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<div>Je m’appelle Ezra, j’ai 25 ans, et je suis atteinte de la maladie de Charcot (SLA).
</div>
<div>Depuis des années, les jeux vidéos sont bien plus qu’un loisir pour moi : c'est un refuge.
</div>
<div>J’adore les jeux comme Zelda, Hollow Knight ou Animal Crossing.
</div>
<div><br />
</div>
<ul>
<li><strong>Aujourd’hui, tout devient compliqué. </strong>
</li>
</ul>
<div>La maladie progresse.
</div>
<div>Je perds progressivement l’usage de mes mains, et surtout de mes pouces.
</div>
<div>Dans Animal Crossing, je peux encore jouer… mais difficilement
</div>
<div>Dans Hollow Knight ou Zelda, qui demandent des réflexes rapides, c’est devenu impossible
</div>
<div>Petit à petit, je perds l’accès à quelque chose qui me fait vraiment du bien.
</div>
<div><br />
</div>
<ul>
<li><strong>Une solution existe. </strong>
</li>
</ul>
<div>Il existe un casque de contrôle neuronal comme le Emotiv EPOC X EEG Headset.
</div>
<div><br />
</div>
<div><a href="https://www.emotiv.com/fr/epoc-x" target="_blank" rel="noreferrer noopener"><a href="https://www.emotiv.com/fr/epoc-x" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.emotiv.com/fr/epoc-x</a></a>
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<div><br />
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<div>Ce casque permet de contrôler des actions, uniquement avec l’activité du cerveau.
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<div>Concrètement : je pourrais continuer à jouer, même sans utiliser mes mains.
</div>
<div><br />
</div>
<ul>
<li><strong>C'est un investissement pour l’avenir. </strong>
</li>
</ul>
<div>La SLA est une maladie évolutive et avec le temps, elle va affecter : mes mouvements, ma parole et ma respiration.
</div>
<div>Mais pas mon esprit.
</div>
<div>Ce casque représente une façon de garder une autonomie et une passion, malgré tout.
</div>
<div><br />
</div>
<ul>
<li><strong>C'est pourquoi j’ai besoin de vous. </strong>
</li>
</ul>
<div>Ce type d’équipement coûte cher (plus de 1000€).
</div>
<div>Je lance cette cagnotte pour pouvoir : acheter le casque, adapter mon installation pour jouer avec et continuer à vivre ma passion.
</div>
<div><br />
</div>
<ul>
<li><strong>Vous pouvez m'aider.</strong>
</li>
</ul>
<div>En faisant un don (même 1€ compte réellement) et en partager cette cagnotte autour de vous
</div>
<div>Chaque geste m’aide à continuer à jouer.
</div>
<div><br />
</div>
<div><br />
</div>
<div>Si vous pensez que personne ne devrait perdre ce qui lui fait du bien à cause d’une maladie…
</div>
<div>alors vous comprenez pourquoi votre aide compte autant.
</div>
<div><strong>Merci du fond du cœur </strong>
</div>
<div><br />
</div>
<div><br />
</div>
<ul>
<li>English version
</li>
</ul>
<div><br />
</div>
<div><strong>Help me keep playing video games despite ALS</strong>
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<div>Hi, my name is Ezra, I’m 25 years old, and I have ALS (also known as Charcot disease).
</div>
<div>Video games are not just a hobby to me, they’re a huge part of my life.
</div>
<div>They help me escape, relax, and feel like myself.
</div>
<div>I love games like Zelda, Hollow Knight, and Animal Crossing.
</div>
<div><br />
</div>
<ul>
<li>The problem is ALS is progressively taking away the use of my hands, especially my thumbs.
</li>
</ul>
<div>In Animal Crossing, I can still play a little (even if I get stung by bees sometimes )
</div>
<div>But in games like Hollow Knight or Zelda, which require fast reflexes, it’s becoming impossible
</div>
<div>I’m slowly losing access to something that truly matters to me.
</div>
<div><br />
</div>
<ul>
<li>A solution exists! 
</li>
</ul>
<div>There is a brain-control headset like the Emotiv EPOC X EEG Headset.
</div>
<div>It allows you to control actions using brain activity instead of your hands.
</div>
<div><br />
</div>
<div><a href="https://www.emotiv.com/fr/epoc-x" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.emotiv.com/fr/epoc-x</a>
</div>
<div><br />
</div>
<div>This means I could keep playing, even as the disease progresses.
</div>
<div><br />
</div>
<ul>
<li>This matters because ALS is a progressive disease.
</li>
</ul>
<div>It will eventually affect : my mobility, my ability to speak, my breathing. 
</div>
<div>But not my mind.
</div>
<div>This device is a way for me to keep doing what I love, for as long as possible.
</div>
<div><br />
</div>
<ul>
<li>You can help. 
</li>
</ul>
<div>This equipment is expensive, and I can’t afford it alone.
</div>
<div>Any donation, even $1, makes a real difference. 
</div>
<div>Sharing this campaign helps just as much! 
</div>
<div><br />
</div>
<div>If you believe that a disease shouldn’t take away something as meaningful as this… then you understand why your support matters.
</div>
<div>Thank you so much 
</div>

Anonymous

mathilde facq

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Helix BREANT

Aliénor Gacherieu

Mathilde facq

Didier Raboud

MME FASSINA ANNE SOPHIE

Vincent Voizard

Maksim Yarshou

Séraphine Creton

Marina Hecquet

La SLA m'empêche de jouer — aidez-moi à continuer

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