A very long overdue update!
We seriously can't express how much we appreciate all of you and the support you gave us. The last 3 months have been drastically easier and much less stressful because of the financial foundation you gave us. Aside from Eli himself it was the greatest gift we've ever received!
For those of you who made the reasonable decision to block our excessive posts on Facebook or have not friend requested us (Please feel free to by the way!) Eli has been growing and developing seemingly without issue! He is full of smiles and giggles and getting stronger each and every day!
These last few months with him have been the best of our lives. We absolutely love our little family.
As I write this we are driving down to Boston for the first of three visits this month. Tomorrow is an appointment with the geneticist then two weekends from now is his pre-op appointment and the week after that he will have his first and hopefully only surgery!
Thanks to the connections we made through this site we will be flying down for the second and third trips through PALS with a volunteer pilot!
We are excited and nervous to reach this stage. Eli has been doing great with his G-tube but obviously it is not something we want him to need long term. While we are still waiting on the specifics of the procedure, we do know that it is not an immediate fix and will require at least a few more months past the operation before even attempting to eat regularly again. We have a long road ahead of us but we are as ready as we are ever going to be!
Thank you for your continual thoughts and prayers! Much love, Benjamin, Nicole, Chip and Eli!