July 13th, 2014 Heading to Cincinnati for Surgery # 20!
It's time to update this page a bit! We've been delighted to have the support of so many to aid in moving Chloe through so many, many surgeries. It has been 40 months (almost 3 1/2 years!) since we began this campaign, much has happened in that time for sure! Every penny donated has been put toward Chloe's medical and travel expenses incurred during trips back and forth to Cincinnati, OH. Some trips have been by plane, others by car, hotels, gas, food. Several trips have kept me from working up to six weeks at a time, this gets pretty tough at times being a single parent. I wouldn't want it any other way: God entrusted me with Chloe and her siblings, I intend to be the best mom ever! I do still need your help, hopefully this trip will be the last for quite a while! Please give whatever you can, it all adds up! It just disappears so fast! I appreciate each and every one of you so much! Chloe is changing before our very eyes, when you help it becomes reality.
Chloe is now 5 years old and has undergone several major recontruction surgeries on her face. After the successful bone implants from bone taken from her scapula (amazing, cutting edge procedure!) we waited to see the growth, then began the procedures called jaw distractions to pull the bone forward in order to make a functioning jaw. The first one was completed last September, it was grueling and took us away from home for 6 weeks. BUT, since then, it is obvious that it is working, as Chloe is able to swallow tiny bits of liquid (ice that is chewed and melted or tiny tastes of yogurt or ice cream!). Swallowing is AWESOME! She is making so many more sounds, which means that air is making its way past the trach. This is fabulous! She has had some surgery on her eye and had scar tissue removed from her neck from the implant surgery. That was not a difficult surgery, but required a trip to Ohio and when she was there she contracted RSV and got VERY ill. It was extremely scary and also much more expensive than expected. Being the Warrior Princess that she is, she bounced back and even got in a bit of real preschool at the end of the school year. Of course, she has a nurse there at all times, but she adored it and made lots of friends!
Now we are off again to get another jaw distraction. The bone will be pulled farther out and it is the hope that more airway opens and that more space is created so that at some point Chloe can breathe without the trach and speak! She is such a smart little princess, the kindest, funniest, most compassionate and loving child you could imagine. She doesn't let these surgeries, or life in general phase her. She is an angel here on earth, she just has to be! Thank you all for helping with any amount that you can afford. EVERY dollar makes a difference!
Chloe had her first jaw implant surgery in September. What a trying time it was! The bone taken from her scapula and implanted into her jaw looks to have taken successfully. The expected 8 hour surgery turned into 14 grueling hours and stabilizing Chloe took days! She continues to earn her Warrior Princess status, and fought it through to the homecoming day. Expenses were high, as the Ronald McDonald House didn't have a room for a while and the stay was longer than expected. She will return in Feb. or March 2013 to have the other side of her face/jaw reconstructed. Your donations were a God send and now we need to start the process of fundraising for the next trip. Please give a little or a lot. Chloe needs us ALL to help her continued movement to a more normal life! Thanks to EVERYONE who helped make this first step in this part of the journey possible!
We are raising money for our sweet angel Chloe's future surgeries and medical costs. Chloe was born with several life threatening birth defects. This precious little girl spent her first 7 months fighting for her life at Childrens Hospital in Denver. She was born with 2 holes in her heart, pulmonary hypertension, no ears, no jaw, missing bone in multiple areas of her face, spinal cord complications, and the most sweetest smile ever. Chloe was ventilator dependent up until this last October. We will celebrate her 2nd birthday in April. She is a miracle conquering over 8 surgeries so far, including repairing 2 holes in her heart, and the untethering of her spinal cord (making it possible for her to walk), She has managed to work her way off of the ventalator during the day and naps. Chloe is trached, so she breathes through a hole in her throat, she is also fed through a tube in her stomach. She will have to live this way until her jaw is reconstructed. This could be as long as 12 years old. The next step is to find the BEST cranniofacial and bone reconstructive doctor there is! In doing so, we are asking for any donations that would help us make this possible. Chloe will need to have her jaw built by using her ribs. She will need to have the bone built up around her eye socket. CHloe also needs to have ears made and screwed onto her skull. She will need to have the skin tags on the sides of her face removed and then plastic surgery to fill in the holes. We are asking for help to raise money for all of these complex surgeries. All out of state appointments, tests, and procedures will not be covered under insurance. Once we find the doctor right for Chloe, we will most likely need to move to where they are.
From the day Chloe was born, we have faced many challenges as a family. Chloe has a 7 year old sister, and a 5 year old brother that have been through everything right along with Chloe. We love her so much, and want to make sure we find the BEST doctors to fix this angels face, and help give her the normal life she deserves.
Any amount you can give to help would be greatly appreciated. Thank you from the bottom of our hearts. Jennifer, Sierra, Kadin, and most of all, Chloe. God Bless.