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Best Day Ever Foundation, INC

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BEST DAY EVER FOUNDATION is a non-profit organization with three important missions:
1) Funding research to help find a cure for Duchenne Muscular Dystrophy.
2) Supporting patients who want to exercise their right try experimental drugs that could potentially save their lives. 
3) Granting unique wishes that help families dealing with terminal childhood diseases have, "BEST DAY EVER" experiences.

Laura McLinn, the mommy of six year old Jordan, started this non-profit organization a couple of years after Jordan was diagnosed with Duchenne Muscular Dystrophy. DMD is a 100% fatal muscle wasting disease that affects 1 in 3500 boys.  Jordan was, "hired" to be a firefighter at just 5 years old after Laura created a resume to help him find his, "dream job". She knew that according to science Jordan wouldn't be able to get his dream job at the normal adult age. Boys with Duchenne have a life expectancy of about 20 years. Firefighters from all over the country started reaching out to offer Jordan a job during the Christmas season in 2014.  After some interviews, he was offically offered, "jobs" with  Bargersville and the Indianapolis Fire Department. Now he goes on a regular basis to the firestations to work, train, share meals and have fun with his new firefighter family.  The McLinns know that every day is a gift. They approach life every day with the goal of making it, "THE BEST DAY EVER". They have a lot of supportive people, including the firefighters, who help make this happen on a regular basis.

Laura's number one passion is finding a cure for DMD but in the meantime she wants to help patients like her son receive access to investigational drugs as quickly as possible. There is one particular exon skipping drug in the pipeline right now that could add decades to Jordan's life but it has not yet been approved by the FDA. This is an exciting time  because until recent years there really was no hope for boys with this disease.

Laura is also passionate about helping other families create awesome memories together by granting unique wishes to create the, "BEST DAY EVER" for their families. 

By donating to the BEST DAY EVER FOUNDATION you can be a part of helping other families dealing with terminal childhood illnesses have some awesome, "BEST DAY EVER" experiences. You can help support patients, like Jordan, who want to try experimental drugs that could potentially save their lives. You can also help fund research for finding treatments and a cure for DMD for Jordan and other boys like him.


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Donations 

  • Jeff Brown
    • $53 
    • 7 yrs
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Organizer

Laura Hill McLinn
Organizer
Indianapolis, IN

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