With Phoebe turning 4 in October, this should be her second year of preschool with her going 3 mornings a week. Instead, she is on the schedule for just one morning a week. And even that depends on what her body will allow.
Phoebe so desperately wants to go to school like her big sisters. She even insists she has to get a backpack and other school supplies just like them. She picked out a special outfit to wear on the first day and packed a lunch in a brown paper bag.
While she excitedly talks about going to school, her mom prepared what they call her "special kit" that will stay in her backpack. To accommodate her medically, her backpack is transformed into a first aid kit. It has a thermometer, tylenol, bandaids of various sizes, gauze pads, cloth tape, neosporin, neosporin foaming wound cleaner, antibacterial gel, wipes, doctors numbers, and a detailed list of what to do in each possible scenario.
Before she went to bed all she could talk about was how she is a big girl and going to start school tomorrow just like her big sisters. She even told Naomi that she would miss her.
All her family can do is make each day she goes as special as possible, and pray they don't have to use anything in the kit.