- N
- M
- I
Kensi's CGM/Raising Awareness of HI
0% complete
$11,430 raised of $12K AUD
170 donations
In April 2016 our daughter, Kensi (then seven months old) was admitted to hospital with a blood sugar level of 0.8mmol/L.
A scary and stressful time for our family, with so much uncertainty as to her immediate and long-term health.
12 days later Kensi was discharged from hospital with a diagnosis of Congenital Hyperinsulinism (HI).
A condition where the pancreatic beta cells secrete excessive levels of insulin, which in turn results in regular, sometimes unexpected, and highly dangerous hypoglycaemic episodes. Effectively, the opposite of diabetes.
The stressful management of her condition involves four-hourly blood glucose checks, including overnight to monitor and treat where necessary to ensure we are avoiding or reducing the risk of long term damage to her developing brain and body.
In the hope of reducing the daily stresses and improving Kensi's quality of life, we have decided to purchase a Continuous Glucose Monitor (CGM). This device has a sensor inserted under the skin which transmits the blood sugar level every five minutes to a receiver and alarms when the levels drop to below the set value.
This in turn will provide us with valuable information about trends and fluctuations with sugar levels and also allow our baby girl to sleep for as long as her blood sugar levels are in the safe zone.
Unfortunately the ongoing costs for consumables will amount to over $4,000 per year.
We are seeking some assistance in funding this, and at the same time hope to fundraise an additional $4,000 to donate to Congenital Hyperinsulinism Australasia to help raise much needed awareness of this condition.
Funding is non-existent for this charity, to the point where they don't even have a website. A necessary tool in today's society for parents and patients looking for information when the doctor hands over a diagnosis of HI.
In early-2017, HI Australasia hopes to host a Conference with specialists from around the world invited to present to doctors and families in Australia about the research and developments in the treatment and management of the condition.
The expenses involved in paying for doctors to attend from across the globe will be significant.
Through this campaign, not only will our family gain peace of mind and quality of life, but we hope to raise awareness and funds so that other families like ours can benefit also.
We appreciate your support however small or large.
Please know you are making a massive difference in our daughter's life, and others living with this condition.
Thank you.
Vicki, Steve, Leilani & Kensi King
For those who are interested...here are some links to further explain Kensi's condition, and why we're raising funds.
MedScape -What is Congenital Hyperinsulinism?
http://emedicine.medscape.com/article/923538-overview
HI International website:
http://congenitalhi.org
(This is the international organisation. We hope to provide our additional funds so that the Australasian Charity can follow in their footsteps.)
Dexcom CGMs:
https://www.dexcom.com/continuous-glucose-monitoring

A scary and stressful time for our family, with so much uncertainty as to her immediate and long-term health.
12 days later Kensi was discharged from hospital with a diagnosis of Congenital Hyperinsulinism (HI).
A condition where the pancreatic beta cells secrete excessive levels of insulin, which in turn results in regular, sometimes unexpected, and highly dangerous hypoglycaemic episodes. Effectively, the opposite of diabetes.
The stressful management of her condition involves four-hourly blood glucose checks, including overnight to monitor and treat where necessary to ensure we are avoiding or reducing the risk of long term damage to her developing brain and body.
In the hope of reducing the daily stresses and improving Kensi's quality of life, we have decided to purchase a Continuous Glucose Monitor (CGM). This device has a sensor inserted under the skin which transmits the blood sugar level every five minutes to a receiver and alarms when the levels drop to below the set value.
This in turn will provide us with valuable information about trends and fluctuations with sugar levels and also allow our baby girl to sleep for as long as her blood sugar levels are in the safe zone.
Unfortunately the ongoing costs for consumables will amount to over $4,000 per year.
We are seeking some assistance in funding this, and at the same time hope to fundraise an additional $4,000 to donate to Congenital Hyperinsulinism Australasia to help raise much needed awareness of this condition.
Funding is non-existent for this charity, to the point where they don't even have a website. A necessary tool in today's society for parents and patients looking for information when the doctor hands over a diagnosis of HI.
In early-2017, HI Australasia hopes to host a Conference with specialists from around the world invited to present to doctors and families in Australia about the research and developments in the treatment and management of the condition.
The expenses involved in paying for doctors to attend from across the globe will be significant.
Through this campaign, not only will our family gain peace of mind and quality of life, but we hope to raise awareness and funds so that other families like ours can benefit also.
We appreciate your support however small or large.
Please know you are making a massive difference in our daughter's life, and others living with this condition.
Thank you.
Vicki, Steve, Leilani & Kensi King
For those who are interested...here are some links to further explain Kensi's condition, and why we're raising funds.
MedScape -What is Congenital Hyperinsulinism?
http://emedicine.medscape.com/article/923538-overview
HI International website:
http://congenitalhi.org
(This is the international organisation. We hope to provide our additional funds so that the Australasian Charity can follow in their footsteps.)
Dexcom CGMs:
https://www.dexcom.com/continuous-glucose-monitoring