last check up went well, they found some suspected scar tissue in my longs, they keep and eye on it as it is similar to metastasis but i am confident everything is ok as those have been there for a while.
Tomorrow i am getting some injections to try help with my recently diagnose dystonia. BTW i hate needles and it seems i will get my share of those tomorrow.....any one wants to volunteers to be poked for me?
Good News so far, my last MRI and Xrays so cancer at bay. No more main oncologist until at least march/april if nothing changes.
Beating the purple dragon one punch at a time. It has been almost 15 years fighting it day and night.
But i cant take a day off because cancer does not either.
Some scar tissue on the lungs due to several pneumonia infection and the swine flu that left the scar tissue. this may explain pain in lungs when hard exercise.
Over all pretty happy.
Please remember in your prayers to all those we have lost to the beast and for those fighting it right now as i type this.
You are not alone
it has been a while while i posted something to the site. I have been making some changes and taking time for the family. Re-assessing my medical treatments and future.
Right now i am a couple weeks away from next check up and hopefully sign another 90 days lease on life.
thank you for your support and i will be more active here but i needed a break from the world.
I promised my wife back in november right after my cancer check up that i would not post ( besides xmas wishes) until following check up and that i would concentrate in family, health and training to make Team USA for Sochi 2014 for Para Nordic Skiing and Biathlon.
Well, today. I had my cancer check up and i am happy to announce i am NED (no evidence of disease = remission is stable) and signed another lease on life for another 90 days at least till next check up.
On January 29th para Nordic Team was announced and my named was on it. After two tough years....losing my mother and uncle to cancer and the three of us being diagnosed within 6 months i was hoping for at least some small good news. Well...here it is, I will be going to Sochi 2014 this will be my third games wearing red white and blue. My last two were with wheelchair curling, what some say the least physical of the winter sports.......well a couple years later i will show up as member of the toughest sport, para nordic skiing and biathlon.
I would like to dedicate this to those very few but very good people who helped me along the way. To those lost to cancer, to those fighting right now, to the great Coach Igor who passed away recently doing what he loved, i dedicate this also to those who thought i could not do it, who wished i could not do it.......while my heart.....my bones....my health maybe breakable.....my spirit is not.
Ultimately i dedicate this to my sister in law currently fighting cancer, to my wife for being there thru thick and thin always by my side running into the fire when some run away.....to my kids because they are my inspiration and finally to my uncle and mother.......WE DID IT
Thank you Mom....love you and miss you......confía en mi....y solo en mí.
I will be posting how to follow me and Team USA at the Paralympic Games in Sochi starting March 7th, and yes we will wear those funky opening ceremony jackets.....
Cancer Warrior IV: I rather to fight and inspire than to quit and expire!!.
Augusto J. Perez
US Paralympian 2006-2010-2014
Cancer Warrior 2000-to the present
Today makes 1 yr of my last surgery, i am also just less than two week of my next check up. I rather think of today and i am up and about rather that on the hospital bed full of stitches and getting ready for six weeks of daily radiation. Instead i spent the afternoon playing with an awesome 13 yr kid on a wheelchair playing table tennis....and yes he beat med badly but we had an awesome time, i ask for a rematch where i hopefully win two games at least. These little things in life are the ones that help me kid going...when i see kid who may struggle get a smile on their face if even for a short time....
The family and care givers are the forgotten victims of cancers. On the other picts dressed as a beach day in the middle of up state new york winter. I do did and other silly pictures to show pediatric cancer patients that even thou radiation stinks....you can still make the best out of it.....
Hello everyone, i am less than a month out of my next MRI, CT and Xrays...i am hoping to sign another lease on life for 90 more days and keep signing them for as long as i can..
Here is a picture from my chemotherapy time what it seems an eternity back.......while i try not to dwell on it....as any cancer patients knows....it always lingers on the back of your mind...that is why keeping super busy to trick the mind on putting on the back burner is the best thing to do.
But when everything is quiet, when one rests in bed....it creeps back out and makes you wonder...why me....will it be back.......will i make it....how will a handle it...how will the family handle it...how can i make the best of it so my kids are affected minimally...
It is a constant struggle.....yes....we chronic cancer patient do suffer from PTSD.....anxiety....and so does the close ones...wife...husband etc......
With cancer and specially Stage IV cancer you feel as if it is breathing on your neck......sneaking into you....creating doubts.....telling you why fight...just give up because it is easier.......this is a 24/7 fight.....a tough fight that usually we fight alone......people may approach you when diagnosed and after surgery but after that it is a lonely fight.....
Almost a year ago now i had my biopsy that led to my latest cancer fight. To celebrate it i did a 15 km race this morning. No matter what the prognosis and what drs say.....the fittest and stronger you can stay the better chance you got to fight cancer back. I did do my personal best time on the race. During that time there was no cancer, no worries, no doctors, no appointments i cared for......no pains......just the healthy pain of the healthy effort put forward to do what i can do to give my body all the tools to fight back.
Now we continues with the tic tac of the clock until next set of mri, ct and x-rays coming up next month 2 days after my bday...
Cancer Warrior IV: I rather to fight and inspire than to quit and expire!!.
finally the page is live. I cant believe today is 15 yrs since i met my wife. And this January since 15 yrs also we got married and 13.5 yrs of cancer fight
Here a pict, a blast from the past, my first surgery in 2000. I lost 70% of my quads muscles on my left leg and i went thru 48 hrs of internal radiation to the thigh and them 6 weeks of radiation.
Hello, my name is Augusto "Goose" Perez; I am a Stage IV cancer patient. I am fighting High Grade Soft Tissue Sarcoma. I'd like to share my story with you. It all started as early in the year 2000. A newlywed married for just one year when I should have been celebrating my first wedding anniversary with my wife I received a call from my doctor to come see him. It was then that I was first diagnosed with High Grade Soft Tissue Sarcoma at age 27. That year I lost 70% of my quad muscles on my left leg; I went thru major surgery, internal and external radiation and had to learn how to walk again.
The cancer metastasized to my lymph nodes in 2002 and I underwent major surgery, another 6 weeks of radiation and chemotherapy. My survival rate was less than 30% at the time. The tumors returned the following year and lost my leg at the hip in July 2003 trying to save my life or at least prolong it.
In 2004 almost to date of my amputation my wife gave birth to a boy and girl twins......It seemed for now we were holding cancer at bay . Since my surgery I suffer from 24/7 severe phantom and nerve pain that neither pain medications or injections have been able to solve. I knew this couldn't be the end for me and that there had to be more for me to accomplish. To aid in the taming of my pain I've taken up Paralympic sports. I have been honored to be on the US Paralympic Team in Torino and Vancouver and hopefully next year in Sochi Russia. In addition I try to give back where I can by talking to pediatric cancer patients at the hospital as well as other cancer and amputee patients to help them pull through.
Last year in August I passed my check up with flying colors....I was 9 years out with no sign of the cancer returning. But in October of 2012 I went on a routine visit to the oncologist to ask to have some internal staples removed and immediately I was sent to receive an MRI followed up with a biopsy. Once again I was diagnosed with cancer for the 4th time.
This time around the cancer had metastasized. I am currently in Stage IV of High Grade Soft Tissue Sarcoma, an extremely rare and aggressive type of cancer. There is no cure for me; right now it is a waiting game....my cancer does not do well at all with chemotherapy nor radiation. As it stands the only option is to take an aggressive approach of removing what we find until the doctors can't remove anymore.... In a glimpse of hope I am working to inquire about the possibility to be a part of a clinical trial for an upcoming chemotherapy drug.
While I was able to little by little pay of all my old medical bills this time around I have my wife and children to worry about for the future My wife had to stop working to take care of me during all my cancer battles and take care of the twins. I am asking for monetary gifts to help us pay the piling medical bills, making adjustments to my house so I can move around better on my wheelchair, and fixing my lift chair to the basement. Ideally I would like to pay off as much of my mortgage before I go so my family is not left behind with lots of bills. In addition, I would like to continue training for the Sochi Paralympic Games planned for next year. This training helps to keep me healthy for a better response to the cancer fight and does great wonders for my spirit. One of my favorite pastimes is to spend time during Christmas when all possible at the hospital bringing goodies to the kids with cancer there to brighten their day if even for a little bit. I know how tough it is to be sick and at the hospital and I do what I can to ease their stay.The healthier I can stay the better I can fight cancer back.
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