Kassidy's Kidney Transplant

 
Raised: $14,404.00
Goal: $750,000.00
 
 
 

Created by

Julia Fredericks Frevert

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Kassidy Frevert was a normal healthy 6 year old girl who loved playing with her American Girl Dolls and going to school until she was somehow exposed to ecoli in November of 2012. Kassid... more

 
 
 
 
 
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Updated posted by Julia Fredericks Frevert 5 months ago

Kidney working but not completely functional yet- happens about 15 percent of the time with cadaver kidneys - urine out put picking up but potassium still high- thanks for all the prayers and well wishes!!

 
 
 

Updated posted by Julia Fredericks Frevert 6 months ago

Kassidy got a Kidney!!!!!!
She is out- tough surgery but they are waking her up now
Kidney was big and her bowels were very swollen- they were not sure if they were gonna be able to close her but after a good deal of manipulation they were able to
She will have a NG tube to help decompress her tonight and hope to remove tomorrow- kidney transplant went well but they hope the urine production picks up in the next few hours
She will be very swollen for awhile
He told us she went nuclear on them during sedation - she is such a tough cookie- Tom says that's why she has made it this far
Hope to see her soon
Keep you posted

 
 
 

Updated posted by Julia Fredericks Frevert 6 months ago

Still on home PD- things are still going ok!
We are so grateful for all the support everyone has given us!

 
 
 
1 - 3 of 11 Updates
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Created by Julia Fredericks Frevert on April 24, 2013

Kassidy Frevert was a normal healthy 6 year old girl who loved playing with her American Girl Dolls and going to school until she was somehow exposed to ecoli in November of 2012. Kassidy was on a trip to her grandmothers for a long weekend when she started to have symptoms of abdominal pain and bloody diarrhea. Kassidy was taken to Children’s hospital and was admitted for these symptoms. A few days later the doctors diagnosed Kassidy with Hemolytic Uremic Syndrome also know as HUS. The doctors were able to isolate the type of ecoli that Kassidy was exposed to and unfortunately this kind of ecoli( 0157) releases a toxin know as shinga toxin that causes the HUS. As a result of the HUS, Kassidy became very ill causing her to need a breathing tube and her kidneys shut down. Shortly after Kassidy was hospitalized her 1 year old brother Kevin also started having symptoms of bloody diarrhea and was diagnosed with being exposed to ecoli as well. Thankfully Kevin never developed HUS and was released from the hospital a week later.
Kassidy spent a month in the ICU in critical condition and just before they were going to discharge her home still in kidney failure and needing dialysis, the doctors realized she had two holes in her colon and was rushed off for emergency surgery. Kassidy became very sick on the operating table and the doctors were unable to close up her body due to her unstable condition. Kassidy was once again was admitted to the ICU and put on a breathing tube while they tried to stabilize her condition. Kassidy was brought back into surgery the Friday after Thanksgiving and the surgeons were able to create a colostomy and close up her body after removing 90 percent of her large intestine. Kassidy remained in the hospital until the end of December struggling to recuperate from an extensive surgery and still in kidney failure requiring dialysis. When Kassidy left the hospital she was so weak and debilitated she could not stand up or even sit for long periods of time. Kassidy could not even return home to PA until January because she was too weak to withstand the car ride home. The Health department was never able to isolate what product Kassidy and her brother consumed that was contaminated with the ecoli.
Today Kassidy is still in kidney failure and recently had another surgery to reverse her colostomy. Kassidy's condition requires her to take more than 12 pills daily; being 6 years old she struggles with taking so much medication that often makes her feels sick to her stomach. Kassidy is walking today and able to play with her little brothers but is only able to go to Kindergarten a few hours a week due to her fragile condition and need for dialysis three days a week. Hopefully, this summer Kassidy will be able to get her fathers kidney to be transplanted. Kassidy and her family face many struggles each day due to her illness and need for so much medical care. Kassidy will unfortunately likely need more than one donated Kidney in her lifetime and we are trying to raise money for her as she will face a lifetime of medical expenses and needs. Hopefully, soon, Kassidy can return to being a normal 6 year old girl who just loves going to school and play with her dolls.




 
 
 
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My daughter, Bella is in Kassidy's class. We've been praying for her every night. So happy to hear she received her kidney. We wish Kassidy a speedy recovery. If there is anything we can do to help, please let us know.

posted by Shannan Cook-Seynhaeve 5 months ago

Hi, I'm Erica's mom. She was diagnosed with aHUS at age 22. Much of what Kassidy has gone thru, Erica did too. Erica's aHUS is because of a genetic abnormality, but we did not know that for almost a year. If I can offer you any information or support, please contact me. We live in Royersford. deniseschmidt331@comcast.net

posted by Denise Schmidt 8 months ago

I was diagnoses with atypical HUS several years ago. I'm from Royersford and I would love to be able to help your family in any way I can. My email is ericajoanne@gmail.com. Please email me and I will pass on any information I have on the disease. There is a really good support community out there on the internet. I was on PD and also hemo for awhile but my kidneys were actually able to heal once I started taking a new drug called Soliris.

posted by Erica Schmidt 8 months ago

Sending positive thoughts and prayers your way! My son's non profit- Kyle's Quillows would love to make a quillow for Kassidy. Please message me or Kyle's Quillows with your address and we will get it out ASAP. We are from Spring City. Kyle had a bone marrow transplant for Very severe aplastic anemia in 2011. Hugs

posted by Kim Malmstrom 8 months ago

My son Jonathan is in Kassidy's class...he is really hopeful that Kassidy will be back in school soon. We are praying for her miracle. We are praying for your family.

posted by Joan Manyeka 11 months ago

My son, Aidan McCullough, is in Kassidy's class. I ask Mrs. Comstock about how Kassidy's doing every time we meet for SLCs, and I get very excited when Aidan tells me that Kassidy was in school for a visit. I know you don't know me, but as a fellow RA parent, if I can be of any support to your family please know that we live in Pottstown and would be happy to assist. I can help run errands or babysit your boys if you want/need to get out for a few hours. Feel free to contact me through Facebook or my email is staci_mccullough@yahoo.com. Kassidy and your family are in my thoughts often.

posted by Staci McCullough 11 months ago

My daughter is also in kindergarten at Renaissance Academy. We just learned about Kassidy today through the school. We will keep her and your entire in our thoughts and prayers.

posted by Shannan Cook-Seynhaeve 11 months ago

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Recent Donations (173)

$14,404 raised by 173 people in 12 months.

$50.00

Donna and Joe Sorrentino

3 months ago (Monthly Donation)

 
 

$100.00

Faisal and Lena Siddiqi

4 months ago

 
 

Congratulations George and Catherine. Sorry we missed the Wedding, hope to see the newly weds soon!

 

$50.00

Donna and Joe Sorrentino

4 months ago (Monthly Donation)

 
 

$100.00

Anonymous

4 months ago

 

$500.00

Dr. and Mrs. George Thomas, Jr.

4 months ago

 
 

In honor of our marriage celebration. Thank you to all for celebrating with us. We are truly blessed, and continue to pray for Kassidy's continued recovery.

 

$100.00

Anonymous

5 months ago

 

$150.00

Abigail Wilson

5 months ago

 
 

$100.00

Anonymous

5 months ago

 

$150.00

Anonymous

5 months ago

 

$150.00

Anonymous

5 months ago

 

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