Hi everyone I know its been awhile since we updated. Just want you all to know that we are still chugging along with this awsome backpack. There is lots and lots of research that has to be done to get this to protype and then eventually to market. We have some amazing people helping getting this done! with out them we would be lost lol. This is a whole new world on this side of things. But rest assured we will get this done! We want to see these kiddos still receiving chemo with these backpacks across the country! One of Kylies friends https://www.facebook.com/pages/Mad-about-Madeline/576650759132669?fref=ts is fighting again for the second time and is a couple of days away from a bone marrow transplant. Please keep them in your thoughts and prayers.
You can still support Kyile's project with a donation. All donations will help to support her project and mission to give them to Cancer Camps across the country. With your support we hope to donate the first production run once the backpacks are designed.
It's quite crazy how this all blew up. We never anticipated the support she would get. We had told Kylie when she went to the UCONN invention convention not to get her hopes up because there were some really awesome inventions. Boy I guess she proved us wrong.
It really has been a ton of work and it's only the beginning.
Kylie would like to donate a portion of any sales of the backpacks to Childhood Cancer Research & Support. Any GoFundMe donations she receives over what it will actually cost to create the prototype and begin production will go towards donating backpacks to camps that need them for kids receiving IV fluids or medicines. Kylie also wants to donate backpacks to numerous hospitals across the U.S.
We aren't expecting Kylie to make a ton of money off of these either. There's a reason they haven't been created and focused towards children. It's just like Childhood Cancer research, it's not lucrative to these companies who only see dollar signs.
As much as this campaign has been about getting this backpack created it has also been about spreading awareness about Childhood Cancer right smack dab in September, Childhood Cancer Awareness Month.
Childhood cancer is the #1 killer of children worldwide. Childhood cancer research receives pennies on the dollar from the federal government, The Leukemia Society, & the American Cancer Society.
In fact the American Cancer Society, who likes to use children in their ads to pull at your heart strings, spends only 1 penny of every dollar they raise, on research for our children. And unfortunately, it's the first one the celebrities jump to when they want to appear like they're doing something so great..
Kylie's story has been seen by literally millions of people not only in the U.S. but throughout the world. It has brought hope to hundreds of families who has a child battling this awful disease. We've received a ton of emails from them, and answered every one.
Our main goal right now is to identify the iv pumps being used in children's hospitals across the country. Once we are able to get makes and models of the pumps we will be able to design the backpack around each different pump. We also need to know if they use any ambulatory pumps/take home pumps.
In our previous post we requested assistance from anyone who might have a contact at any of the listed hospitals. Kylie still really needs your help on this.
The sooner we can get that information, the sooner we can begin on the design process. We have design companies who are ready to take information forward to the next step.
We will post all of the progress on the backpack here on FB and we hope everyone will continue to be a part of the vision. Everyone who has donated, helped, and supported Kylie with this is part of something that could be really awesome for a long time to come.
Tomorrow Kelly, Kylie, & Savanna will be flying to LA to do a taping on a day time television show. It will air in Oct., Nov sometime. Wish her lots of luck. This is a chance not only to share her dream but also to bring awareness to childhood cancer and the need for research funding.
Kylie's excited and really wants to see Marilyn Monroe's ghost at the Roosevelt Hotel. lol
Please Help share Kylie's story. Tweet, Share on FB, tell your friends!
What an amazing accomplishment. Over 1000 people have donated on Kylie's gofundme campaign.
We never imagined she would receive such a huge response. We have received hundreds of emails, invites to do interviews, messages of support, encouragement by cancer survivors, and parents with children fighting this terrible disease.
Add to that offers to help like GoHooper.com who redesigned a website for Kylie.
Kylie has been invited to tell her story on a nationally televised talk show and will be flying to the studio on August 27th. Because of an agreement we cannot say what talk show it is until after the broadcast.
Kylie is now in talks with a medical device company called Aesynt. The company has expressed it's interest in Kylie's idea and would like to assist her in making it reality. The company has a staff of designers, engineers, and marketing staff who could help Kylie through the hurdles we expect to encounter.
The money Kylie has raised will go directly to designing and manufacturing a working prototype. We hope to design girl and boy prototypes. The design process will take some time and it may take numerous prototypes to perfect the idea and create a functional and marketable product. All donations will be directed towards the process of designing and producing a working product.
Please realize all this has come with an enormous amount of work by our whole family and others who have offered their help. Kylie is only 11 years old and we still want her to be a kid.
We will continue to post updates as we progress in the process. Please continue to post, share, and tweet this story. The more people who see it the closer it becomes reality.
This update is for Kylie's supporters who donated, tweeted, and shared to help make this happen.
Kylie is in talks with a major company who would like to offer their assistance in whatever capacity is needed to get this product out to market. Before contacting Kylie, this company has been talking about the concept and even had company head meetings. The company has over 80 engineers, deisgners, marketers, and a patent & legal team. Crazy right?
Also she received a call from a major day time talk show. Not Ellen :( if there was ever a time that Kylie could need to get Ellen's attention (or the producers) it would be now. The talk show is requesting a exclusivity agreement that no other talk show air her idea until after November.
Kylie has also had Skype interviews with BBC World News and some magazines. She's continuing to add more interviews with other media outlets. This Friday, the 15th she will join Tamron's Hall on MSNBC.
Kylie has already accomplished a huge feat. She has brought huge attention to childhood cancer and one small aspect of what it's like to endure having cancer as a child..
We couldn't be more proud of her. Hopefully we can continue the success of getting this idea out there and soon making it a reality.
Everyone we are raising the goal. We were advised to do so, so that we can create a fund to immediatly be able to start donating a portion of the begining production. Also to help in production costs. So please keep sharing !! Thanks for everyones support so far. We are well on our way to getting these made.
All donations in excess of my goal will go towards the manufacturing of the FIRST usable IV backpacks. EVERY PENNY!
I am so grateful for the support I have received to reach my goal to design the first prototype. I still have a long way to go but I am well underway. I received some generous donations of $500 and $1000. I will be donating the first working Ipacks in the name of those donors to St. Jude! Stay tuned, this is far from over.
Kylie on MSNBC NewsNation with Tamron Hall. Sept. 22, 2014
Thank you msg from Kylie.
All donations in excess of my goal will go towards the manufacturing of the FIRST usable IV backpacks. EVERY PENNY!
Kylie NEEDS funding to create a WORKING Prototype!
Kylie is 11 yrs old and a cancer survivor. She designed an I.V. Backpack for children on chemotherapy, receiving transfusions, or other medical reasons.
Contact #: 203-632-5714 Email: MeKylie@gmail.com FaceBook: Courage For Kylie Twitter: @CourageForKylie Kylie Simonds PO BOX 493 170 Water St Naugatuck, CT
Look who has donated to my prototype! Yes, that is THE Jenny McCarthy
This year Kylie was challenged with coming up with an invention through her school and the CT Invention Convention. Kylie immediately knew what she wanted to invent. A backpack that could allow children some mobility while receiving I.V. treatments or infusions.
Kylie's backpack couldn't be just any backpack. Because of the fasionista that she is, these would have to be colorful, gender specific, and awesome. She went to work and with the help from her parents designed a backpack.
UCONN iNVENTION CONVENTiON
Kylie's invention was chosen by her middle school teachers, among others, to attend the UCONN Invention Convention where over 700 inventions were displayed and many selected for awards and recognition.
Amazingly, Kylie's invention received four awards including the "Patent Award", the highest award at the convention. The Patent Award has allowed Kylie's invention to be submitted to the US Patent & Trademark Office with the sponsor covering all costs. The lawyers have submitted the provisional patent application. Kylie at the UCONN Invention Convention!
The design incorporated an I.V. pole with a drip bag protection cage. Kids want to move around and we can't risk the Medicine bags getting punctured or compressed. This cage is customizable with different shapes, like hearts, peace signs, etc. This also makes treatment less scary like current I.V. poles which are very intimidating to young children. The protection cage is also removable and can be replaced with a child's choice of design. If they receive two different medicines or a transfusion and medicine they can add a second cage.
The backpack also has the I.V. controller built into the bag to control the flow rate. It is powered by battery which most I.V. machines on a pole are also battery operated.
GOAL OF THIS CAMPAIGN:
Raise funds to build a prototype. With help from her father, Kylie is now doing R&D to make the prototype. She has found numerous infusion pumps that will suit this idea but the cost for them is in the thousands of dollar range. Additionally, the backpack will need to be designed to support both the IV infusion pump and the carry rod.
LONG TERM GOAL: updated 08/08/14
Create a truely working prototype. Then market the first complete prototype through media outlets to slolicit interest.
Begin production of a boy and girl line of the backpack. Incorporate animal features into the design to make them fun for young children.
Begin researching designs for a backpack line for teens/young adults.
Kylie is determined to make this a reality and see the I.V. backpack in children's hospitals throughout the U.S., maybe throughout the world. Unfortunately, it requires an enormous amount of money to make a prototype of this backpack. The controller will need to be customized to be mobile and also small enough to fit in a backpack. So Kylie needs your help to make this a reality. Please help Kylie reach her goal. You can learn more about Kylie on Facebook if you search for "Courage For Kylie", her facebook page for support while she was receiving treatment.
This is Brooke from Brooke's Blossems. With a backpack she wouldn't need an I.V. pole to visit build a bear.
This is Kylie during treatment. Once again an ugly I.V. pole.
For anyone interested, this is her website we set up for her while she was receiving treatment for support. A journal of her journey can be found at the link to her Caring Page. http://couragebykylie.com/
Yes, we read and reply to all the comments left by those who donate. These are only a small selected group.
We've learned a lot from reading your comments. 1. Their are way too many children being diagnosed with cancer. The occurance of cancer in children has increased steadily for the past 30 yrs. 2. You guys really need to stop goofing off at work. 3. These backpacks ARE needed!
i wish i could donate more ,but since i am disabled and living on a fixed income this is all i can give. i hope that you can raise so much money that your can give one backpack free to every child who needs one.
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