head, it fulfills every part of my vows and completes me in ways I cannot describe. Time is such a fragile and delicate thing. It is something that many times we waste and take for granted. Now, I see each day as a blessing and each week as a lifetime. My heart breaks for my girls. I’ve had 19 years. They have had but moments in comparison. I want the photographs. I want the joy and laughter memories. I want a grey haired, front porch, holding hands, rocking chair ending. I will fight to give them as many of these moments/days/weeks as I can. I hope and pray for many happy years to give them with their Daddy.
Kimberly
Brandon is suffering from chemo congestive heart failure caused by treatment of childhood osteogenic sarcoma, a type of cancer.
He will be getting either an LVAD or a transplant. The LVAD is like a bandaid. Short term effect. A heart transplant will definitely be needed.
Money is desperately needed for piling up medical bills (present and future) and his weekly medical treatment is very expensive. Kimberly will need to take 1 month off of work to care for him when the lvad or transplant takes place.
Every dollar counts! Please consider donating what you can and share this with your friends and family !
Update: 03-14-2016
Twenty years. God has given him to me for more years than his parent had him. When you think about it that seems like a lot. Twenty birthdays. Twenty Christmases. I have known Brandon 7,280 days. If you ask me if that's enough, I would say...
Twenty more wouldn't be enough. There aren't enough days tni hi ount that would be long enough.
As we step to the next stage in this part of our live I reflect on things that mean the most to me. Holding hands at night while we go to sleep, giving him the evil eye when he chomps his ice, hearing Larkyn say "daddy snuggle with me" and seeing Nevaeh laugh at his stupid jokes are the things that will be the hardest to not have while he is in the hospital.
"If I live to be 100, I hope you live to 101 so I don't have to live one day without you"
To love you means letting go of you for a short time, so you can come back to me whole! I love you with every selfish bone in my body.
Kimberly A note from his wife,
On December 14, 1996 I stood in front of God, friends and family to promise “in sickness and in health, to love and to cherish until death we part”. I remember choking up as I said these words to the man of my dreams. We say these words. We mean these words. We believe these words. We don’t fully understand the true implication of these words. Not really. Not at first. Not until we are faced with losing the one we have looked in the eyes and promised these things do we understand how big of a vow this truly is.
This is not our whole story. This is just a chapter. Unfortunately, it’s the chapter we are living right now. We have lived some of our best chapters. Adopting our daughter and seeing our 2nd daughter born, were some of the most beautiful chapters ever written. We’ve definitely seen the darker side of the story as well. I am not ready for the end of my story just yet.
January 2, 2010. This is the day my vow would be put to the test. I remember the gut punch as we were told that my then 33 year old husband has (Chemotherapy induced) Congestive Heart Failure. The very thing that saved his life as a child could potentially take him away from me and our daughter. After a pacemaker/difib, DVTs, CVICU and many scary nights, we thought we were at least safe for a little while. It’s amazing how feeling safe for even a short time can make one forget reality.
May 13, 2015. I’ve always considered myself a strong and self-sufficient person, until this day. The reality of standing in front of a Doctor that you have just met and having them tell you the only way your husband will potentially see your baby girls graduate is if he has an LVAD or Heart Transplant, is an ice bucket in life that no one is ever ready for. Those vows take on a life of their own. It becomes REAL. The overwhelming fog of feeling like you are living in someone else’s nightmare is something that is not shaken. I want to wake up.
Real time. I will never be one to discredit that there are people that I am sure have it worse in so many ways. I just know that if one life can be touched, one more moment can be savored, one more laugh to ring over and over in my head, it fulfills every part of my vows and completes me in ways I cannot describe. Time is such a fragile and delicate thing. It is something that many times we waste and take for granted. Now, I see each day as a blessing and each week as a lifetime. My heart breaks for my girls. I’ve had 19 years. They have had but moments in comparison. I want the photographs. I want the joy and laughter memories. I want a grey haired, front porch, holding hands, rocking chair ending. I will fight to give them as many of these moments/days/weeks as I can. I hope and pray for many happy years to give them with their Daddy.
Kimberly
Organizer and beneficiary
Melissa Camarata
Organizer
Concord, NC
Kimberly McNeely
Beneficiary
