I'm asking for more prayers and shares. I am excited to announce Lori had her stem cell transplant and is doing pretty well. Thank you for all the prayers and donations to make this possible. Lori will continue to stay in Chicago until she recovers it will be a year of healing and taking it easy but we are blessed she gets this chance at a new life. Please pray for continual healing and no set backs.
Please share for prayers! Lori is in Chicago today starting her process for the stem cell transplant. She is admitted for her first dose of Chemo. Please pray for complete healing for Lori. Thank you! God Bless...Bertie
I have good news to share and the best update I can give at this time. My daughter has a date of February 9th to start pre-testing for her stem cell transplant. BCBS has finally approved this life changing procedure. I want to thank you for all the prayers and donations. Please keep Lori in your prayers as she goes through this procedure. I will be updating as she starts her journey!!! God Bless ~ Bertie
I haven't updated on my daughter lately so I thought it would be a great time to do so. Lori is doing good, her strength has been getting better with the frequent high doses of IVIG and physical therapy. The tremors in her hands have been getting worse and we are praying for these to stop.
The insurance company has Lor's life on hold because they say it is experimental, even though this has been proven to be a successful method of treatment for CIDP. Many insurance companies pay for it but Lori's is being very difficult. CIDP has stole her life but with HSCT she hopes to get it back and soon. Dr. Burt at Northwestern is a miracle worker.
I am not willing to let the insurance company dictate her life and health any longer. Each day we wait more permanent nerve damage can occur and we don't need that. I will try to raise the money for the transplant myself so I can get my daughter back.
Please, I am asking please, continue to pray for Lori and share this site. Lori and her family needs all the support they can get to have this transplant started!
Great News! Lori came back from Chicago today. Thank you for all your donations and prayers. We could not be doing this without all of your support.
Dr Burt and Dr Allen both thought she would be a great candidate for the HSCT (transplant). This is what we were hoping and praying for. This is the chance for Lori to get her life back! We are now waiting for the insurance and financial approval. Please continue to share this link and help my daughter reach her goal! Please keep Lori and her family in your prayers.
I'm very grateful for all the generous donations for my daughter and her family. Lori goes to Chicago the end of the month to start phase 1 of the stem cell transplant, this is the evaluation phase. Please continue to pray for my daughter that all will go smoothly.
As some of you know my daughter (Lori) was diagnosed with a rare debilitating disease in 2012. Lori has a husband (Jason) and three beautiful young children (Keagan 12, Kyleigh 11, and Kamdon 6), and needs help beating this rare disease. The rare disease is known as Chronic Inflammatory Demylelinating Polyneuropathy. An autoimmune disease that attacks the nervous system that has no cure but is treatable through different treatments. She has been scheduled for an evaluation at Northwestern University with Dr. Burt for a stem-cell transplant. This cutting edge medical procedure offers a lot of hope for our family because Lori is no longer responding to her current treatment and over the last year her health has been slowly deteriorating. She has limited use in her hands and has drop foot in both her feet. The muscles in her legs and arms are serverly atrophied. At times she deteriorates to a paralyzed state. She has recently devoloped tremors, severve ataxia (no balance), and blurred vision. She has a nurse coming to the house every nine days to give her steriods through an IV and has an IVIG at a very high dose which can have many serious long term side effects. I am praying this procedure not only helps Lori go into full remission but also help to eliminate future home nurse visits. She has recently lost the ability to carry out simple everyday tasks and work as a dental hygienist. This disease is very frustrating for Lori and I wish I could simply take it away.
I am so excited there is new hope for Lori by participating in a stem cell transplant at Northwestern University and praying everything will go as planned. The treatment is called Hematopoietic Stem Cell Transplant. Lori will be in Chicago for 2 months and undergo intensive Chemotherapy and harvest new stem cells that will be transplanted to give her a new immune system and new life.
Since I can't take it away I am asking kindly for your help. To help erase the financial burden that this disease is causing please consider contributing to help with the associated costs. Costs that are not covered by insurance, travel expenses, and loss of wages. Please pray for Lori's health. She is looking foward to becoming the mother and wife she once was.
During a time like this, I am asking for your support. Any little contribution will help. Please share with friends and family. Thank you for your thoughts, prayers and generosity.
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