Brenden's Chance
Donation protected
My name is Holly White and I am raising money for my nephew, Brenden. I asked my sister to share her story below.
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Seven years ago my worst nightmare came true, my sweet son Brenden was diagnosed with Duchenne Muscular Dystrophy, that was the day everything changed for Brenden and my whole entire family.
I could not breath, I could not think, my whole world came crashing down around me. This is my baby an I cannot save him, I am supposed to protect him and fix everything and this time I can’t.
This disease gives everything and then slowly takes everything away a little at a time. Duchenne Muscular Dystrophy is a terminal disease, there is NO cure.
Duchenne muscular dystrophy (DMD) is a severe type of muscular dystrophy. The symptom of muscle weakness usually begins around the age of four in boys and worsens quickly. Typically muscle loss occurs first in the upper legs and pelvis followed by those of the upper arms. This can result in trouble standing up and lose of balance. Most are unable to walk by the age of 12. Affected muscles may look larger due to increased fat content. Scoliosis is also common. Some may have intellectual disability.
So, the day that I thought would never come, came yesterday when Brenden was delivered his first power chair. This was one of the happiest days for Brenden and one of the most devastating for me. I was in denial I never wanted to admit that this day would come. My heart hurts not knowing how much longer I may have my precious boy here on this earth with me, I think about this terrible disease every single day of my life as I see Brenden struggle. But, he puts on a brave face and make through everyday, he is always smiling and never complains.
Today I am asking for help, help for Brenden. We have to raise the money to buy a van so Brenden can travel and use his powerchair. He must be able to go to his physical therapy appointments, Vanderbilt, cardiologist, and several other doctor appointments daily. He is also still enrolled in school. He will start his first year in middle school this year.
Raising this money will help purchase the van, build a ramp to our home, purchase a lift for the van, and other medical necessary things like widen doors so his powerchair can fit into our home.
I want him to able to go places like other kids. I don’t want him stuck in the house letting this disease take control of him. If you saw how happy Brenden was when he got his powerchair, you would know for the first time he felt like he was able to move around like a kid who hasn't suffered from his horrific disease. If you met Brenden you would love him, he is precious and deserves to have the best life possible here on this earth until he goes to Heaven.
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Seven years ago my worst nightmare came true, my sweet son Brenden was diagnosed with Duchenne Muscular Dystrophy, that was the day everything changed for Brenden and my whole entire family.
I could not breath, I could not think, my whole world came crashing down around me. This is my baby an I cannot save him, I am supposed to protect him and fix everything and this time I can’t.
This disease gives everything and then slowly takes everything away a little at a time. Duchenne Muscular Dystrophy is a terminal disease, there is NO cure.
Duchenne muscular dystrophy (DMD) is a severe type of muscular dystrophy. The symptom of muscle weakness usually begins around the age of four in boys and worsens quickly. Typically muscle loss occurs first in the upper legs and pelvis followed by those of the upper arms. This can result in trouble standing up and lose of balance. Most are unable to walk by the age of 12. Affected muscles may look larger due to increased fat content. Scoliosis is also common. Some may have intellectual disability.
So, the day that I thought would never come, came yesterday when Brenden was delivered his first power chair. This was one of the happiest days for Brenden and one of the most devastating for me. I was in denial I never wanted to admit that this day would come. My heart hurts not knowing how much longer I may have my precious boy here on this earth with me, I think about this terrible disease every single day of my life as I see Brenden struggle. But, he puts on a brave face and make through everyday, he is always smiling and never complains.
Today I am asking for help, help for Brenden. We have to raise the money to buy a van so Brenden can travel and use his powerchair. He must be able to go to his physical therapy appointments, Vanderbilt, cardiologist, and several other doctor appointments daily. He is also still enrolled in school. He will start his first year in middle school this year.
Raising this money will help purchase the van, build a ramp to our home, purchase a lift for the van, and other medical necessary things like widen doors so his powerchair can fit into our home.
I want him to able to go places like other kids. I don’t want him stuck in the house letting this disease take control of him. If you saw how happy Brenden was when he got his powerchair, you would know for the first time he felt like he was able to move around like a kid who hasn't suffered from his horrific disease. If you met Brenden you would love him, he is precious and deserves to have the best life possible here on this earth until he goes to Heaven.
Organizer and beneficiary
Heather Lassiter-Crowe
Organizer
Chattanooga, TN
Heather Crowe
Beneficiary
