EDS Awareness Charity Livestream
Donation protected
Hey Guys,
My name is Megan and I have Ehlers-Danlos Syndrome - Vascular Type. I got my life changing diagnosis in 2007 after I ruptured my liver (and nearly bled out internally) by leaning on a table. Fast forward to Memorial Day 2010 when I ruptured my colon rolling over in bed... That moment changed my life even more because now I live with an ileostomy. I always have to live gently.
Ehlers Danlos Syndrome comes in many variations, but it all has to do with malfunctioning collagen. The glue for our bodies has formed incorrectly and that causes a lot of complications. EDS isn't rare, is under diagnosed and misdiagnosed.
I have decided to do a 36 hour (provided my body plays nicely) video gaming charity live stream beginning on April 10th through April 11th, the day before my 30th birthday. Reaching 30 years old with vascular EDS is a milestone, reaching 3000$ to go to Ehlers-Danlos Research would also be a HUGE milestone. I am finally prepared to fight like a zebra and raise awareness for EDS in the medical field and around the world.... When you hear hoofbeats, things of Zebras; not horses. Help me raise awareness for Ehlers-Danlos Syndrome so that while it may be an invisible illness, it's not invisible. Help me fight like a Zebra.
ALL MONEY RAISED WILL GO TO ednf.org , for Ehlers-Danlos National Foundation Research, http://ednf.org/donate
click on in that link if you'd rather donate straight to their website, no worries.
My name is Megan and I have Ehlers-Danlos Syndrome - Vascular Type. I got my life changing diagnosis in 2007 after I ruptured my liver (and nearly bled out internally) by leaning on a table. Fast forward to Memorial Day 2010 when I ruptured my colon rolling over in bed... That moment changed my life even more because now I live with an ileostomy. I always have to live gently.
Ehlers Danlos Syndrome comes in many variations, but it all has to do with malfunctioning collagen. The glue for our bodies has formed incorrectly and that causes a lot of complications. EDS isn't rare, is under diagnosed and misdiagnosed.
I have decided to do a 36 hour (provided my body plays nicely) video gaming charity live stream beginning on April 10th through April 11th, the day before my 30th birthday. Reaching 30 years old with vascular EDS is a milestone, reaching 3000$ to go to Ehlers-Danlos Research would also be a HUGE milestone. I am finally prepared to fight like a zebra and raise awareness for EDS in the medical field and around the world.... When you hear hoofbeats, things of Zebras; not horses. Help me raise awareness for Ehlers-Danlos Syndrome so that while it may be an invisible illness, it's not invisible. Help me fight like a Zebra.
ALL MONEY RAISED WILL GO TO ednf.org , for Ehlers-Danlos National Foundation Research, http://ednf.org/donate
click on in that link if you'd rather donate straight to their website, no worries.
Organizer
Megan Morris Newmark
Organizer
Clermont, FL
