Read the updates from Jer's dad on the the Facebook support page: https://www.facebook.com/TapOutLeukemiaJeremeyMontesJrSupportPage
Day +16: This is the place they spoke of; the real deal, tested to the limits…the hardest thing he will have ever gone thru.
The night was more vomiting, tossing, turning and moaning in pain. Little to no sleep; low platelets led to a midnight nosebleed from blowing his nose. The nurses couldn’t control it, not even with ice, so they had to give him a bag of platelets just to stop the nose from bleeding. They are still amazed that he has not needed more blood products; typically a BMT patient would have had multiple times more blood products…so they are still impressed at his performance through this phase.
The daytime continued with more fatigue and nausea; and now he is vomiting up what looked like bile. A bright yellow mucous type liquid with splotches of blood from his raw gut and esophagus. This is how it goes these days, all through the day; waking to piss hourly and needing help because he is so light headed when he sits up; which in turn is followed by the nausea and vomiting regiment. He said, it smells and tastes like blood when he’s vomiting…
I knew he wanted me to take a picture of him puking because he said so in the beginning of the transplant; but I was too busy grabbing tissues to wipe away the heavy mucous that was still connected to his face stretching into the basin. He laughed and said maybe next time I’ll be fast enough to get the pic. He just wants to have something to look at after this is all done; to see what he went through… After a mouth rinse full of pink spit and dried pieces of skin and blood; he faded to sleep again. The doctors encouraged him to just rest during this time; that everything is going to plan….and his body actually looks very good from all of the calories he maintained up to this point.
Our super-nurse is back on deck; which makes me feel better about having to leave the room until the morning. She continues to show him his measurable progress; breaking down the process and relating the symptoms…explaining his fatigue, nausea, blood work, how the body is working overtime and is doing really well by the results of his white blood count and his ANC is steadily creeping upward. We don’t want it to shoot up; a slow and gradual up-trend is the best indicator of successful grafting.
He feels like constant crap…but he can and is enduring, every moment, every hour of every day. Soft and encouraging music is playing in the room; creating a setting of peace and healing as he rests, eyes closed…I see him open them and we catch a look at each other, smile and nod…and then he slips back into a sleep.
He says how good it is to be able to be with him through this; I can not even imagine being away from him during this time…I’m so thankful that I can be at his side…Thank you all for your prayers and love and support that make this possible for us to be together. I know he will make it though this; this is just the hard part. He will be healthy again; better than before…I know this…I have faith…I believe…just watch and see.