Intense feeding therapy for Will
Donation protected
Will was born May 10, 2013 a heathy 6lb 3oz precious baby. Everything was going great. We have a daughter so we were really happy to have a boy. One week before his two month check up I noticed Wills bottles had started decreasing. Sometimes he wouldn't eat at all. So at his two month check up we were told he was developmentally delayed so we needed to get Will started in different therapies. They checked his blood levels. Later that day his pediatrician called and said his electrolytes were really off so he needed to be admitted to the hospital for fluids. I was terrified at was to come.
After his release from the hospital, Will was immediately referred to a G.I. Dr. Months went by and different test were done. His G.I. Dr checked his acid for 24 hours. She discovered he has severe reflux. 90 episodes were recorded within 24 hours. She also discovered Will has a milk allergy so Will needed to be put on special formula.
Will still didn't want to eat and we wasn't sure why. So in November of 2013 Will had a NG tube placed (feeding tube in nose). Then in February 2014 was when he had surgery for a G tube (feeding tube in stomach).
Will has seen many Drs in his little life. Genetics has done blood work and found on chromosome 14 Will is missing two genes but they don't know anything about those genes. More test are still being done for Will.
He will be 2 in May and still cannot say words. He doesn't know how to play with toys. He is so developmentally delayed that he goes to therapy 3-4 times a week. He sees speech, PT, OT, and has a EI. He is also on the list to start ABA.
We want our son to earn how to eat so we can get the tube out of his belly.
We are soon going to Atlanta , Georgia to the Marcus Autism Institute for intense feeding therapy. During that time my husband and I won't be able to work. We will be in Atlanta for two months. Please keep Will in your prayers that he will be successful in this therapy.
After his release from the hospital, Will was immediately referred to a G.I. Dr. Months went by and different test were done. His G.I. Dr checked his acid for 24 hours. She discovered he has severe reflux. 90 episodes were recorded within 24 hours. She also discovered Will has a milk allergy so Will needed to be put on special formula.
Will still didn't want to eat and we wasn't sure why. So in November of 2013 Will had a NG tube placed (feeding tube in nose). Then in February 2014 was when he had surgery for a G tube (feeding tube in stomach).
Will has seen many Drs in his little life. Genetics has done blood work and found on chromosome 14 Will is missing two genes but they don't know anything about those genes. More test are still being done for Will.
He will be 2 in May and still cannot say words. He doesn't know how to play with toys. He is so developmentally delayed that he goes to therapy 3-4 times a week. He sees speech, PT, OT, and has a EI. He is also on the list to start ABA.
We want our son to earn how to eat so we can get the tube out of his belly.
We are soon going to Atlanta , Georgia to the Marcus Autism Institute for intense feeding therapy. During that time my husband and I won't be able to work. We will be in Atlanta for two months. Please keep Will in your prayers that he will be successful in this therapy.
Organizer
Rachael Browning Alewine
Organizer
Belton, SC
