CAPOS Conundrum of Chase & Craig

My story goes like this:

I have CAPOS, a genetic syndrome that affects the eyes, ears, balance, coordination, and grip of those who have it.  There is no cure.

Because of CAPOS, I am unable to work.  

My balance & coordination are so very bad, I fall over for no reason.  Sitting or Standing, doesn't matter.  

Plus, my Deaf-Blindness plays an increasingly bigger problem.  Missing communications, missing signals and misunderstanding things is very troublesome.

Finally, I drop almost everything, from food to glasses to boxes and paper.  It is a part of my disability that I am still unable to fully accept.

Toss all that together, and there I stand among the life that I have.  It is where I stand.

I have tried to work, oh I have. Yet employers do not see me as an Employee, only as a Liability.

Devices and services are needed, to make my life better..... And that of my son, who also has CAPOS.

The top service that I need is an Intervenor: A professional who can relay to me, through ASL, visual and auditory information, plus guiding.  In BC, there intervenors are usually for congenital deafblind, and therefore not available to me.

For more information on CAPOS, please link to www.capos.blog.  

My son's future should be bright and full of opportunities.  With new technology advances happening daily, he can excel where I could not.  Heck, he could probably find an excellent job using the skills he has, or will have.  Whereas I will always be the designated Proud Father, for him, and his brother.  And the supportive husband to my amazing wife!

Support from you will allow us to purchase equipment and devices that will allow Chase to prosper, making his future positive!

From the bottom of our heart, we thank you!