A typical day for Mom. In her own words: Every now & then someone will ask me what my day is like since John & I became full time caregivers of our son Joe. Typically the morning begins about 6 am when we bathe, groom, dress, feed & pray with Joe. Then John will often take him by the ocean for a walk followed by daily Mass at 9. I remain at home to clean, straighten, do laundry, etc. The rest of the morning we run errands or do things at home..,you know the usual..,paying bills, making doctor or therapy appointments, etc. After lunch, joe rests for an hour or two in bed, and I stay in the room with him to assure that it happens. For Example, he sometimes gets his leg or arm in a position that I know will keep him awake, so I adjust:) A brain injured person not only needs a very regular schedule, they need a lot of rest. Even when they are quiet, their brains are constantly processing Information which becomes mentally exhausting. If that happens, fatigue can lead to agitation. During this time in his room (in the dark), I'm writing emails or texts & on FB, where I keep up with the world;)
Of course later in the afternoon, it's dinner prep, clean up, JEOPARDY, dessert, night time meds, & usually Joe goes to bed at 9.
So our days are pretty routine, and once week or so a friend will offer to sit with Joe for 2 hours, and our daughter Jen will invite Joe to her house when she's not working her full time job at the hospital, or driving her 4 kids everywhere. Joe loves to go to Jen's. It can get pretty boring here with us. Our days may seem routine but sometimes it can be difficult since we don't always understand what Joe is saying. And there is a constant sorrow under the surface, knowing what could have been, & that he will depend on us or someone for the rest of his life. Yet Joe is a pleasant guy who usually wakes up smiling & goes to sleep smiling. We are blessed!
Joe's a true Jersey shore boy again! Here's a shot of him after he got off the phone with his brother John who most likely reminisced about their Spring Lake Hts younger days! They never got into any trouble! Except for the boomerang and the crabbing incident which were Johns fault. :)))
Dad, Mom & Joe are just about moved into their new place in Spring Lake Heights. It took a village this past week. Here is a 31 year old set of pics I found in storage. These 3 people really are Joes biggest hero's!
Joe and his entire NJ family spent Easter at Grams and we co-celebrated her 94th birthday! #Spring weather has finally come to the Jersey Shore too. In fact last week, Joe's "gofundme" campaign turned 1. We couldn't have done it without all of you! As always we are forever grateful!!! The Pascale Family
Special Need Request: Lifting Joe in and out of the wheel chair and/or bed can be difficult for anyone and having him upright as much as possible is healthier for his system. We recently had to purchase a Hoyer Lift which ran $2800. $1000 of it was covered by insurance so our out-of-pocket was $1800. I'm trying to raise money for my parents for this item. Have a great weekend everyone! The Pascale Family.
Joe, Mom and Dad are back at the Jersey Shore closer to Jennifer & David. Joe was discharged last week from Kesslers acute rehab in North Jersey but will begin a regimen of physical therapy this week! To show how tough and ready he is, he wants to share with you his latest marine crew cut!
Meet Joseph Pascale. Our brother Joe was once a hardworking, loving, husband and father of 2 boys. Two years ago, after a seemingly routine upper respiratory infection, Joe was found unresponsive and was taken to the Brookwood Hospital, where he remained for 2 months. After a myriad of testing, including CT scans, MRIs, EEGs, lab tests, and even a brain biopsy, the etiology of Joe’s brain insult and resultant coma, remains unclear.
Joseph gradually regained consciousness and was able to be taken off the ventilator, but his brain injury has impacted many of his normal bodily functions. Joe became emaciated and profoundly weak and frail. Last year, our parents became Joe’s primary care takers, and they have worked tirelessly to obtain the best possible care, treatments and therapies to ensure that Joseph will regain the highest level of function possible. Since then, Joseph’s overall health has improved tremendously. He has regained all his weight and his strength has improved.
Without a definitive diagnosis, Joe’s care, medications, therapies and treatments have been a series of trial and error. He has had set backs, improvements and breakthroughs. Despite their best efforts, Joseph still has very limited speech, only minimal vision, and loss of most voluntary muscle control. He continues to be plagued by frequent involuntary muscle spasms. The most frustrating part for Joseph has been his inability to communicate. But through it all, Joseph is mostly peaceful and content in my parents’ care. He smiles often and laughs easily. Our parents are grateful for the opportunity to care for him and consider Joe a great blessing.
Joseph is an otherwise healthy 35 year old man, and while we are always hopeful for a full recovery, we understand that he will probably require care for the rest of his life. My family cannot express enough, the depth of our gratitude for the thoughts, prayers and financial support of so many. We humbly ask for continued support. We have joined with expect change to provide a tax deductable way to make a donation. Please consider committing to a monthly or perhaps quarterly donation if you feel so led. Please know that no amount is too little and no prayer goes unheard. May God bless you and yours and please accept the sincere gratitude of our whole family and Joe.