The Blessings of My Disease (film)

 
Raised: $1,675.00
Goal: $35,000.00
 
 
 

Created by

Chris Rosati

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My name is Chris Rosati. I am a father, husband and friend. I also have ALS, Lou Gehrig's disease. While the disease is destroying my body, the journey is fueling my soul. ALS is devast... more

 
 
 
 
 
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Updated posted by Chris Rosati 2 months ago

Steve Hartman w CBS Evening News' On the Road coverage of this project: http://www.cbsnews.com/news/nc-man-finds-silver-lining-after-als-diagnosis/#comments. The impact of a cure for ALS will not be limited to those with the disease. PALS will change the world. Thank you for helping me tell their stories.

 
 
 

Created by Chris Rosati on January 30, 2014

My name is Chris Rosati. I am a father, husband and friend. I also have ALS, Lou Gehrig's disease. While the disease is destroying my body, the journey is fueling my soul.

ALS is devastating. But there are some blessings. I get to be amazed by the good in people every day. I get to experience an overwhelming and never ending wave of love. I hardly ever worry, and never about something trivial. I now see beauty in so many simple things. I no longer fear failure... or much of anything else. I know something you don't know - something wonderful. And I know how blessed I am.

Here is CBS News coverage of this project:
http://www.cbsnews.com/news/nc-man-finds-silver-lining-after-als-diagnosis/

The Blessings of My Disease is a video project featuring inspiring persons with ALS (PALS). But it is not just for those suffering with the disease. The PALS I will interview have something to teach everyone - healthy and ill.

This Summer I will travel the country meeting and documenting conversations with some of the most amazing people you could ever hope to meet. The way they live their lives has forever changed and enriched the lives of those around them. I m betting they will do the same for you once you hear their stories.

Funds raised through this page and elsewhere will be used to cover videography fees (est 85%) and travel expenses (15%).

We will attempt to have media coverage at every stop. We will also share the interviews with the ALS Association and are asking them for help with funding. The videos will be shared on YouTube, and we will make every effort to promote them through social media, traditional media, film festivals, etc. And, of course, every donor to this page will be notified of every new video posted.

I intend to help change the world in the time i have left. I invite you to join me on the journey. Thank you for supporting this project.

Chris Rosati

 
 
 
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His name is lee pearce,since his diagnosis he also has seen a different an important side of life. if you could face book lee Pearce with some encourageing words it would be great blessings. we walk for Tampa Florida chapter on March 8 to help defeat ALS. our team name Is Lee's Mighty Rams thank you and God bless Lee's Aunt Millie

posted by Millie Pearce 1 month ago

what an inspirational story .my nephew was diagnosed with ALS when he was 35 he is now 39 she has a Wife a daughter 13 and a son 9.He communicates only with his eyes through a computer.He resides in a community nursing care facility.his name is Lee pierced

posted by Millie Pearce 1 month ago

I was greatly moved by seeing the story on CBS Sunday Morning show. It appears this great tragedy has given you true enlightenment. I hope you can share your insight with others. Thank you so much for sharing!

posted by Chuck Morrison 1 month ago

My dear friend Summer was diagnosed with ALS 2 years ago she is 34 years old, with a master's degree in English. She is writing her memoir about her journey. Summer amazes me everyday with her determination, she can no longer use her hands and writes with her stylist in her mouth. Speaking is becoming increasingly difficult.What more can I say? I no longer have bad days. Summer is an inspiration to me. I wish she could be interviewed for this documentary. Bless all ALS patients, families & friends.

posted by Sandra Workman 1 month ago

I'm touched beyond belief. My hubby and I are poverty stricken or I would send money. I just want to say I will take a page from your book and value my very life more. I already have discovered some of what you have on my own, dealing with unemployment, hunger and homelessness has a way of stripping away all the unimportant things. It gives you a real perspective of what's important ... all thr things money cant buy. And so in honor of you and your spirit, I want you to know as long as I live I'm goingto make your words my montra. "If I have time I'm going to change the world". You already changed me my friend. :-) It takes your perspective to remind us what a real,tangible gift this time and this life is. You are my hero. I will never forget you.

posted by Sara Teer 1 month ago

My husband started out in 2009 with tingling in his right hand. 48 years young. He left behind on July 15,2013 a wife, and 3 young daughters ages 12, 10 and 8. My heart goes out to you and your family. My only advise to you is PLEASE spend every moment you can making memories with your family and friends, don't leave them out. My husband died on our anniversary date of marriage, July 15, 1999 date. I remind our children every day the love their father had for them and that in heaven he continues to watch over them. My husband gave up when he got worse and choose to live with his brother months before his death thinking that he would spare us pain. He only hurt us worse by shutting us out. Please don't shut out those that love you. That is my advise. Tomorrow valentines day my daughters and I are sending pink valentines balloons to the heavens for a dear PALS friend of mine who lost one of her twin daughters on this day. My Christian love, prayers and hugs are with you and your family and may you stay strong on your journey with ALS. GOD BLESS and take care.

posted by Debbie Droddy 2 months ago

Our priest shared your journey with us today and I wanted you to know what an inspiration your are to me!

posted by Cheryl Ferrigno 2 months ago

1 - 7 of 7 Comments
 

Recent Donations (27)

$1,675 raised by 27 people in 2 months.

$100.00

David Majeroni

10 days ago

 
 

I loved watching the CBS spot. Thank you for sharing your smile with us.

 

$50.00

Kenneth jones

26 days ago

 
 

$100.00

Karen and Kyle Collins

26 days ago

 
 

Continue to inspire throughout the journey!

 

$100.00

Anonymous

26 days ago

 

$25.00

Rachel Doss

1 month ago

 
 

$25.00

paul robinson

1 month ago

 
 

What an inspiring story, no an inspiring life. ALS is devastating, but Chris is not defeated by it. He has discovered the meaning in life through his struggles with ALS. May God bless you, your family and your dream. 5 :)'s! A fellow traveler

 

$100.00

Anonymous

1 month ago

 

$100.00

Ray Manzoni

1 month ago

 
 

$100.00

Terry Walters

1 month ago

 
 

$100.00

Anonymous

1 month ago

 

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