KEEP GAVIN'S STORY ALIVE!

It’s an amazing feeling becoming a mother for the first time I was so elated!!! Then all of a sudden I was told the worse news that any parent would've ever wanted to hear. My child was going to be born with a heart condition. My miracle child Gavin was born with HLHS. I didn't want to believe it! However I knew that Gavin and I were going to face this head on. After 4 open heart surgeries, including one heart transplant; life was great! 1 year later Gavin started getting sick. So on August 17th he was admitted to Cincinnati Childrens. We couldn't figure out what was wrong. He went in for a MRI on the 24th and had his first Cardiac Arrest (heart attack). It took approximately 30 minutes to resuscitate him.  He completely recovered on his own. Later he received an MRI with no complication! This Showed that there was some scar tissue that completely surround his heart like an egg shell. He then had open heart surgery to remove this fibrous tissue. The surgery was successful but  some of the tissue had grown into his heart. This is a case that they have not seen in 20 years it's very rare and the cause of this  is unknown. Then on September 12 ,his birthday, he had his second cardiac arrest causing him to meed ECMO (life support). After his organs recovered. He was then removed off of ECMO on September 17th and put on a ventricular assist device(VAD) called centrimag. The machine basically does the work of his heart. He's made great progress with his device switch. He was then switched from the Centrimag to the Berlin Heart. This will allow him to move about and then qualify for another heart transplant. As of December 4th, 2017 Gavin was listed as a 1A heart transplant recipient! As time went by we planned a 1/2 birthday for Gavin. Since he had a heart attack on his actual birthday. The party was March 9, 2018. The very next day March 10 Gavin had a stroke. Because of this he was removed from the transplant list. Once he recovered he was added back to the list and received his second heart transplant March 26, 2018!! Gavin recovered with a fight! There was a time during his recovery  that his incision became infected. But, my fighter recovered from that as well. We were discharged from the hospital August 13, 2018. Just shy of being admitted for one full calendar year. Things were going great. Then Gavin started to get sick again. This time with pneumonia. We were in and out of the hospital 3 times for this. Turns out my miracle baby had coronary artery disease. This is a disease that  usually occurs 10+ years after having a transplant. On December 15, 2018 my baby had another heart attack. He recovered well. The doctors say  that they don't know how long he is going to live. But GOD!! Gavin is full of life and energy! The most charming 6 yr old you could ever meet!! He goes to school and plays as he should. No one would ever know there was anything wrong with him if I didn't tell them. Now we want to give back to families who face some of the same challenges! Thank you everyone  for  the prayers calls, text, visits, gift cards  and love! Thank you!!! Thank You! Tia and Gavin Wilson