A great day for Seahawks fans!!
Caroling with Great Grandma, Virginia!
We wish you a Merry Christmas!
Gabe enjoyed visiting with Aunt, April!
Gabe is pretty excited, brother Theo is visiting!
Gabe had his prosthetic leg adjusted so that he can move a little faster with it. Every adjustment takes practice and patience, but he has a great attitude about it, accepting it as a new challenge!
Gabe practices guitar for therapy (doctor's orders). He is re-learning how to play and getting his singing voice back!
Gabe and Hannah
Gabe is coming along in speech, physical and occupational therapies. He is excited to be making progress!
He started reading all the cards and letters everyone had sent to him while he was in ICU. He wanted to say how thankful he is that everyone was so kind and thoughtful and how supportive all his friends and family are.
Gabe practicing his gate at therapy!
Karrie came to visit!
Seahawks win and good friends!
Gabe and Grandma Devita
Gabe had a great appointment at UW Rehab. They have figured out he has a stretched nerve causing his shoulder pain. We picked up a TENS type unit at Fred Meyer after the appointment and it gave Gabe immediate relief!
Grandma Devita spent the day with us and we all went to Gabe's friend, Justin's, family home and enjoyed dinner together.
Gabe and friends attended the Oak Harbor Music festival this weekend. Grandma Devita and Cousin Emily came to visit as well!
All in all Gabe's progress is good. His left ankle pain has lessened so it is easier to be walking on his prosthetic. Now he has serious left shoulder pain that he did not have before. Gabe thinks the pain is indication of healing in the clavicle and scapula where there was significant nerve damage, limiting his range of motion. He is now able to lift his left arm a little above his shoulder! It isn't really worth the pain, but at least it is progress!
Thank you for your continued prayers and support!
Gabe watching the hydro plane races in Oak Harbor
Gabe is eating a home cooked meal made by Seth and Josiah, fresh from the garden with donations from the chickens!
Pictures from the past....Gabe and his favorite Occupational Therapist, Allison.
He made so much progress while he was in Rehab at UW! There are many wonderful doctors and therapists to thank!
Gabe and good friend Deborah get the best coffee in Coupeville at Local Grown during the Arts and Crafts Festival!
Brother, Ben and friend Steve fashion and construct a ramp for Gabe to get in and out of his new home!
Aunt Debbie, Cody, Ellen and Michael came to visit Gabe last weekend!
Bronwyn, Candice, Seth, Josiah, Gabe, Ruchi, and a little dog too!
Gabe is happy to be on Whidbey. He is enjoying new friends.
Gabe at his new home
Gabe, Justin and Vicky
Thank you, Dorothy. Gabe still has some serious limitations. We are going to have a ramp built for him so eventually he will be able to come and go with the transit. He needs more care than the insurance will cover, so we will be looking for help with that. Also, he is happy when people come to visit him so let me know and we can arrange that as well.
Justin, Gabe and their favorite PT, Vicky!
Gabe's buddy, Justin, from rehab!
Gabe will be discharged from UW rehab tomorrow-
Gabe walked 35 feet with a walker, on his prosthesis!
Pictures to come next week
Tuesday report from Grandma Suzanne:
Gabe is doing very well today! Activity and appetite levels are good. Weekly progress meeting (with about fifteen) specialists and whatnot found him meeting all goals and exceeding one! Gabe is getting stronger everyday. Slated for another field trip on sat. Pain is not with him today, but was yesterday.
Gabe got to stand on his prosthetic leg today!
Gabe is doing great. He received his prosthetic leg on Friday. He had to adjust to wearing it, an hour on and off for a few days, to make sure it is fitting properly before he can start practicing standing on it. His left leg still cannot tolerate full weight bearing....another couple of weeks for that.
His discharge date is still August 1st and we found him a lovely room to rent in a home overlooking Penn Cove. The other people living there are upbeat and active so it should prove to be a positive place for Gabe to continue his therapies and healing.
Mom's good friend, Molly, came to visit on Friday. Yesterday Jessica (friend from Juneau who now lives in Winlock) spent the afternoon with Gabe. Our new close friend, Karrie, and brother, Ben, were there as well. We forgot to take pictures of our visits! Sometimes the best memories are preserved solely in our recollections.
Gabe had a great couple of days. Friend Heather visited yesterday, then a spiffy new haircut.
Today family came to visit and he is looking at possibly getting his prosthesis tomorrow!
When Gabe came to UW, he only had about 65% flexion in his left knee. Today the therapist measured it to 100!
He is able to transfer in and out of a wheel chair using a sliding board with just standby assistance.
Tomorrow prosthetics is coming to fit the dry socket for his right leg and he should have his first prosthetic on Monday! Gabe is making great strides!
For some reason, I cannot reply to my Face Book messages....
Some have asked if Gabe can take visitors and the answer is, "Yes!" He is in room 837 of the Pacific Tower at the UW Medical Center.
Gabe came to visit Gabe today!
Gabe had his first real outing since the accident, yesterday. He chose the Ballard Locks. The recreational therapist drove us in a big van with a wheel chair lift. Our friend Deborah came too!
Gabe moved to a cooler room. Cooler as in temperature! The one he was in was too warm even before the heat wave.
Please note if you call or send mail that he is now in 837!
The Prosthetics people came today to make a cast of Gabe's right leg d so they can begin building him a prosthesis. This is the first step of a long and many stage process. Gabe is very encouraged as it is a step in the right direction....toward walking again!
Yesterday, they removed Gabe's Trache, so now he is tube free! He is doing well, feeling much better. The hole in his throat will close up on it's own, probably in a few days!
The physicians agreed to start Gabe working with a prosthetic leg. It is a long process and he will have to take it "one step at a time" since his left leg is still not able to bear weight due to the reduction surgeries that are still in the healing stage.
Gabe is making good progress though. He has taken advantage of every exercise opportunity to work on regaining use and strength in his hands and arms. The left one still gives him a lot of trouble, but he is determined to push past it....
The best time to call Gabe is in the evenings, between 4:30pm and 8:30pm PST
206-598-4800 Room 806
Just so you know, Gabe can take phone calls with a little assistance. If you call the nurse's station at
206-598-4800 and ask to be connected with Gabe Kennedy, they can help him pick up the phone. He has been talking pretty well!
There is a peek a boo view of Lake Washington from Gabe's room and we are able to see a few fire works displays.
We had a nice little adventure earlier. Ben pushed Gabe in a wheel chair across the Montlake Bridge and over to the Seattle Yacht Club. Gabe was happy to be outside!
Thank you all for your kindness and support. Have a Happy Independence Day!
Gabe is tube-feed free today! What a great way to celebrate Independence Day...eating all on your own!
The address for Gabe is:
UW Rehab Medicine
Gabe Kennedy Room 806
1959 NE Pacific St.
Seattle, WA 98195-6071
Gabe wanted me to tell you, "Thanks everyone for your kind words and your help."
Please bear with this lengthy update...
Gabe has been working really hard since his Friday arrival to the UW Acute Rehab Center. He has about 5 hours of therapy a day including exercise classes. He is just doing minimal arm and leg movements, but they really seem to be affective.
Today we had a meeting with Gabe's doctors and therapists and discussed what the game plan is. They are planning for a discharge date of August 1st. They want him to be able to dress himself, assist with bathing, eat normal food, perform his exercises independently, do his own toileting, navigate a wheelchair, assist in transferring himself in and out of a chair and access community transportation. The team is so supportive and communicative. We are really pleased and Gabe is feeling much better about his recovery. Today he met an older gentleman, named Roger, in his exercise class, who also lost a leg. Roger showed Gabe his prosthetic and talked to him about perseverence and not giving up on being able to do all the things you love.
If you would like to hear Gabe's story on the radio, go to www.bob937.com
between 5:30 and 6pm tonight, PST
Gabe got settled in at UW and already had a couple hours of therapy today!
The staff were welcoming and Gabe was so happy to be back in Seattle and ready to make some progress.
Uncle Joel and Aunt Bethany came to visit. It was so nice to see them!
We left behind some good friends and wonderful staff in Reno, so the transfer is bitter sweet in that regard, but the journey continues. With all the kindness, prayers and support Gabe has and is continuing to receive from all of you, this is sure to be a story with a very great ending!
Seattle Boeing Airport
We just landed at Boeing airport!
We are packed up
and ready for our plane ride out in the morning!
Gabe is happy to be leaving the hospital and hopeful about rehab. He's been told that it will be hard work, but that is what it takes to get the arms to work again and begin to learn to walk!
Thank you for your continued prayers and support. We are so glad that all of you care and are part of Gabe's story!
We have a medivac flight scheduled for Friday morning.
Gabe is so ready to start his therapies! We are thankful that he will be at University of Washington Acute Rehab!
Some minor authorization hiccups set us back to tomorrow afternoon or Thursday morning, but we will get there!
No need for surgery on the clavicle. Gabe's pain is likely due to atrophy. He did well on the swallow test, but they still aren't convinced he can have thin liquids, so it will be pureed foods or nectar thickened liquid for now. Hopefully the feeding tube can come out by next week. Gabe will have to get used to eating again!
His appetite has subsided.
We are on track to board the medivac flight to Seattle Wednesday morning. The plan is to check into UW rehab at 1 pm!
Gabe has another swallow test in the morning. If he passes, we should be good to go on Tuesday. If not, we will find out in the morning if UW will accept Gabe with his current feeding tube through his nose or if we have to get surgery done to have the tube put through his stomach, before he can be transferred.
Gabe is really battling with depression.He is so aware mentally, he is conscious of all his limitations. He sleeps a lot, which is good for helping, but also part of being down and feeling bored. Once he can eat and drink and also get to rehab, I'm sure he will feel better. Your prayers are appreciated!
Gabe has had limited movement of his left arm. There is suspicion that the plate in his clavicle repair has slipped. He is going in for an xray this afternoon. If it looks like their suspicion is accurate, they will have to redo the reduction.
This may delay his departure to rehab. We are praying not. He still has pneumonia, which makes him lethargic as well. The long infection means they cannot get rid of his tranche yet either.
We are still hoping he will pass another swallow test so he can begin to eat. Food and drink should help with energy and motivation.
We are awaiting the go ahead from UW and all the authorizations needed to make the transfer.
Your prayers are appreciated as Gabe deals with the emotional ups and downs of his pain and condition.
He is glad that people are supporting him and appreciates your messages. He will hopefully be able to give me a message to share with all of you, soon. Right now he just wants everyone to know that he is alive and doing ok.
Oh boy, Gabe is getting to be quite popular with the staff. Having been here such a long time, he has made some great friends. Since he is using a speaking valve, he has been keeping people entertained with his humor! It is so good to see the twinkle back in his eye!
There are still hurdles to clear before getting him to Rehab in Seattle, but progress is being made. Gabe needs to get to eating and drinking and breathing without the trache. He needs to be able to tolerate hours of daily therapy. We need to get logistics worked out for trans port to Washington and get an approval from the UW acute rehab.
Sadly, Gabe did not pass the swallow test. We still have work to do to get those muscles moving in his throat so he does not aspirate into his lungs. The hard part is convincing him that saying, Eeeeeeee, really loud and high pitched will get him closer to eating again. To him, this seems stupid. Hard to imagine how singing can lead to eating, unless, of course, you remember that there are times when one must sing for their supper!
We aren't sure if this is a set back for getting to rehab. We will know more tomorrow.
Overall, Gabe is progressing well. His physicians are thrilled to see his personality coming through. He is entertaining us with humorous insights!
Gabe is back on the neuro floor. We are going to get the rest of the swallow test done today and pass it so he can start getting rid of tubes and drink and eat again!
Still a bit of unidentified infection, but the antibiotics are kicking in so it is clearing up. It would be nice if he could reduce the amount of medications he is on. Too many different drugs!!
Gabe is improving. His heart rate is back down to a reasonable rate and temp is down a little.
He has been voicing opinion and getting us to cater to him more specifically. He is definitely aware of his discomfort and a main frustration has been inability to take fluids by mouth due to the trache. The first part of the swallow test was done today. This is to make sure the muscles are working properly and he isn't aspirating into his lungs. They will do the final parts of the testing on Monday or Tuesday. If he passes, he should be able to start eating and drinking next week!
Also, Gabe had a visit from Michaela James. She is a radio talk show host who also does voice for audio books. She began reading, The Boys in the Boat, to Gabe. He seemed to enjoy hearing her melodic English accent and his heart rate came down a little to prove it!
It has been a busy couple of days, so bear with me as I attempt to recap....
As you know, Gabe was moved to ICU about 4am due to an elevated temp and heart rate. He has had a high white blood cell count and that are not able to find it though these are still evidence of infection. A head and chest scan showed no abnormalities. Mystery continues! Thank you for your prayers. I know many of you were up early with us....
In other news, Gabe is making full strides in cognitive progress. Yesterday he barely got a couple of words out through the speaking valve in his trache. Today he is making specific requests. It is a little hard to understand him, yet he clearly asked to have a drink of water a nurse to help him take a shower and to get out of there! He was able to tell us his name, who his brothers were, his friends, his family. He is way ahead of me as he even knows what year it is!
Of course he sounds belligerent and uses a few expletives, but we are glad to be hearing from him! He has described his pain as being everywhere and told us that on a scale of one to five his pain is an eight, then he says, no, a nine. From the looks of him, he is serious! It is so hard to see him in misery! I know many of you have called, tested and emailed me in the last couple of days and have not touched base. Please be assured I get your messages and appreciate them. I literally have no time to respond!
I'm thanking God for all the good progress Gabe is making . Please continue to pray with me for his healing, relief from excruciating pain and peace about the losses he is facing.
Please pray for Gabe. He is moving back to ICU. His temp and heart rate have been dangerously high. There is evidence he is fighting an infection somewhere in his body, but no clue as to where it is.
The past couple of days, Gabe has been very active, especially today as he is flailing half of himself over the bed rails! It was all aunt Victoria and I could do to keep him from pulling out lines and not injure himself by hitting the rails or falling out if bed. This is one strong skinny body! He is forming word with his mouth...a few choice ones, looking at himself in the mirror and looking angry and agitated at himself and his missing leg. He has taken a sponge in his mouth to suck on and is attempting to swallow.
It is bitter sweet to see him like this as it means progress, but he is angry and confused. We were advised to restrict visitors as too much interaction is causing more agitation and his heart rate gets too high.
On the up side, Gabe was approved for Washington Medicaid and as soon as he is deemed fit for three hours a day of therapy, we can have him transferred!
All of you who have contributed to this fund have done a great deed. Medicaid may not cover the transport via air ambulance to Washington, so we must pay that up front! We have enough to do this, because of your support!
I am so thankful!
This morning, Gabe smiled at Natalie and then mouthed the word, "Hi", to a nutritionist he had not meet before. This is only the second time that we have seen him attempt to form words!
Gabe's Ortho PA also got Gabe to move his right wrist up and down on command!
We are still working on getting Gabe to Seattle and seem to have found a way, but will know more next week. We aren't sure exactly when he might be ready to go, but hopefully we can get him into some good rehab soon!
He will need to lean how to swallow, talk, eat, move his extremes, write, and begin learning to sit up than stand and one day walk -with a prosthetic leg.
This process could take years and doctors are unsure how much of everything he can get back. I have faith that Gabe will recover. We have seen miracles and there are many to come!
Gabe will need our continued prayers, love and support to help him through the tough process!
Gabe smiled at us and was giving thumbs up and high fives to us this afternoon!
Eventually pain caught back up to him and he was restless, frustrated and pretty uncomfortable. So, an order of pain meds took the edge off and he is sleeping peacefully.
I'm on my way back from attending Gabe's brother, Ben's, high school graduation. Debbie has been keeping watch over Gabe for me!
Gabe was moved to a regular hospital bed. No more ICU!
He is stable. Now the work begins to get him into a good neuro rehab facility....
Gabe came out of surgery just great. He is giving the nurse thumbs up on command! This is a huge milestone and likely evidence that Gabe needed that surgery and further evidence that there is hope!!
Gabe has a room with a window now! The cheerful sunlight should be therapeutic!
We are outside!
The speech therapist came in this morning to give Gabe some practice with a speaking valve. This gave him an opportunity to tell us what he wants us to hear! So far we only heard guttural sounds, but it is a start! They will practice with him daily so he can relearn to use his voice, speak, swallow and eat. Things we take for granted, but in his case have to be relearned.
He tolerated the speaking valve well. It makes it harder to breathe in some manner, but he did fine!
The ventilator was officially moved out of Gabe's room this afternoon!
He is still going to be on the tpiece and have the trache for a while...
In other news, they are moving toward the burr hole procedure this week. One more CT on Wednesday to see if the fluid on his brain is dissipating. If not, he will likely have the surgery on Thursday morning.
Oh, and, Gabe's RN, Mike, washed Gabe's hair today. That is why he looks all spiffy!
Thank you for your prayers, everyone! Please keep them coming!
Gabe really smiled tonight! Kerri Anne and Andy were visiting and when Andy repeated something funny that Gabe had said a month ago, Gabe gave him a big toothy grin!
Whenever Andy told Gabe one of Gabe's own jokes, he would smile! We tried our own jokes, but according to Gabe, no one is as funny as Gabe!
Gabe is back on the t piece this morning. He is breathing fine with that bit of assistance.
I was washing Gabes hands and arms this morning. When I tapped his right index finger and asked him if he could lift it for me, he did! We tried other fingers, but he could not do them individually. When we went to his left hand, he was moving his right hand in response.
Slow progress, but we are getting there. He needs to get well enough so we can start serious rehab! Aunt Karen is researching air ambulances and such to get Gabe to Seattle. This may not get covered by insurance and it has to be paid in advance, so it is good we have this fund! We are seriously considering the UW rehab center. They seem to have what he needs and Ben is going to school there in the fall and I should be close by as well as uncle Chris, uncle Joel and aunt Bethany and all our friends and family who come through Seattle. He needs us around him to keep his spirits up!
Gabe has had another successful day of using his own muscles to breathe. It makes him tired!
This is what the T- piece looks like. It provides O2 and humidity without the pressure to open his lungs that the ventilator provides.
This is a great step toward the medical stability that would be required for him to step into rehab. The only set back appears to be the fluid on his brain. Please pray for that to dissipate!
Gabe is still doing overall well. We can't predict his responses when we ask him to squeeze a hand or open his mouth. Sometimes he does, sometimes he doesn't. There could be many explanations for this, but one of them may be some pressure on his brain from fluid. A CT scan showed there is a good amount on his left side that they are thinking of draining. He will have another CT on Monday and if it is not improving, he will likely have the procedure done.
We would all like to see him not have that surgery, so prayers that this will correct itself.
I thought you might like to see the"wall". Complete with all the cards, including those birthday cards Joshua brought from Juneau yesterday, the Seahawks towel from Ryan and the collage of pictures from Grandma Haight.
Gabe will look at this as though he is studying it and I tell him it is evidence of all the people who live and care about him!
I read your prayers, posts and emails every day to him, as well!
Surgery went well and Gabe will have some time off the ventilator again, today!
Natalie has been rooting for Gabe since the beginning, standing quietly by his side. We are so thankful for all the staff here who really care! Also, very importantly,
we are thankful for all the friends and family in Washington, in Alaska, Florida and Nebraska who are praying and supporting us. Lastly I'm thankful for my Alaska Airlines family for their support and prayers and my buddy, Karrie!
Colin, the music man is here to seranade Gabe!
Gabe is off to surgery for his left clavicle!
Gabe heard all the birthday messages from everyone! Cards and posts alike. It was so kind of all of you!
He is sleeping soundly after over 13 hours off the ventilator!
Gabe has had a pretty good day. He is nearing hour 11 off the ventilator! He has some pretty serious pain now and then, but they are doing their best to medicate him for comfort.
Some of you have reported having issues with donating on this site. Just in case you want to instead go directly to Alaska USA FCU, there is an account set up for donations for Gabe. It is under Gabe's aunt's name, "Victoria Haight" and the account number is 1845603.
This bypasses the fees that are collected out of donations on this site as well. If you do donate directly, please post a message on here so that we know and can tell Gabe! I know it helps him to hear all of your messages and support.
Keep those prayers coming!
Gabe had been off the ventilator most of today. He is on a breathing apparatus that just gives him moist air through his trache. He is doing the muscle work for breathing. It is giving him a real workout. They will give him breaks as he gets tired. This is part of what happens for him to get ready to go to rehab. The plan is to move him to Seattle area.
I'm working on all the logistics of where he should go, where the funds will come from and who will cover what. His hospital bill is nearing $600,000! Tomorrow he is getting surgery on his left clavical area. That should be the last of the ortho surgeries.
Gabe did well on the step down from the ventilator. He was breathing on his own for most of the day!
He is back on for the night so he can rest. His breathing makes him tired- like mountain climbing!
Tomorrow is his birthday so we will have balloons and he Gabe has a new music player so he does not have to listen to elevator music...just my music! :)
Gabe is really alert today. The CT scan showed some fluid on his brain. They are just going to watch it and hope that it dissipates on its own. He seems to be more and more aware of this around him and seems upset about missing his right leg. I keep telling him that there are people like him who are still great snowboarders and he is going to get to do all the things he did before..that there are people backing him up and will see him through....
Gabe is resting will after a little bout with pain. He will get the CT scan sometime in the middle of the night.
Thank you, again, everyone for your prayers and support!
Gabe had his chest tube removed! This, will hopefully, make him feel more comfortable. He gets another CT scan this evening, to make sure his head injury is healing enough to increase the blood thinners. Right now he is breathing on his own with the assistance of the ventilator, when needed. Still a lot of congestion, so we are hoping that dissipates!
Thank you for all your cards and posts. The mail came today and we had several cards that I read to Gabe. Grandma Haight also put together a collage of photographs. It is now on the wall!
Gabe had a pretty restful night. He is getting his wounds checked and rewrapped this morning. Earlier he had a little PT session which consisted of being held up in a seated position. He is not really responding to commands this morning. In glad he is not in excruciating pain though!
Gabe looks pretty relaxed. He is sound asleep while they are doing an ultrasound on his leg to look for blood clots. It is just precautionary.
Overall he is looking good. His temp is holding at 99, his oxygen level is good, blood pressure good. He smiled at the nurse tonight. I missed it, but I believe her! :) Sarah is very sweet. Gabe is fortunate to have such caring, attentive people looking after him! And blessed to have all of you praying for and supporting him!
Gabe is more awake this morning. He has had issues with pain and vomiting, so they are working on his medications to help mitigate those things. He still has congestion. They are planning to take out his chest tube soon!