<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102705123_1776812000573444_r.jpeg" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102705123_1776812035420848_r.jpeg" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/102705123_1776812049921025_r.jpeg" width="100%" />
<div>Je m’appelle Ezra, j’ai 25 ans, et je suis atteinte de la maladie de Charcot (SLA).
</div>
<div>Depuis des années, les jeux vidéos sont bien plus qu’un loisir pour moi : c'est un refuge.
</div>
<div>J’adore les jeux comme Zelda, Hollow Knight ou Animal Crossing.
</div>
<div><br />
</div>
<ul>
<li><strong>Aujourd’hui, tout devient compliqué. </strong>
</li>
</ul>
<div>La maladie progresse.
</div>
<div>Je perds progressivement l’usage de mes mains, et surtout de mes pouces.
</div>
<div>Dans Animal Crossing, je peux encore jouer… mais difficilement
</div>
<div>Dans Hollow Knight ou Zelda, qui demandent des réflexes rapides, c’est devenu impossible
</div>
<div>Petit à petit, je perds l’accès à quelque chose qui me fait vraiment du bien.
</div>
<div><br />
</div>
<ul>
<li><strong>Une solution existe. </strong>
</li>
</ul>
<div>Il existe un casque de contrôle neuronal comme le Emotiv EPOC X EEG Headset.
</div>
<div><br />
</div>
<div><a href="https://www.emotiv.com/fr/epoc-x" target="_blank" rel="noreferrer noopener"><a href="https://www.emotiv.com/fr/epoc-x" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.emotiv.com/fr/epoc-x</a></a>
</div>
<div><br />
</div>
<div>Ce casque permet de contrôler des actions, uniquement avec l’activité du cerveau.
</div>
<div>Concrètement : je pourrais continuer à jouer, même sans utiliser mes mains.
</div>
<div><br />
</div>
<ul>
<li><strong>C'est un investissement pour l’avenir. </strong>
</li>
</ul>
<div>La SLA est une maladie évolutive et avec le temps, elle va affecter : mes mouvements, ma parole et ma respiration.
</div>
<div>Mais pas mon esprit.
</div>
<div>Ce casque représente une façon de garder une autonomie et une passion, malgré tout.
</div>
<div><br />
</div>
<ul>
<li><strong>C'est pourquoi j’ai besoin de vous. </strong>
</li>
</ul>
<div>Ce type d’équipement coûte cher (plus de 1000€).
</div>
<div>Je lance cette cagnotte pour pouvoir : acheter le casque, adapter mon installation pour jouer avec et continuer à vivre ma passion.
</div>
<div><br />
</div>
<ul>
<li><strong>Vous pouvez m'aider.</strong>
</li>
</ul>
<div>En faisant un don (même 1€ compte réellement) et en partager cette cagnotte autour de vous
</div>
<div>Chaque geste m’aide à continuer à jouer.
</div>
<div><br />
</div>
<div><br />
</div>
<div>Si vous pensez que personne ne devrait perdre ce qui lui fait du bien à cause d’une maladie…
</div>
<div>alors vous comprenez pourquoi votre aide compte autant.
</div>
<div><strong>Merci du fond du cœur </strong>
</div>
<div><br />
</div>
<div><br />
</div>
<ul>
<li>English version
</li>
</ul>
<div><br />
</div>
<div><strong>Help me keep playing video games despite ALS</strong>
</div>
<div><br />
</div>
<div><br />
</div>
<div>Hi, my name is Ezra, I’m 25 years old, and I have ALS (also known as Charcot disease).
</div>
<div>Video games are not just a hobby to me, they’re a huge part of my life.
</div>
<div>They help me escape, relax, and feel like myself.
</div>
<div>I love games like Zelda, Hollow Knight, and Animal Crossing.
</div>
<div><br />
</div>
<ul>
<li>The problem is ALS is progressively taking away the use of my hands, especially my thumbs.
</li>
</ul>
<div>In Animal Crossing, I can still play a little (even if I get stung by bees sometimes )
</div>
<div>But in games like Hollow Knight or Zelda, which require fast reflexes, it’s becoming impossible
</div>
<div>I’m slowly losing access to something that truly matters to me.
</div>
<div><br />
</div>
<ul>
<li>A solution exists! 
</li>
</ul>
<div>There is a brain-control headset like the Emotiv EPOC X EEG Headset.
</div>
<div>It allows you to control actions using brain activity instead of your hands.
</div>
<div><br />
</div>
<div><a href="https://www.emotiv.com/fr/epoc-x" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.emotiv.com/fr/epoc-x</a>
</div>
<div><br />
</div>
<div>This means I could keep playing, even as the disease progresses.
</div>
<div><br />
</div>
<ul>
<li>This matters because ALS is a progressive disease.
</li>
</ul>
<div>It will eventually affect : my mobility, my ability to speak, my breathing. 
</div>
<div>But not my mind.
</div>
<div>This device is a way for me to keep doing what I love, for as long as possible.
</div>
<div><br />
</div>
<ul>
<li>You can help. 
</li>
</ul>
<div>This equipment is expensive, and I can’t afford it alone.
</div>
<div>Any donation, even $1, makes a real difference. 
</div>
<div>Sharing this campaign helps just as much! 
</div>
<div><br />
</div>
<div>If you believe that a disease shouldn’t take away something as meaningful as this… then you understand why your support matters.
</div>
<div>Thank you so much 
</div>

Anonymous

mathilde facq

ana g

Helix BREANT

Aliénor Gacherieu

Mathilde facq

Didier Raboud

MME FASSINA ANNE SOPHIE

Vincent Voizard

Maksim Yarshou

Séraphine Creton

Marina Hecquet

La SLA m'empêche de jouer — aidez-moi à continuer

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Enter your donation forLa SLA m'empêche de jouer — aidez-moi à continuer