Help for Haiven
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The Story of Our Twins:
On January 8th, I went into the hospital because I was having contractions. I was in pain and I thought that they would just stop my contractions and I could go home the next day. This was not the case. I was dilated to 10 and our twins were 28 wks and 6 days gestation. I remember crying and saying "They aren't going to make it". Our son Hunter was breach and his heart rate was dropping so they had to do an emergency C section.
I woke up to find out that Hunter was having a hard time breathing and our daughter Haiven was doing well. On January 11th, our life would change forever. The nurse had noticed that the pulse in Haiven's legs weren't as strong. So, the doctor did an echo to evaluate the situation. Within in minutes, they were getting the helicopter ready. Her situation was grave and she needed surgery as soon as possible.
Haiven was flown to the University of Michigan. The nursing staff and doctors worked very hard to hurry up and get me discharged so we could travel to the U of M to see our baby. We drove in a blizzard 5 hours and ok'd her surgery over the phone. They had told us she didn't have very much longer to live if we did not okay the surgery and she only had a 25% change of surviving the surgery. That was the longest car ride of my life. The medication from my surgery was wearing off. I sat the entire ride with my phone in my hand waiting for a call and hoping that they wouldn't call too soon. My husband tried to stay focused on the roads because it was so bad out. We literally pulled into the parking lot and the call came through. My heart sank to my stomach and I tried not to cry. I answered the phone to hear "she made it out of surgery just fine and she's recovering".
In the days and weeks to come there was more testing which meant more waiting, more tears, more suspense, good and bad results. Haiven is still at U of M and her heart is still not OK. She has to undergo bypass surgery In April. During this surgery the surgeon will fix the blockage and patch the 3 holes that are in her heart. Haiven is still on oxygen because she has a of mixing of un-oxygenated and oxygenated blood.
We try to visit her on weekends but this can be difficult because We have a 6 yr old, 3 yr old, a 1 yr old and now, the twins. We were prepared for the cost of living with two healthy newborns joining our family, but life has thrown us a curve ball we weren't expecting. Hunter's formula is expensive and insurance just denied our claim stating that they were not going to pay for it. I am going to fight this. Medical bills are mounting and the cost of gas to get to U of M along with all the other expenses, as we are trying to help our Haiven fight for her life, has been overwhelming. My husband and I don't like to ask for much, but Haiven is literally our million dollar baby. Her medical bills are going to continue throughout the next few years of her life. She is going to need physical therapy and speech therapy. The gas to drive her to and from her appointments is a hardship for us. Once Haiven is out of the hospital she is going to have to have frequent appointments to a various number of doctors. The doctors did tell me that by age 2 the dr visits should be less.
If you decide to donate, Thank you a million times over! If you can't donate, please share this with someone you know who may be able to help. If you can't donate or share please just say a little prayer for our baby. We love her so much and we want her home so badly. My heart literally hurts for her and my arms ache because I want to hold her so bad.
On January 8th, I went into the hospital because I was having contractions. I was in pain and I thought that they would just stop my contractions and I could go home the next day. This was not the case. I was dilated to 10 and our twins were 28 wks and 6 days gestation. I remember crying and saying "They aren't going to make it". Our son Hunter was breach and his heart rate was dropping so they had to do an emergency C section.
I woke up to find out that Hunter was having a hard time breathing and our daughter Haiven was doing well. On January 11th, our life would change forever. The nurse had noticed that the pulse in Haiven's legs weren't as strong. So, the doctor did an echo to evaluate the situation. Within in minutes, they were getting the helicopter ready. Her situation was grave and she needed surgery as soon as possible.
Haiven was flown to the University of Michigan. The nursing staff and doctors worked very hard to hurry up and get me discharged so we could travel to the U of M to see our baby. We drove in a blizzard 5 hours and ok'd her surgery over the phone. They had told us she didn't have very much longer to live if we did not okay the surgery and she only had a 25% change of surviving the surgery. That was the longest car ride of my life. The medication from my surgery was wearing off. I sat the entire ride with my phone in my hand waiting for a call and hoping that they wouldn't call too soon. My husband tried to stay focused on the roads because it was so bad out. We literally pulled into the parking lot and the call came through. My heart sank to my stomach and I tried not to cry. I answered the phone to hear "she made it out of surgery just fine and she's recovering".
In the days and weeks to come there was more testing which meant more waiting, more tears, more suspense, good and bad results. Haiven is still at U of M and her heart is still not OK. She has to undergo bypass surgery In April. During this surgery the surgeon will fix the blockage and patch the 3 holes that are in her heart. Haiven is still on oxygen because she has a of mixing of un-oxygenated and oxygenated blood.
We try to visit her on weekends but this can be difficult because We have a 6 yr old, 3 yr old, a 1 yr old and now, the twins. We were prepared for the cost of living with two healthy newborns joining our family, but life has thrown us a curve ball we weren't expecting. Hunter's formula is expensive and insurance just denied our claim stating that they were not going to pay for it. I am going to fight this. Medical bills are mounting and the cost of gas to get to U of M along with all the other expenses, as we are trying to help our Haiven fight for her life, has been overwhelming. My husband and I don't like to ask for much, but Haiven is literally our million dollar baby. Her medical bills are going to continue throughout the next few years of her life. She is going to need physical therapy and speech therapy. The gas to drive her to and from her appointments is a hardship for us. Once Haiven is out of the hospital she is going to have to have frequent appointments to a various number of doctors. The doctors did tell me that by age 2 the dr visits should be less.
If you decide to donate, Thank you a million times over! If you can't donate, please share this with someone you know who may be able to help. If you can't donate or share please just say a little prayer for our baby. We love her so much and we want her home so badly. My heart literally hurts for her and my arms ache because I want to hold her so bad.
Organizer
Jennifer Lynn Jackson
Organizer
Niles, MI
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