At just 3½ months old, Ingrid was diagnosed with a rare gene mutation called PHACTR1. This change in her DNA brought infantile spasms—a severe form of epilepsy that started early and changed everything. The seizures disrupted her young brain at a critical time, leading to global developmental delay. Today, Ingrid cannot speak with words, and she cannot move on her own. Simple things most children take for granted running, talking are out of reach for her.

But if you met Ingrid, the first thing you’d notice isn’t what she can’t do. It’s how brightly she shines.

Ingrid is a truly happy child. She loves being surrounded by other kids—their laughter, their energy, their play. She adores long bus rides and going to school. And nothing makes her happier than spending time with her big sister—the one who talks to her, sings to her, and shares every quiet moment like they’re the best of friends. Thanks to early therapies, loving care from her family, and specialized support, Ingrid’s world has grown. The right interventions have helped manage her seizures better and given her moments of calm and connection she might not have had otherwise. She’s still progressing in her own beautiful way—showing us every day that joy doesn’t need words to be real.

We’ve fought hard for her. Ingrid has already undergone four stem cell transplants in Bratislava, Slovakia—each one costing our family dearly, totaling over £15,000. And every single time, we’ve seen meaningful improvements: better seizure control, small but precious gains in awareness and connection, moments where she seems more present and responsive. These treatments have given her real progress and renewed hope.

Now, the next chapter requires something even more significant: travel to Panama for advanced stem cell therapy at a specialized clinic there. This treatment, building on what she’s already achieved, is estimated to cost around £20,000 (including travel, accommodation, medical fees). It’s a major step one we believe can help unlock even greater improvements in her mobility, communication potential, and overall quality of life.

Ingrid needs us her parents to keep going, to make these opportunities possible so she can continue shining brighter. We can’t do it alone. The costs are beyond what our family can manage without help, especially after the previous rounds.

That’s why we’re reaching out to you today. Your support becomes the bridge to Ingrid’s next round of hope

Will you help us write this next part of Ingrid’s story? The one where her happy spirit keeps growing, and her family gets to see even more of the incredible potential inside her?