Well, well. Most of the time, our trips to Ohio don't have blips in the trip planning part! Not this time. We always DEPEND on the Ronald McDonald House for shelter and food on the trips requiring a 6 week stay, this time there was no room at the inn. Devastating to me financially and all of our carefully constructed plans! I was to stay there, allowing Chloe to recuperate for about two weeks, then my mom was flying out with my other two kids for a week so that we wouldn't be apart for too long. She was going to stay a week, then we were to drive back toward the end of August after the distractor was removed. There was no way I could afford any more hotels, so the day Chloe was released from the hospital, I put her in the car and we drove back home to Colorado. Seemed crazy, but I had no choice. Our fundraiser money is about depleted and I just have to ask for your help once again. I will be returning to Ohio in about 4 weeks, this time flying, and we HAVE to stay a week at least RMH or not! After the distractor is removed, the doctor wires the jaw shut for a week and there can be no leaving. These trips are SO expensive, we lost money on the flight situation when things changed, the extra gas and hotels on a road trip I wasn't expecting have used up my resources. I still have many upcoming expenses to finish out this trip. Please give whatever you can. This journey of Chloe's is lifelong, I only ask for help when absolutely necessary. Lost wages through surgery and out-of state trips just hurt my whole family. We appreciate every single dollar donated to our very special cause...Chloe!
Chloe did fantastic, not a thing went wrong and her distractor is in place and already we can see the jaw moving out! She was quite miserable for the first few days, but is getting used to it and is only taking Tylenol for pain now. She truly is the most amazing little angel we've ever been blessed to know, and just think...she is OURS! She NEVER complains and jumps right back into life as much as one could expect having a contraption attached to ones head and wires and screws in ones jaw. The jaw is being pulled out 2mm per day, it's a lot, and by the end of this, there is a real possibility that her airway will be open enough for the trach to be removed. There are unknowns, as the trachea is considered 'floppy', and we are not sure how it happens that it could be strengthened. The tonsils are still an issue also as they are an obstruction, when they tried to remove them last time, they could not even get to them. We'll see, but we have high hopes and still take this construction of building a jaw one day at a time. It's all miraculous, every single bit of it! Thank you all for being part of our story!
Update From Grandma Gramdma
Surgery Number 20! Once again, we say good-bye with love and hope in our hearts as Jennie and Chloe head off to Cincinnati Children's Hospital. They will depart Sunday morning for the drive, leaving Sierra and Kadin here with me for 2 1/2 weeks. We have family in Kansas and they will have a short visit there before arriving in Ohio and heading into surgery on Thursday, the 17th. This surgery for Chloe is another jaw distraction and requires a lengthy stay, so we will join them on the 30th after Chloe has had some recuperation time. I will stay a week, and then Jen's Grandma Mau and her dad will arrive on the 13th to help out. If all goes well, the kids will arrive home to begin school on the 20th of August.
These are days filled with anxiety. Chloe has never stopped being a Warrior Princess, she just does whatever is placed on her little table and leaves us wondering how she manages to do it all with such grace and sweetness. Jennie always has so much to do to just get out of town, her stress levels increase and she wonders every single time if she is doing the right thing. This time, Chloe herself told her, "It's okay." We place our faith in God, who has given us a brilliant doctor who is doing cutting edge procedures on Chloe. We hold on tight to that faith, because Chloe has put her faith in us. It doesn't get any easier every time they go away, I do believe if anything, it gets tougher.
As you know, I will update along the way. The first part of the journey where we ask for prayer, positive thoughts and love begins early Sunday morning when they begin the long drive. Thanks ahead of time for all you do to help us navigate this wild ride. GO TEAM CHLOE!
For He shall give His angels charge over you, To keep you in all your ways. Psalm 91:11
The time has come again for another surgery for Chloe. Chloe and I will travel to Cincinnati, Ohio for the 3rd step in her jaw reconstruction surgery. This one will be a jaw distraction. This will be a process that takes 30 days to extend the jaw enough to allow her to get her trach out in the Spring. It is very exciting to think of how far she has come in the last year. The previous 2 surgeries have been very successful and Chloe has started to make vocal sounds and recently started saying "mom" and "wow". She has been so healthy this summer and making strides in her daily life. She is a miracle girl and has the spirit of a true warrior princess.
All of these trips have been made possible due to the generosity of this community. It would have been impossible for me to take her without all your help! This next trip will be for a total of 5 weeks without employment, and the donations we receive will make this possible, yet again. Thank you for all your kind thoughts, love, and prayers for us and with us along this journey. I will keep this page updated throughout the recovery. Thanks again, it means the world to me to see the outpour of love for Chloe and my family! God Bless, Jen
We leave tomorrow for Chloes 2nd jaw surgery. She will have her left side constructed. This is once again, a very tedious, long, procedure. Please pray and donate anything you have to help with expences we will have. I will not have any income the time we are gone which is expected to be almost 3 weeks. Any donation is a greatly aprreciated and thank you all for the HUGE amount of support you have always shown.
Chloes story told on Denver 7 news, CNN and all over the country news stations!
We finally made it to Cincinnati to start the first process in her jaw distraction. All of the donations have made this possible. We are only half way through. She will still need to have the left side done, ears and a few more facial bones. Please keep Chloe and family in your prayers. This surgery has been very rough on Chloe. Drs finding unexpected things wrong even more in her anatomy when getting in to place the scapula bone in her face to make the right side of her jaw bone. She is a true miracle,and I want to thank all donors to help make this possibe thus far. Please continue to share her GO Fund Me and her praying for newborn baby Chloe .....facebook group!! Much Love Jennie
We have only 1 week left before we leave to Cincinatti, Ohio. Chloe will be having her life changing surgery!!! They will be shaving her scapula bone, and reconstructing it into a jawbone!!!!! PLEASE PLEASE PLEASE find it in your heart to donate, even $1.00, EVERY DONATION counts!!!! The cost of travel expenses along with not working during the time we are there is getting very scary! Please help!!!
Chloe will be going to have her life changing surgery. She will be having the surgery to take part of her scapula bone to reconstruct her a jawbone. This is going to change her life, leading to removal of her trach and eventually eating by mouth. This is the time to donate, we need the help more than ever, as we wont be working during this time. THANK YOU for any previous donations, and even 1 dollar adds up!!!!!!
Thanks so much to the recent donations from your kind and generous hearts!!! We are just waiting for the Dr in Cincinatti to get back to us about the summer date for surgery, will keep the page updated!! Please continue to share this page to friends and family! We need all the help we can get, even $5.00 adds up!!!! You will see how much your donation helps in the positive changes you will see in Chloe over these next few years!!!!
Well we are once again getting ready for a life changing surgery. Thanks for all the support we have already recieved. Plans changed a little when the Dr in California decided he couldnt perform the surgery due to lack of funds from Medicaid. But the good news is.....we found a great dr in Cincinatti that will. He will do surgery this summer. This Dr will use parts of Chloes shoulder blade to construct a jawbone, connecting blood vessels as well, hoping that the bone will continue to grow with her. This is a very scary time for us, but the failure rate is only 5%, so with prayers and love, we are sure Chloe will pull through like the warrior she is. Thanks for your support, whether through donations or prayer, we appreciate every bit!!!! Love Jennie Cooper
We are so very grateful for all of these generous donations. The time is nearing, once again, for Chloe to head to L.A for her first major step in the jaw distraction process. The trip had to be postponed once, so we are even more excited than ever to get things started. People still ask if she can talk or eat. The lack of a jawbone allows the throat to close, requiring the trach which allows her breathing. As you know, she has been weaning off the ventilator, but still uses it at night and when she is sick. The trach does not allow the vocal cords to work, so Chloe cannot make sounds. It is extremely odd to have never heard her cry, or laugh or speak the precious words, "Mama". Not being able to swallow means that Chloe is fed a liquid diet through a tube in her tummy. She does try to taste things and is very curious about food. These donations are leading the way to building her the jaw which will give her life an entirely different story! It is a long process, but this first step, actually taking a molar and growing bone to be used in her face is just remarkable! We ask that you try to give just a little, you will always be able to say that you had a had part in changing the sweetest little child's life forever!
We want to thank everyone who dug into their pockets to share with Chloe over the Christmas season. Each donor is an angel sent to this child and this family, we are certain about this! Chloe's January surgery had to be postponed because of family issues that we have been dealing with for a while. A move closer to my family is in progress and a new March date has been scheduled. Life is continuing at warp speed, keeping up with it is difficult. Your donations so far have meant so much, my heart cannot express its gratitude. Please continue to spread the word, as funds are still needed. THANK YOU ALL!
Thank you so much to all the recent donors! If you wish to gift a donation to a family or friend for Christmas, please be sure to post it in your comment line. We are sure that most people will adore receiving this lifelong gift to Chloe!
Tis the season!!! Chloe will be going to California for her first facial surgery. She will be having a molor extracted to build a bone for her jaw. Any donations would help her mom out significantly!! Thanks to all who did last time, making the meeting of this doctor possible.
Thank you everyone for donating here and other places!!! Chloe is doing well, turning 2 next Wednesday! We did go to California to see some doctors, thanks to all the donations that paid for her doctors visit!! We have another visit to Cincinatti next month for our final opinion!!! Then we can proceed!!
Find Chloe's whole story on facebook. Praying for newborn baby chloe, thanks for all the support!
Thank you for all the recent donations! A chloe update; we will be taking her to see some cranniofacial drs. In LA in just a few weeks. So we will have more of an idea about upcoming face surgery. Thanks again!! Every bit helps!
Thanks for the support!!! We appreciate every penny!!
July 13th, 2014 Heading to Cincinnati for Surgery # 20!
It's time to update this page a bit! We've been delighted to have the support of so many to aid in moving Chloe through so many, many surgeries. It has been 40 months (almost 3 1/2 years!) since we began this campaign, much has happened in that time for sure! Every penny donated has been put toward Chloe's medical and travel expenses incurred during trips back and forth to Cincinnati, OH. Some trips have been by plane, others by car, hotels, gas, food. Several trips have kept me from working up to six weeks at a time, this gets pretty tough at times being a single parent. I wouldn't want it any other way: God entrusted me with Chloe and her siblings, I intend to be the best mom ever! I do still need your help, hopefully this trip will be the last for quite a while! Please give whatever you can, it all adds up! It just disappears so fast! I appreciate each and every one of you so much! Chloe is changing before our very eyes, when you help it becomes reality.
Chloe is now 5 years old and has undergone several major recontruction surgeries on her face. After the successful bone implants from bone taken from her scapula (amazing, cutting edge procedure!) we waited to see the growth, then began the procedures called jaw distractions to pull the bone forward in order to make a functioning jaw. The first one was completed last September, it was grueling and took us away from home for 6 weeks. BUT, since then, it is obvious that it is working, as Chloe is able to swallow tiny bits of liquid (ice that is chewed and melted or tiny tastes of yogurt or ice cream!). Swallowing is AWESOME! She is making so many more sounds, which means that air is making its way past the trach. This is fabulous! She has had some surgery on her eye and had scar tissue removed from her neck from the implant surgery. That was not a difficult surgery, but required a trip to Ohio and when she was there she contracted RSV and got VERY ill. It was extremely scary and also much more expensive than expected. Being the Warrior Princess that she is, she bounced back and even got in a bit of real preschool at the end of the school year. Of course, she has a nurse there at all times, but she adored it and made lots of friends!
Now we are off again to get another jaw distraction. The bone will be pulled farther out and it is the hope that more airway opens and that more space is created so that at some point Chloe can breathe without the trach and speak! She is such a smart little princess, the kindest, funniest, most compassionate and loving child you could imagine. She doesn't let these surgeries, or life in general phase her. She is an angel here on earth, she just has to be! Thank you all for helping with any amount that you can afford. EVERY dollar makes a difference!
Chloe had her first jaw implant surgery in September. What a trying time it was! The bone taken from her scapula and implanted into her jaw looks to have taken successfully. The expected 8 hour surgery turned into 14 grueling hours and stabilizing Chloe took days! She continues to earn her Warrior Princess status, and fought it through to the homecoming day. Expenses were high, as the Ronald McDonald House didn't have a room for a while and the stay was longer than expected. She will return in Feb. or March 2013 to have the other side of her face/jaw reconstructed. Your donations were a God send and now we need to start the process of fundraising for the next trip. Please give a little or a lot. Chloe needs us ALL to help her continued movement to a more normal life! Thanks to EVERYONE who helped make this first step in this part of the journey possible!
We are raising money for our sweet angel Chloe's future surgeries and medical costs. Chloe was born with several life threatening birth defects. This precious little girl spent her first 7 months fighting for her life at Childrens Hospital in Denver. She was born with 2 holes in her heart, pulmonary hypertension, no ears, no jaw, missing bone in multiple areas of her face, spinal cord complications, and the most sweetest smile ever. Chloe was ventilator dependent up until this last October. We will celebrate her 2nd birthday in April. She is a miracle conquering over 8 surgeries so far, including repairing 2 holes in her heart, and the untethering of her spinal cord (making it possible for her to walk), She has managed to work her way off of the ventalator during the day and naps. Chloe is trached, so she breathes through a hole in her throat, she is also fed through a tube in her stomach. She will have to live this way until her jaw is reconstructed. This could be as long as 12 years old. The next step is to find the BEST cranniofacial and bone reconstructive doctor there is! In doing so, we are asking for any donations that would help us make this possible. Chloe will need to have her jaw built by using her ribs. She will need to have the bone built up around her eye socket. CHloe also needs to have ears made and screwed onto her skull. She will need to have the skin tags on the sides of her face removed and then plastic surgery to fill in the holes. We are asking for help to raise money for all of these complex surgeries. All out of state appointments, tests, and procedures will not be covered under insurance. Once we find the doctor right for Chloe, we will most likely need to move to where they are.
From the day Chloe was born, we have faced many challenges as a family. Chloe has a 7 year old sister, and a 5 year old brother that have been through everything right along with Chloe. We love her so much, and want to make sure we find the BEST doctors to fix this angels face, and help give her the normal life she deserves.
Any amount you can give to help would be greatly appreciated. Thank you from the bottom of our hearts. Jennifer, Sierra, Kadin, and most of all, Chloe. God Bless.