Lennon ❤️ Mowat Wilson syndrome

Nicola Grantham is organizing this fundraiser.

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Lennon was born with a very rare genetic syndrome called
Mowat Wilson syndrome which had caused very complex health needs

He has clubfoot,
Hirschsprung
Agenisis of the corpus callsoum
this means he's missing all of the vital connections in his brain that sends signals to the left and right side
it controlls everything he does,
Ventriclmegly His ventricles in his brain are to big
Hypospadias
Optic nerve hypoplasia
He has an ileostomy stoma
which due to him being so small is restricting him because the bags keep bursting and burning his skin and staining all his clothes
He has suffered apnea episodes And seizure activity,
This is a very rare syndrome around 200 children world wide have it And it's life limiting Lennon can't sit talk crawl and needs 24/7 care Due to my partner working full time we unfortunately don't get any help from charity's Lennon needs lots of specialist equipment but the main things are
A car seat that is a suitable support for him as he slouches forward and he can't controll his body
He needs a bed that is safe to sleep in it needs to be inclosed and slightly padded due to him banging his head and And have electric movement to sit and lift him