Kidney working but not completely functional yet- happens about 15 percent of the time with cadaver kidneys - urine out put picking up but potassium still high- thanks for all the prayers and well wishes!!
Kassidy got a Kidney!!!!!!
She is out- tough surgery but they are waking her up now
Kidney was big and her bowels were very swollen- they were not sure if they were gonna be able to close her but after a good deal of manipulation they were able to
She will have a NG tube to help decompress her tonight and hope to remove tomorrow- kidney transplant went well but they hope the urine production picks up in the next few hours
She will be very swollen for awhile
He told us she went nuclear on them during sedation - she is such a tough cookie- Tom says that's why she has made it this far
Hope to see her soon
Keep you posted
Going to CHOP tomorrow to see how well this at home dialysis is really working. praying the Doctors think everything is still ok and we don't have to go back to hemodialysis three times a week in Philly again!!
Thank you so much for everyone's donation!!! We are so touched by everyone's support. Kassidy recently graduated from Kindergarten even with all she went through this last school year. Kassidy has been hospitalized a few times this summer for her poorly controlled blood pressure and problems with her peritoneal dialysis. I hope we are in a better place now as we have an appointment this am to see how her blood work is. We pray that Kassidy gets a kidney soon and can regain some kind of normal life before starting another school year!
Thank you to everyone who came to the Water Tower in Oaks to support Kassidy! She had a lot of fun bowling and enjoyed her Birthday on the Fourth of July!
We Thank you so much for your prayers, donations and support! we have had to make some hard decisions lately in light of the fact Tom will not be able to donate his kidney and we don't know when she will be able to get one. one option is another surgery that involves the placement of a peritoneal catheter. this would allow Kassidy to receive dialysis at home if it works. Kassidy has had so many surgeries and therefor could have a great deal of scar tissue that could cause complications. we have decided to pursue this as this is the only shot she and we have at any kind of normal life while waiting for a kidney. as of right now kassidy can only go to school twice a week as we have to drive into Philly the other three days week. This surgery would involve a two week hospitalization and cause a great deal of strain on the family trying to get someone avail to watch our younger boys while in the hospital but we need to have some hope of a normal life for Kassidy and our Family.
We unfortunately found out recently that Kassidy's father- Tom is not able to donate his Kidney to her. We were so upset to find this out as we had found out earlier that he was a good match and in good health and thought this would happen soon for Kassidy. She will be active soon on the transplant list and understand it could be up to a year or more that she could wait for a cadaver kidney. If any one out there is interested in donating their kidney to her, please contact us. she would need someone who has O positive or O negative blood type. Kassidy is still struggling to be medically stable on dialysis as they are concerned about her persistent high blood pressure that keeps her in a high risk for a stroke and her persistent high potassium that could potentially affect her heart. she needs a kidney as soon as we can get her one so please consider being a donor as we don't have any other immediate family members who are a candidate to be a donor for Kassidy.
thank you for all the donations, concerns and prayers! We really appreciate it!
We had hoped that we could of cut back the amount of days Kassidy would need to have hemodialysis this week but her blood pressure still remains too high and her potassium is also high so will need to stay on dialysis three times a week in Philadelphia until she can get a transplant. We are just praying that everything works out with Tom's ability to donate his kidney - will find out next Monday.
Kassidy Frevert was a normal healthy 6 year old girl who loved playing with her American Girl Dolls and going to school until she was somehow exposed to ecoli in November of 2012. Kassidy was on a trip to her grandmothers for a long weekend when she started to have symptoms of abdominal pain and bloody diarrhea. Kassidy was taken to Children's hospital and was admitted for these symptoms. A few days later the doctors diagnosed Kassidy with Hemolytic Uremic Syndrome also know as HUS. The doctors were able to isolate the type of ecoli that Kassidy was exposed to and unfortunately this kind of ecoli( 0157) releases a toxin know as shinga toxin that causes the HUS. As a result of the HUS, Kassidy became very ill causing her to need a breathing tube and her kidneys shut down. Shortly after Kassidy was hospitalized her 1 year old brother Kevin also started having symptoms of bloody diarrhea and was diagnosed with being exposed to ecoli as well. Thankfully Kevin never developed HUS and was released from the hospital a week later. Kassidy spent a month in the ICU in critical condition and just before they were going to discharge her home still in kidney failure and needing dialysis, the doctors realized she had two holes in her colon and was rushed off for emergency surgery. Kassidy became very sick on the operating table and the doctors were unable to close up her body due to her unstable condition. Kassidy was once again was admitted to the ICU and put on a breathing tube while they tried to stabilize her condition. Kassidy was brought back into surgery the Friday after Thanksgiving and the surgeons were able to create a colostomy and close up her body after removing 90 percent of her large intestine. Kassidy remained in the hospital until the end of December struggling to recuperate from an extensive surgery and still in kidney failure requiring dialysis. When Kassidy left the hospital she was so weak and debilitated she could not stand up or even sit for long periods of time. Kassidy could not even return home to PA until January because she was too weak to withstand the car ride home. The Health department was never able to isolate what product Kassidy and her brother consumed that was contaminated with the ecoli. Today Kassidy is still in kidney failure and recently had another surgery to reverse her colostomy. Kassidy's condition requires her to take more than 12 pills daily; being 6 years old she struggles with taking so much medication that often makes her feels sick to her stomach. Kassidy is walking today and able to play with her little brothers but is only able to go to Kindergarten a few hours a week due to her fragile condition and need for dialysis three days a week. Hopefully, this summer Kassidy will be able to get her fathers kidney to be transplanted. Kassidy and her family face many struggles each day due to her illness and need for so much medical care. Kassidy will unfortunately likely need more than one donated Kidney in her lifetime and we are trying to raise money for her as she will face a lifetime of medical expenses and needs. Hopefully, soon, Kassidy can return to being a normal 6 year old girl who just loves going to school and play with her dolls.
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