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Help Caryl Lease- Lyme Disease Fund

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Caryl Lease- Brilliant, Vivacious, Funny, Outgoing, Beautiful, Animal Lover needs your help to get treatment for Advanced Neurologic Lyme Disease so she can get her life back.
My name is Stevie. I met Caryl about ten years ago at a tough time in my life. Caryl has shown me incredible kindness, patience, and encouragement throughout our friendship. Most importantly we both share a philosophy that everyone should be able to go outside and enjoy the fresh air and beauty of nature with our friends, family, dogs, cats, horses and whatever adorable creatures that may come our way. If it weren't for Caryl's encouragement i would not have been inspired to seek treatment for my Melanoma skin cancer and take the necessary steps to get my life back. Caryl has also helped me to realize that i have more self worth than i thought i had, and as a result i have a beautiful new family and an amazing new daughter, Stephanie, that adores her Aunt Caryl. As i witnessed Caryl's health struggles and long awaited diagnosis of Advanced Neurologic Lyme Disease, i decided to reach out and offered to launch this campaign on her behalf. Caryl has been an incredible asset in our community; the least we can do is help her return to health so that our friend will be given the chance to enjoy life again and continue sharing her beautiful personality with the world.
I ask you to consider "paying it forward" and sparing what you can afford by donating to Caryl's Campaign. Don't feel that any donation will be too small, if each of you contributes only $1 we would immediately reach our goal.

Caryl Needs Your Help, without your help, Caryl has no financial means of receiving the treatment she so desperately needs.
To date, my best friend Caryl, has taken at least 68,438 pills, thats approximately 125 pills per day, not counting the liquid meds. None of this medication is prescribed to manage pain. According to her doctors pain medication is not relative to her treatment.

Caryl has Chronic Lyme Disease and a host of co-infections, Babesia, Bartonella, Ehrlichia, fungal infections and brain parasites to name a few.

Caryl has spent most, if not all, of her adult life in pain. Until now there has been no relief in sight. This month, a new treatment program, is giving us hope that there is light at the end of the tunnel. She has patiently waited for this treatment for far too long. The infections have taken control of her body. They affect her muscles, organs, nervous system, bones and brain function. For example, Caryl needed an ankle replacement due to an old injury, once replaced she had to endure five more surgeries because the Lyme Disease hindered proper healing of the bones, causing the replacement to fail repeatedly. Her doctor has told her that if it fails again, the only option may be amputation.

But, with long term treatment and alot of help, she plans to fight back and regain her life.

Caryl was a brilliant, vivacious, outgoing, beautiful woman. She began her career as a Veterinary Technician and Chemist. However, as the disease progressed, her chemical sensitivities and weakened immune system made it impossible for her to continue in that line of work. Caryl had to find another line of work. She chose Bartending and Serving for many years. Due to memory issues and physical impairments she can no longer do this type of work either. Caryl's daily life is now affected to the point that she can no longer do all the things you and i take for granted, like shopping, walking her dog, or even cleaning her own home.

Caryl has Advanced Neurologic Lyme disease. As a result of that illness she has fatigue and malaise, anxiety, depression, constipation, sleep disturbance, night sweats, joint pain, generalized pain, neuropathy, sensory disorder, polydipsia, polyuria, muscle spasms, memory disturbance, visual disturbance, cognitive problems, adrenal insufficiency, paraesthesias, dysautonomia, itching and flushing. While the progression of this disease was slow at the onset, the increase in symptoms is like a slow moving snowball going downhill. It seems like a whole new set of symptoms pop up every month or two, adding to her misery and further reducing her ability to function in a normal way. Her life could be described as having very early stage Alzheimer's, Fibromyalgia, Chronic Fatigue Syndrome, hives, Irritable Bowel and Advanced Traumatic Arthritis, with the unfortunate expectation that all these symptoms will continue to get worse.

Caryl is currently waiting for a Disability hearing. She has been waiting for three years. In the interim she is unable to work. Her medical bills, as well as, her expenses for daily living are piling up. The state is not able to help because she lives alone and has no children. Her parents are helping the best they  can, but they are also in poor health.

Why Does Caryl Need So Much Money?

She actually needs much more than the goal.

-Her doctors appointments are approximately $500 per month
-Her prescriptions range from $500-$1000 per month
-Necessary supplements range from $200-$400 per month.
-She is on a strict diet as well to help combat this disease.

Her treatments are not covered by insurance. All expenses are out of pocket.

Caryl's Day

Her typical day revolves around medications, pain, and side effects. With every new medication comes a new side effect. Today it may be nausea, vomiting, temporary blindness, heart palpitations, dizziness, and lack of bladder/bowel control. This makes her housebound. SHE NEEDS YOUR HELP!

Every day someone you love could be suffering needlessly from Lyme Disease and could die from its complications. Please don't let my best friend become a statistic!!

Other Ways You Can Help
If you can't contribute that doesn't mean you can't help:

* Get the word out and make some noise! Post about Caryl's illness and campaign to any of your online groups, and share it with your friends and family.
* Use the GoFundMe share tools (at the top of the page)!
* Tell people about Lyme disease and where they can get more information
       -Recommended reading-  ILADS (http://www.ilads.org/)

**Caryl grew up in an area with Lyme Disease, was warned it was "bad" ( seriously she was never told more than that), and was told specifically if she has been bitten by a tick, she should look for the " bulls-eye rash" which signifies Lyme infection. Many times there is no rash and the person never sees the tick. There is no reliable test for this illness, which is a large part of the reason it goes undiagnosed for long periods of time, and why Caryl was unable to get a diagnosis earlier.

Organizer

Signy Stephanie Louise Ellerton-Rich
Organizer
Chestertown, MD

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