Paizley Project
Donation protected
Hello,
My name is Holly Hagen. I am a young mother of a very special little girl Paizley. My husband Nicholas and I adore our 5 year old little angel even with all her conditions. Paizley is autistic high functioning with a language disorder. I'm fighting insurance for speech which she needs at least 2 times a week. She is in a new pathway program at school. There she receives speech occupational therapy and aba therapy. It’s a highly structured class. With the epilepsy she has absent and myoclonic seizures up to 60 a day without meds. The absent seizures are very hard to detect you have to watch for fluttering of the eyes. The myoclonic are a jerk her head drops and her arms go up. She will drop anything she's holding at the time it happens. We are still trying to get the myoclonic under control. She takes 1000mg of depakote a day 375 in the morning and night 250 in the afternoon. We are still figuring out what med will work the best. She was on lamictal but it caused a rash that could turn in to Steven Johnson syndrome that is a life threatening illness. On average with her meds she still has at least 8 seizures a day (myoclonic). A little about Paizley, she is truly the happiest person I've ever met. I've never experienced a happiness like she has. She loves people and music. She does not like loud noises it’s a sensory thing. She can talk but it can be hard to understand. I am her translator. Please help us help our special little angel. Your support is deeply appreciated.
Holly Hagen
To Our Family, Friends, and Acquaintances,
We would like to ask you all to keep our 5 year old grand-daughter Paizley Hagen in your thoughts and prayers. Paizley was diagnosed with Autism a year ago and just recently with Epilepsy. She has had as many as 60 seizers in a day, big and small, before the proper treatments were started. There are other medical conditions that she will be tested for in the upcoming weeks and months. Paizley and her parents Holly and our son-in-law Nicholas are facing many challenges in their lives. All of them and us are being stretched to the limits. While insurance covers some issues, there are many situations that it does not. Speech Therapy, Transportation Issues, Educational Specialist, and certain medical procedures, that are “deemed” elective but are needed for quality of life, are not covered. As a family we pray and take up these challenges that face us head on. We love this little girl and her parents and ask all of you to keep her in your heart when you hit your knees at night and ask God to love her too. Thank You.
Sincerely,
Roxanne Dubinski Stout and Bob
Phillip L. Wenz and DeAnn
My name is Holly Hagen. I am a young mother of a very special little girl Paizley. My husband Nicholas and I adore our 5 year old little angel even with all her conditions. Paizley is autistic high functioning with a language disorder. I'm fighting insurance for speech which she needs at least 2 times a week. She is in a new pathway program at school. There she receives speech occupational therapy and aba therapy. It’s a highly structured class. With the epilepsy she has absent and myoclonic seizures up to 60 a day without meds. The absent seizures are very hard to detect you have to watch for fluttering of the eyes. The myoclonic are a jerk her head drops and her arms go up. She will drop anything she's holding at the time it happens. We are still trying to get the myoclonic under control. She takes 1000mg of depakote a day 375 in the morning and night 250 in the afternoon. We are still figuring out what med will work the best. She was on lamictal but it caused a rash that could turn in to Steven Johnson syndrome that is a life threatening illness. On average with her meds she still has at least 8 seizures a day (myoclonic). A little about Paizley, she is truly the happiest person I've ever met. I've never experienced a happiness like she has. She loves people and music. She does not like loud noises it’s a sensory thing. She can talk but it can be hard to understand. I am her translator. Please help us help our special little angel. Your support is deeply appreciated.
Holly Hagen
To Our Family, Friends, and Acquaintances,
We would like to ask you all to keep our 5 year old grand-daughter Paizley Hagen in your thoughts and prayers. Paizley was diagnosed with Autism a year ago and just recently with Epilepsy. She has had as many as 60 seizers in a day, big and small, before the proper treatments were started. There are other medical conditions that she will be tested for in the upcoming weeks and months. Paizley and her parents Holly and our son-in-law Nicholas are facing many challenges in their lives. All of them and us are being stretched to the limits. While insurance covers some issues, there are many situations that it does not. Speech Therapy, Transportation Issues, Educational Specialist, and certain medical procedures, that are “deemed” elective but are needed for quality of life, are not covered. As a family we pray and take up these challenges that face us head on. We love this little girl and her parents and ask all of you to keep her in your heart when you hit your knees at night and ask God to love her too. Thank You.
Sincerely,
Roxanne Dubinski Stout and Bob
Phillip L. Wenz and DeAnn
Organizer
Holly Hagen
Organizer
Sugar Grove, IL
