Thank you to everyone who helped us reach our goal. In 48 hours we raised $1,585!! We are so excited to call the vendor tomorrow and get started on her seat. We are truly blessed and our sweet girl thanks you for continuing to believe in her and helping her to be the best she can be.
We have opened up Scarlett's account to raise $1,500 for a custom seat for Scarlett's new wheelchair. This seat would assist her scoliosis and make it more comfortable for her hips. Please share our link gofundme.com/scarlettsepe and let's get Scarlett a chair that is perfect for her body! You can read more about her needs at wishesforscarlett.com or below in the fundraiser description. Thank you for sharing!
7 months ago we began to fundraise for a new car, Scarlett's power chair, and the special lift required to get her chair in and out of the car. We launched her page at www.gofundme.com/2f4suw and prayed that many would be called to assist in our efforts. As of today, we have raised almost $35,000! Whether you shared our site, made a donation, or cheered us on, this long overdue post is for you!
The first step was her power chair. As soon as we raised a sizable amount, we applied for her chair and we able to cover what insurance didn't. Scarlett received her chair right before Fourth of July and has been learning how to drive, turn, and stop. She is doing so well and even participated in a 100 yard dash last weekend. To see her drive is amazing and she loves being able to "run away" from us!
At the end of summer, we had a decision to make. We could either take the remainder of the funds raised and put it toward the car, or wait until we had all the money raised and hope we'd find another vehicle that would work. The tough part was we had selected the vehicle and chair at the same time to make sure they would work together plus allow room for our family of 5. We had been working with Wickstrom Ford here in Barrington and they were in need of moving the vehicle we had on hold off their lot to make room for new inventory. The exact car we needed would be hard to find again so it was a tough decision to make. Knowing we had the chair, we couldn't risk losing a car that would work so we decided to move forward.
The final step was the lift. We were fortunate to secure funding from the state of Illinois, but like all things that involve the government, the amount of red tape and hoops we had to jump through made me feel like I had acquired a third job. Finally, though, after a few months of work, the car was picked up and the lift was installed.
We have slowly let Scarlett out with her chair in places we know she can handle. She is still only two and having her drive such a large and expensive piece of equipment makes me nervous. We marvel at how quickly she is figuring out navigation. For now, many of her controls are only accessible with our help, and we hope by summer to be able to turn over full control to Scarlett.
We've come a long way in 7 months, but still would like to reach our fundraising goal. We would welcome supporters of Scarlett to continue to share our link. With all of the scams on the internet today strangers can be leery to donate. By showing them our link and blog, we hope it demonstrates that Scarlett's story is real and that the money donated is being used for its intended purposes. We'd like to pay for the remainder of the amount of her vehicle and begin the process of creating an accessible home so she can use her chair inside as well as out. For now, her chair is stored daily in our garage because we can't get it in the entrances of our home. Come winter, the chair will have to be moved to a heated location making it so she can't use the chair every day. SMA is a marathon and the miles of needs keep coming for Scarlett. We continue to be grateful for everyone's support and help. We wouldn't be anywhere near where we are today without family and friends who keep pushing us to give Scarlett the best life possible. Thank you for getting Scarlett moving!
Because of all of the generous donors, Scarlett's story was noticed by gofundme and sent on to media outlets. Fox News in Chicago is interested in speaking with our family and helping to share Scarlett with their viewers. We are thrilled to not only to share about SMA during SMA Awareness month, but also to further assist Scarlett! Thank you and keep sharing our link and her video. We are amazed at how many lives she has touched and that keeps us motivated to keep pushing forward for her needs. Thank you!! It is making a difference.
We are feeling so blessed as we are $383 dollars away from having raised $30,000! Family, friends, and strangers have pulled together for our special girl. August is SMA awareness month. You can make people aware of SMA and Scarlett by sharing our link. We are so grateful for the support.
We are excited to announce Scarlett was accepted as a camper at the Center for Courageous Kids in Scottsville, KY in September. This is a fabulous camp for families with medically fragile children to attend free of charge. We would love to have Scarlett take her power chair so she can explore the grounds with other children with SMA and other forms of Muscular Dystrophy while we are there. It takes time to get a lift installed in a vehicle so we need to make a purchase in the next two weeks. Please consider sharing our link again and talking to friends who haven't yet donated. We have had 3,500 views on Scarlett's gofundme page yet only 214 donors...there are people out there who can help. Let's make it happen so she can access camp! Go Scarlett!
The car we had hoped to purchase has weeks left until the dealer needs to move it off the lot. We have paid for Scarlett's chair with donations already received and the state of Illinois will cover her most of her lift (yippee!!!) if we can purchase a new vehicle. We need to raise $10,000 more to be able to put down a payment on the vehicle and finance the remaining balance. Please consider gearing up fundraising efforts again and share our link. We are almost there!
Scarlett's power chair arrived and this video is her first time driving outside. We were not able to take it home as we still have not raised enough to purchase a vehicle. It was hard to leave it behind! Please share our link and the video. We are so close to getting Scarlett moving...let's make it happen!
It has been seven days since our last donation. Please continue to share our link! Scarlett spent the weekend at an SMA conference and met so many kids in power chairs. She asked if she can have one and we promised her soon!
Scarlett is such a happy girl..always laughing and smiling. We fear her smile will fade the longer she is kept from experiencing our world. Time is running out...the car we have on hold can't be held much longer. No donation is too small
This is Scarlett when she was almost a year old. She tried a power chair for the first time and it was then we knew she had to have this freedom.
It has been six days since our last donation and we are trying not to give up hope. No child should be left on the sidelines and we are working our hardest to give Scarlett the chance to be like other children. We need donors and fundraiser ideas to make it a reality. It takes a moment to click the share button and spread Scarlett's story. A moment to show you are cheering Scarlett on.
For two days no one saw Scarlett's link and yesterday we had more donations and views. Why? Because of YOU! Thank you for continuing to share Scarlett's story and helping us to stay hopeful. A few weeks until summer...let's get her moving!
This morning Scarlett decided to get into the cabinets. Imagine the trouble she could get into with a power chair! Donations have slowed and we don't want to give up on achieving our goal. Share our link today or find a friend to donate. Scarlett wants to explore.
Scarlett is working hard to sit up with good alignment and is so proud of herself! Please continue to share our link so we can get closer to our goal. This will give her a way to move around and allow her to see what she is truly capable of doing!
The best surprise today...a 3rd grade classroom in my school district raised $300.12 for Scarlett during the past month just collecting change. Ellie and her teacher came to my school today to surprise me with the donation. It isn't hard to make a difference and the 3rd grade class at Lines Elementary proves it! Please share our link to keep us moving closer!
We are $420 away from hitting $20,000! Simply amazing! Please repost and share our link even if you already have. Every time it is shared, we receive a new donation! Keep spreading the word and let's get Scarlett moving!
A power wheelchair will give Scarlett the freedom to drive with the neighborhood kids while they are riding their bikes rather than watching them go by. Please consider personally sending an email to friends and family letting them know why supporting Scarlett would change her life. We are blessed to have raised an incredible amount in one month but have a ways to go! We won't give up until Scarlett is diving down the street.
Scarlett had an amazing weekend with family celebrating her sister's first communion. She tried to keep up in her tiny manual chair but needed so much assistance. A power chair would have made the weekend even more fun for her. Take a moment and share our link even if you already have before. Someone may see it for the first time who can help get Scarlett moving!
Scarlett is lifting her arms as high as she can to shout yippee! We are getting closer every day to her goal. We won't give up! Please share her link and consider donating today. No amount is too small!
We are closing in on $16,000! So exciting! We've had over 2,000 views on our gofundme page! Please continue to share our link and follow up with your contacts. Lots of people are stopping by and now we have to get them to donate! Keep moving for Scarlett!
8 days in and getting close to $10,000! But we still have a long way to go to reach our goal. The weather is getting nice and Scarlett is wanting to go outside to play! She needs a power chair to be able to do this and a car to be able to take her around town! Please keep spreading the word and finding people to donate! Thank you!
Scarlett Sepe was diagnosed with Spinal Muscular Atrophy on December 14, 2011 at the age of 8 months. SMA is a degenerative, motor neuron condition affecting all voluntary muscles in a person's body. SMA is the number one genetic killer of children and has no treatment or cure. But, with proper care from a team of doctors and therapists, Scarlett has the chance to live a long and happy life. You can read more about Scarlett's journey with SMA at www.wishesforscarlett.com Scarlett cannot move by herself and requires assistance for every activity in her day. She has never crawled, pulled up, stood independently, or walked. Scarlett does have limited use of her arms and an incredible, creative mind. She is smart, loving, funny, and such a joy to be with.
Scarlett recently outgrew her first wheelchair and we are in the process of purchasing a new manual chair. This chair also needs a custom seat and back to assist Scarlett with her scoliosis and pelvic obliquity. We have had several fundraisers and are close to our goal of giving Scarlett a new chair perfect for her body. We estimate that we have $1,500 left to raise.
Remember to use the GoFundMe "share" tools to spread the word to everyone!
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