Go Kayla ,Go!
Donation protected
“ Go Kayla,Go “ its what my uncle say to Kayla each time we visit him.
I want to thank you for deciding to come look into whats happening in the life of this special child of mine, and in hopes you leave this page with your heart lifted up and inspired.(All Donations will go towards purchasing a handicap accessible bike for Kayla.An the daily care of her hygiene while in cast,and providing her items much needed)
Kayla was Born January 28th 2005, to a young mother that didn’t know what it took to be the “Special needs Mom”, just knew she was ready to poor all the love she had stored up for the Nine months she awaited this Blessing.
10 days old an the news was in , Prader Willi Syndrome was the veridic they gave me as I sat in the meeting room with Kayla's Grandmother.
Its sounded ruff, and very a long road ahead. I was ready” Lets Do this !” I thought.
Kayla has been thru so many different sonorous , its always a ever changing session.
Hip Dysplasia, eye surgery, Casting of her clubbed feet, infantile scoliosis , GTube , GH injections, GERD, and then comes Prader Willi Syndrome, the never feeling FULL SENSATION .( among other things)
I once told Kayla “ Can we please have a break with all these things that are wrong” Silly Mommy, Kayla isn’t in control of any of it.
My story is a common one in the Special Needs World.
Kayla's new adventure started November 19th 2014 with the Torso Cast, its going to hold off the inevtably Corrective scoliosis surgery that is in the near future , a year !
So, Kayla has this CAST on her torso, whats the big deal you say?
She will go under general anesthesia each time a cast is put on( about 3 months) and or removed. This process is something the doctors are very much concerned about due to her age, and dignosis of PWS.
Kayla struggles daily with the insatiable hunger, along with the anxiety factor, and behavior is also a top priority of mine.
She has accomplished more then I could ever pray for, she has exceeded my expectations , and yet she is in a content state of struggle.
PWS is usually seen in a negative light, or only understood as “ I have heard of PWS, they eat bunch of weird things , and steal food, and they are fat”.
Not who my child is at all, she’s a little girl that collects baby dolls, and plays make believe school an has a laugh thats so high pitch you cover your ears, but yes also needs to know everything all the time, and may very well cause a scene in public at any given time and Always hungry , well yes wouldn’t you be in you where missing the 15th chromosome?
Kayla is a inspiration. She’s my inspiration, and my daily dose of humble pie.
Kayla Baby, Mommy Loves you, I am because you are~
I want to thank you for deciding to come look into whats happening in the life of this special child of mine, and in hopes you leave this page with your heart lifted up and inspired.(All Donations will go towards purchasing a handicap accessible bike for Kayla.An the daily care of her hygiene while in cast,and providing her items much needed)
Kayla was Born January 28th 2005, to a young mother that didn’t know what it took to be the “Special needs Mom”, just knew she was ready to poor all the love she had stored up for the Nine months she awaited this Blessing.
10 days old an the news was in , Prader Willi Syndrome was the veridic they gave me as I sat in the meeting room with Kayla's Grandmother.
Its sounded ruff, and very a long road ahead. I was ready” Lets Do this !” I thought.
Kayla has been thru so many different sonorous , its always a ever changing session.
Hip Dysplasia, eye surgery, Casting of her clubbed feet, infantile scoliosis , GTube , GH injections, GERD, and then comes Prader Willi Syndrome, the never feeling FULL SENSATION .( among other things)
I once told Kayla “ Can we please have a break with all these things that are wrong” Silly Mommy, Kayla isn’t in control of any of it.
My story is a common one in the Special Needs World.
Kayla's new adventure started November 19th 2014 with the Torso Cast, its going to hold off the inevtably Corrective scoliosis surgery that is in the near future , a year !
So, Kayla has this CAST on her torso, whats the big deal you say?
She will go under general anesthesia each time a cast is put on( about 3 months) and or removed. This process is something the doctors are very much concerned about due to her age, and dignosis of PWS.
Kayla struggles daily with the insatiable hunger, along with the anxiety factor, and behavior is also a top priority of mine.
She has accomplished more then I could ever pray for, she has exceeded my expectations , and yet she is in a content state of struggle.
PWS is usually seen in a negative light, or only understood as “ I have heard of PWS, they eat bunch of weird things , and steal food, and they are fat”.
Not who my child is at all, she’s a little girl that collects baby dolls, and plays make believe school an has a laugh thats so high pitch you cover your ears, but yes also needs to know everything all the time, and may very well cause a scene in public at any given time and Always hungry , well yes wouldn’t you be in you where missing the 15th chromosome?
Kayla is a inspiration. She’s my inspiration, and my daily dose of humble pie.
Kayla Baby, Mommy Loves you, I am because you are~
Organizer
Melissa Castillo
Organizer
Upland, CA
