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Sight for Katelyn

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Our daughter, Katelyn, was born with Septo Optic Hypo Dysplasia. (SOD) is a condition where the vessels in her eyes are underdeveloped, which in turn makes her blind with little light perception. SOD is broad in that it can affect one eye or both. The patient can have almost normal vision to complete blindness. We do believe she can see  some light in her left eye. Katelyn has SOD in both eyes. Her diagnosis also affects her pituitary (growth hormone). Since birth she has been in and out of the hospital having MRIs, multiple IVs, and has therapy each week with speech therapy, occupational therapy, and a vision teacher. Even with her busy and challenging life, she is still a happy, loving, and truly an inspiration to everyone that knows her! Even still she has never seen my face, her daddy's face, her sisters face! She's never seen her own face! 
We have been introduced to doctors and patient reps in Bangkok Thailand that are optimistic that they can treat Katelyns SOD to help with her quality of life! We have prayed about it and believe this is a shot worth giving! Unfortunately it is costly. Just the flight to Thailand for Josh, katelyn, and myself is $4,000 and that's each time we fly to Thailand. Depending on her treatment we will need to fly overseas anywhere from 4-10 times.
I had to quit my job as an EMT of 14 years to stay at home with Katelyn so she can get to Dallas childrens hospital and continue her therapy, as well as enjoy her twin sister Allison. Her father, Josh is a full time firefighter in Shreveport. He also works two part time jobs at other fire departments and is in paramedic school to help further his career. He is a hardworking man and will do whatever for our little family! Our dream is one day she will see, she will wake up Christmas morning and have that excitement on her face seeing what Santa brought her! It's heartbreaking as a parent to see your child sitting by herself not involved in everyday life because she can not see life around her. Although we involve her in everything, the interest and motivation isn't there because she has no visual concept of things. We help her with everything and we want her to have as much independence as possible, but words cannot describe the fear and pain of knowing her many obstacles. She has bumped into walls, stumbled over toys, got confused where she is at, etc and words cannot describe, as parent, how completely heartbreaking it is to see your child in this pain and confusion. We love our girls so much and as any parent would do, we are trying everything to make sure they have a happy loving life. Our dreams for Katelyn are different, as in, we want to take a simple picture of our gorgeous child with her face looking up at the camera instead of down  because again see can't see were to look! For her to have a favorite cartoon, to grown up and find her prom dress, to drive, to  know the feeling of looking into her first loves eyes, and one day be able to see her children's faces!  Simply, we want our little girl to SEE and enjoy life like her little sister.
We have been quoted anywhere from 50,000-200,000 for Katelyn's stem cell treatments. Thank you for taking the time to read her story and we appreciate any help! We pray that God will give us peace and healing as we start this long journey. God bless you all!
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Donations 

  • Kathryn Brownsberger
    • $20 
    • 4 yrs
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Organizer

Laci Yelvington
Organizer
Karnack, TX

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