There is a rock anthem titled "School's Out for Summer". While most kids were celebrating the last day of school today, 12 year-old Luke McMahon decided he would he would celebrate by singing for a friend in need, performing "Say Something"…I WON'T GIVE UP ON YOU.
Luke and Blair Chapin were in the SAME pre-school class years ago. Today, Luke just completed 6th grade at Lake Highland in Orlando, while Blair is fighting for her life facing a terminal illness. Blair loves Luke and his music.
Blair Chapin was diagnosed with Sanfilippo Syndrome when she was five years old. She is now 12. Children with Sanfilippo have a life expectancy in their teens.
There is promising research and clinical trials starting in 2015. It will take millions of dollars to fund the trials and additional research. "Sing for Blair, Fund a Cure" will donate all proceeds to finding a cure. (forgive my audio taping skills..turn up your speakers!)
12 year old Luke McMahon Sings for Blair