Hendrix Medical Bills/Research Fund

Hendrix was born April 23, 2015 with a very rare disease called Hunter's Syndrome (or MPS) that affects 1 in 100,000 males. This is an inherrited genetic disorder that lowers the child's life expectancy to 12 years old. There is a massive buildup of harmful molecules that eventually cause permanent, progressing damage that affects their appearance, mental development, organ function and physical abilities over time. Most children are diagnosed at age 3 when the decline in their health, abilty to walk, talk, (ect.), begins to show.

Baby Hendrix was very sick and on oxygen for two months right at birth. Months of continuious testing  finally led to the doctors discovering that Hendrix was born with Hunter's Syndrome. Despite the five hour IV infusions he goes through every week to fight off the bad enzyme build up in his brain, he is the most smiley happy baby I've ever been privilaged to meet. Hendrix is the child of my mother's close friend Kailey and he is very special to me and my whole family. Because he was diagnosed at such a young age we hope and pray that a cure can be found before it is too late. 

All money raised will be given to both Hendrix's mother to help pay for his expensive medical bills, but mostly to Project Alive. This is a genetic research funding organization focused on searching for a cure for Hunter's Syndrome to save Hendrix's life and many more who are diagnosed with this awful disease. Any amount of donation, big or small, helps tremendously and even if you cannot donate, simply sharing this page or speading word of Project Alive is a huge help! 

Much love and appriciation from the bottom of our hearts.