Finding a cure for NMO and NMOSD
Donation protected
Salutations. I was once a full time hospice RN up until Oct 4, 2012 when I was struck down by a rare autoimmune inflammatory disease of the central nervous system called Neuromyleitis Optica Spectrum Disorder aka Devic's Disease. It is so rare that only 1 in 1million people world wide get it. Currently there is much research going on thanks to the http://www.guthyjacksonfoundation.org/
There is also no cure, just symptom management and immune. I walk with a cane, have poor balance, memory issues, speech issues, fatigue both physical and general due to spasms and poor nerve conduction, heat intolerance, altered sensation, hand tremors, the inability to lift over 15lbs total. I have also developed narcolepsy with cataplexy thanks to brain lesions. My goal is to raise for the Guthy-Jackson Foundation in hopes of finding a cure for this rare and progressive disease. Within five years most who have it become either paralyzed or blind. I have already lost fellow NMO friends to this disease as that it causes respiratory failure by locking up the muscles that control breathing. I have been lucky and have only had color desaturation in both eyes and weakness from my trunk down, along with speech and cognitive issure. Recent attacks, however have temporarily paralyzed me from my lower breathing muscles down making it difficult to breathe. These attacks frighten me. Please if you can help in anyway it would be greatly appreciated. All donations will go to the Guthy Jackson Foundation to help others with this rare, misunderstood and devastating disease.
Thank you so kindly for your donation
Rev. Krista D. Loy RN, B.A. Psychology/Child Adolescent Development
There is also no cure, just symptom management and immune. I walk with a cane, have poor balance, memory issues, speech issues, fatigue both physical and general due to spasms and poor nerve conduction, heat intolerance, altered sensation, hand tremors, the inability to lift over 15lbs total. I have also developed narcolepsy with cataplexy thanks to brain lesions. My goal is to raise for the Guthy-Jackson Foundation in hopes of finding a cure for this rare and progressive disease. Within five years most who have it become either paralyzed or blind. I have already lost fellow NMO friends to this disease as that it causes respiratory failure by locking up the muscles that control breathing. I have been lucky and have only had color desaturation in both eyes and weakness from my trunk down, along with speech and cognitive issure. Recent attacks, however have temporarily paralyzed me from my lower breathing muscles down making it difficult to breathe. These attacks frighten me. Please if you can help in anyway it would be greatly appreciated. All donations will go to the Guthy Jackson Foundation to help others with this rare, misunderstood and devastating disease.
Thank you so kindly for your donation
Rev. Krista D. Loy RN, B.A. Psychology/Child Adolescent Development
Organizer
Krista Dawn
Organizer
Knoxville, TN