<div>Dealing with Danon
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<div><br />
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<div>Hoping to bring some kind of relief to the Rankins family. If You don’t know Trey, Lindsay and Landon, they are three of the most amazing people you will ever meet.
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<div>In 2014 Landon(Trey and Lindsay’s son)was diagnosed with Danon disease, a rare genetic disorder. Landon’s diagnosis ultimately saved Lindsay’s life as she was living with it, but had no symptoms until the Dr. recommended her to be tested. Life would never be the same.
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<div>Fast forward to 2019….Lindsays heart began to fail and was put on the transplant list here in New Orleans. After almost two years of waiting on the list in New Orleans, an unfortunate situation landed Lindsay in San Diego on their waiting list. A silver lining appeared as she received her new heart a few weeks later on May 8th, 2022. She remained in San Diego recovering for a few months. During all of this Trey traveled back and forth to San Diego juggling being a husband, a parent and working to keep his new small business afloat. Since then Lindsay has continued to Travel back and forth to San Diego for testing and Check ups. Trey will accompany Lindsay as needed, but the expense of traveling adds up.
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<div>In August of 2024 they went to Philadelphia in hopes of Landon receiving a new gene therapy which would prevent him from needing a new heart through a trial. After 2 months of medical testing and preparation they put the gene therapy on hold sending the family back to New Orleans.
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<div>This gene therapy has been given to 23 other patients successfully with minor complications. Landon was the last recipient before this procedure was released as an official treatment.
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<div>In February, Landon was called back to Philadelphia but had to start over with testing, immunization shots, isolation, etc.. On May 1st, Landon finally received his gene therapy treatment. Unfortunately after just 5-days, Landon’s body started to reject the treatment and was admitted into icu. On May 8th at 3am His kidneys started to fail and his blood pressure dropped to 40/20. He was then sedated, given a breathing tube and put on ecmo. As of now Landon is still sedated but somewhat stable. He will be In Philadelphia for quite some time with an extensive road to recovery ahead of him.
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<div><br />
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<div>Unfortunately, Danon Disease has taken its toll on them financially as well. The years of traveling and dual living expenses have been out of pocket expenses. Although being in Philadelphia with his son and wife is most important, Treys business expenses haven’t stopped. They have always donated and participated in helping others, expecting nothing in return. Please do what you can to help not give this family a hand out, but a hand back up.
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<div>If you would like to send it directly to them you can use the following:
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<div>Venmo-@Lindsay-Rankins
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<div>Zelle-5046549684
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<div>All funds collected will go directly toward the continued expenses of being in Philadelphia and any additional medical expenses that aren’t covered.
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<div>Landon passed today 5-25-25. Going to leave this up to continue help the Rankins recover financially and now cover memorial expenses.
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Destinee Jones

Shannon Hodges

Benjamin Perez

Tammy Price

Angie Seibold

Jill Usrey-Benson

Amanda Mische

Johanna Wilbanks

Russell Broussard

Julie Mire

Ann Thompson

Natalie McDaniel

Christy Davidson

Kyle Martinez

janette Graefnitz

Brandon Bowlin

Charles Coe

Brooke Johnson

Lisa Bradle Ingegniero

Vawnee Burgess

Relief for the Rankins Family. Live Like Landon.

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platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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Android v12.11.0 and above

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checkoutType

Payment method type group to be vaulted on success

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International Only

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Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

Support Comments Allowlist

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

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openai

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Native 11.3.0 and above

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New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Is Recurring Friendly

Excluded funds - Video Sharing

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NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

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NPO upsell essential needs category

NPO upsell medical category

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Localized Currency

NPO upsell cancer category

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Survicate

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Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Relief for the Rankins Family. Live Like Landon.

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