<div>
 I’m taking on the challenge of running Manchester half marathon to raise money for Tuberous Sclerosis Association.
</div>
<div>
 <br>
</div>
<div>
 At only 3 months old, after what I can only describe as the worst 2 weeks of our life, we received the news that our gorgeous baby girl has a rare genetic condition called Tuberous sclerosis, polycystic kidney disease &amp; epilepsy.
</div>
<div>
 <br>
</div>
<div>
 Tuberous sclerosis complex (TSC) is a rare genetic disease that causes tumors to grow in multiple organs, most commonly the brain, kidneys, heart, lungs, eyes, and skin.
</div>
<div>
 <br>
</div>
<div>
 Ari is/will be under multiple specialists and have medication for the rest of her life, to help manage the condition &amp; her epilepsy.
</div>
<div>
 <br>
</div>
<div>
 We went from living a ‘normal day’, to spending the next day in critical care, learning how to administer medication multiple times a day &amp; use specialised equipment. A reminder to always trust your gut &amp; advocate for what you know is right. Hold your loved ones that little bit closer &amp; be kind to each other, as you never really know what someone is going through.
</div>
<div>
 <br>
</div>
<div>
 The tuberous sclerosis association’s overarching aim is to provide help for today and a cure for tomorrow, by:
</div>
<div>
 <br>
</div>
<div>
 -Making a positive impact on the health and wellbeing of people living with TSC and their families and carers.
</div>
<div>
 <br>
</div>
<div>
 -Leading research into tools, technologies and treatments which eliminate or reduce the effects of TSC.
</div>
<div>
 <br>
</div>
<div>
 -Leading innovation in the integration of medical and social care services.
</div>
<div>
 <br>
</div>
<div>
 This is now a charity very close to our heart! If you're able to donate,no matter how small, it would mean a lot and will go towards helping TSA continue their amazing work.
</div>
<div>
 <br>
</div>
<div>
 Thank you so much for your support, encouragement, and motivation along the way!
</div>
<div>
 <br>
</div>

Anonymous

Jen Okeefe

Debbie Fallon

Nicola McIntyre

Naiomi Hodgkinson

Katie rome

Michael Kemp

Paula Knox

Andrew, Elizabeth, Andrew and David Miller

Peter Hughes

Jack Pearson

Amy Durham

Simone Bayne

Liz Byrne

Richard Willetts

Caroline Williams

Raising money for The Tuberous Sclerosis Association

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Just £265£ to go! Make an impact.

Raising money for The Tuberous Sclerosis Association

Just £265 to go!
Make an impact.