Donation protected
Hi, I'm Arthur! I have SETBP1 haploinsufficiency disorder, but you’ve probably never heard of that, because at the time of my diagnosis I was the second person in the UK to be diagnosed with this condition. I'm 1 in 100 million! It means many things. For myself it means stage 2 kidney disease, ureteric reflux, dyspraxia, ADHD and more. Most frustratingly for me, it means I really struggle to speak.
SETBP1 is a huge part of who I am, but aside from my struggles I'm just like any other 9 year old boy and love nothing more than being with my friends. I absolutely adore my mainstream school and knowing I am returning to my class and cohort gets me through my many hospital visits. Our school are really lucky because we have an outdoor pool! However this pool is 50 years old, it is cold because it doesn't have a heater and is needing a lot of work. The pool is one of my favourite things about school. It provides me freedom. It is great for developing my balance, strength, co-ordination and endurance and is invaluable to my self esteem. In the pool I can have fun with my friends and improve my social skills in a relaxed and natural environment.
I don’t fit into a box and whilst it is fair to say that I struggle a great deal in mainstream school, there is nowhere else better suited for me. My school have been a lifeline since I started and without their support life would have been a great deal tougher.
My legendary headmaster, amazing 1-1 help and kind and supportive teachers all go above and beyond to make it work each and every day on a shoe string budget. It would mean everything to be able to give something back and would have such a huge impact if my school pool was something we all could be proud to share with the wider community.
The total for this fundraiser is set at £238,000 this is the ‘Gold standard’ required to completely overhaul the pool.
With every step we take towards this, we can achieve incrementally more repairs and updates.
Below are some examples of what we need. Any funds raised, no matter how small, will go towards upgrading our pool and ensuring it can be enjoyed for years to come.
£9,570 - Install automatic dosing system for monitoring and control of pool cleaning chemicals
£14,000 - Air source heat pump, allowing us to use the pool for much longer each year
£18,000 - New pool liner complete with felt underlay
£21,405 - New filtration system, keeping the pool cleaner and ensuring we can use it for longer
Thank you from the bottom of my heart. Arthur xx





Supply and install Continuous floculation system to adhere to commercial pool PWTAG standards. Remove finer particles and bacteria resistant to Chlorine. 1,180.00

Organizer

Emily Stevens-White
Organizer
England