I'm Nolan Daniels and I am the person who manipulated a photo to
look like Powerball winning numbers and offer 1 million to anyone who shared my
photo. I never imagined the attention it would get and over 2 million shares.
Many people flooded my inbox with hardship stories and why they wanted the
money. I felt horrible and never
intended for it to blow out of proportion.
One person's story stood out to me as it involved things out of
her control and it hit home. My Brother
had a Brain injury in 2008 that damaged his frontal lobe. It was a very difficult time for him and our
This person does not have a Brain Injury but she has a Brain disorder
and the Medical costs are over 6 figures.
She's had Brain surgery, Spinal cord surgery and her daughter is
diagnosed with this rare disorder Chiari Malformation of the Brain.
I'd love to turn this into something positive and if each of you
could just donate $1 maybe we can save a family and bring awareness to the
Brooke is a great person.
I've talked to her several times now and she's also a volunteer patient
advocate for ASAP.org. She help patients
get ready for surgery and helps the emotionally with the process. She's very active in the organization and
even told me if this donation grew too large she'd donate the rest to ASAP.org
to raise awareness.
I will not be taking any money from donations received and if
you don't want to donate then you don't have to. If you want to help, please donate to
ASAP.org as an alternative.
I cannot properly verify her story but I have contacted ASAP.org and verified she is a member and does have the condition. Your donation is optional and will go to her. I cannot make any guarantees on any accuracy of Medical Bill amounts, and anything involving her story. I believed her and I want to help. I talked to a few of her friends as well and I was comfortable in this decision.
This his a portion of her story
"The diagnosis that I have is Chiari Malformation of the Brain. It is where the cerabellar tonsils hurniate into the neck. I have had to have majoy brain surgery because of it. The other condition that I have is Spina bifida occulta. Spina bifida is when the spinal cord hurniates through the back, yet still causes a lot of physical issues.
I was decompressed for my Chiari in December of 2007. They had to go in and make room for my brain that was bigger than my skull. I know have a titanium plate in my head. My sypmtoms before surgery were, sever headackes,intermitent attachardia, excruciation wide sprad body pain. With the spina bifida acculta I was quckly losing the use of my legs. I could hardly walk and to get up any kind of stairs I woulod have to crawl. I was detethered in Noevember of 2008. Both surgeries were done in Aurora CO.
Here I am 5 yrs later and looking at the posibility of yet another surgery. They headache have come back and I have been unable to work do to the sypmtoms that I still have. All I want it to be well.
I am not only a patient but I am also a volunteer advocate for other patients with the same diagnosis that I have. The organization that I volunteer for I (A)merica (S)yrigomyelia & (C)hiari (A)lliance Project ASAP. I have helped patients mentally prepare for surgery, help engourage them right after surgery, and help ecourage them through recovery by help them cope with their pain after their surgery.
This money would be such a blessing not only for me but also for my fellow chiarians. A lot of this money would go to ASAP for Chiari and associated disorders. This money would also give me an opportunity to help raise awarenss for Chiari Malformation, awareness the we desperately need.
My daughter was diangnosed before I was and because no one in the medical community where we were living knew what it was I made it my mission to make sure that one day my daughter would be able too travel anywhere in the world and if she were to collaps or something that she would be able to go to any medical facility and be treated accurately. In order for this dream to come true, I have to create awareness."