help fight rare
Donation protected
We are trying to raise money for Autoinflammatory disease.
Autoinflammatory disease is a big group of diseases that are rare to get. Autoinflammatory diseases are caused by genetic mutations that are either inherited, or occur spontaneously at conception. For More information about Autoinflammatory disease go to http://autoinflammatory.org/learn_intro.php
We are also trying to raise money for the Children's Inn at NIH (National Institutes of Health). The Children's Inn is a hotel for children who go to NIH. for more information go to
http://www.childrensinn.org/site/c.kkI1KiMXIvF/b.2001915/k.3871/Welcome_to_The_Childrens_Inn_at_NIH.htm
After we have raised the money we will split it in 50/50 for Autoinflammatory and Children's Inn
Luc and his 11 year old brother Tim will run an traithlon in Coneticut. for more information go to http://www.teammossman.com/events_splash_dash.html
Luc (8 years old): I'm a person with a Autoinflammatory disease. I don't like having a Autoinflammatory disease, I get sick VERY often. although no one can catch it. I've been to the NIH twice. You sleep at the Chilldren's Inn. We're trying to get enough money to examine and maybe even cure people with a Autoinflammatory disease.
Autoinflammatory disease is a big group of diseases that are rare to get. Autoinflammatory diseases are caused by genetic mutations that are either inherited, or occur spontaneously at conception. For More information about Autoinflammatory disease go to http://autoinflammatory.org/learn_intro.php
We are also trying to raise money for the Children's Inn at NIH (National Institutes of Health). The Children's Inn is a hotel for children who go to NIH. for more information go to
http://www.childrensinn.org/site/c.kkI1KiMXIvF/b.2001915/k.3871/Welcome_to_The_Childrens_Inn_at_NIH.htm
After we have raised the money we will split it in 50/50 for Autoinflammatory and Children's Inn
Luc and his 11 year old brother Tim will run an traithlon in Coneticut. for more information go to http://www.teammossman.com/events_splash_dash.html
Luc (8 years old): I'm a person with a Autoinflammatory disease. I don't like having a Autoinflammatory disease, I get sick VERY often. although no one can catch it. I've been to the NIH twice. You sleep at the Chilldren's Inn. We're trying to get enough money to examine and maybe even cure people with a Autoinflammatory disease.
Tim (11 years old): I love doing sports and with this traithlon my brother and I woul like to raise money and awareness to help my brother and other kids.
Organizer
Saskya Appelman
Organizer
Greenwich, CT
