My name is Sonia, im 35 years old and was diagnosed with endometriosis in 2015 after being rushed into theatre with a large ruptured cyst caused by stage 4 endo. I lost my right ovary and was in intensive care due to the rupture causing sepsis. In 2017 I had a routine laparoscopy for endo and again in 2019. In 2020 my symptoms become a lot more serious. I was offered a uterine embolization in 2021 due to passing out with the pain and I was diagnosed with adenomyosis. In 2022 I completed my goal of becoming a class 1 HGV driver through extreme pains. In 2024 after 2 years of being in and out of hospital, I had another laparoscopy which showed adhesions and twisting of my left ovary (it was also adhered to my uterus). A tumour on my bowel. A large cyst on my gal bladder. Endo found on my liver, lungs and kidneys. A Herniated disc caused by the inflammation of endo. And my uterus over double the size it should be.

A hysterectomy was the only outcome told to me by my consultant in 2021 after the uterine embolization was unsuccessful. Now that this has been left so long my symptoms and laparoscopic findings are much more serious (I now also need a kidney and colorectal surgeon whilst having a full hysterectomy).

I am now 6 months in from leaving my dream job due to passing out due to pain and discomfort. This has had a huge affect on my family with consistent hospital visits and not being able to join in family activities.

I was lucky enough to have my daughter at the early age of 19, after being told for years that i just had 'bad periods' and 6 days labour with doctors scratching their heads as what was wrong!

I have been to see a private consultant regarding everything that I have waited so long for through the NHS and literally getting nowhere and help is so limited in extreme circumstances due to multiple surgeons being needed at one time.

This consultant has suggested this surgery will be upwards of £25k to £30k but can increase and this will not be the end of it (stoma and further endometriosis surgery will continue). I have spent over 2k having small biopsy and now I am awaiting on 2 MRIs from this doctor which total another £1700.

I understand this may seem of choice but I have had no life due to an illness that is incurable and awaiting NHS times is destroying my body further.

I genuinely feel a complete failure towards my family, friends and career, for doing this but i feel this is my last option.

Please help me get my adult life back for my family and me.

If you have any questions about any of this please message me. Im happy to answer questions.

Thank you so much for reading my story.