<div><strong>Jacob’s Story</strong>
</div>
<div>Dear friends, family, and kind supporters,
</div>
<div>My little brother, Jacob, is just 2 years old and already fighting the biggest battle of his life. Jacob has been diagnosed with a rare genetic condition called DeSanto-Shinawi syndrome (DESSH), also known as WAC syndrome and is the <strong>only</strong> person in the <strong>Republic</strong> <strong>of</strong> <strong>Ireland</strong> with this rare syndrome.
</div>
<div>This condition affects development in many ways causing low muscle tone, delays in walking and talking, and other challenges that make everyday life much harder for him than it should ever be for a child, despite all the obstacles, Jacob is the happiest little boy his smile lights up every room, and his laughter is contagious. He may not yet walk or talk, but his determination and spirit inspire us every single day.
</div>
<div><br />
</div>
<div><strong>WHY Your donation will help. </strong>
</div>
<div>Recently, Jacob was given an incredible, once in a lifetime opportunity, a special treatment program in America that could change his life forever. This therapy is designed to give children like Jacob the chance to develop skills many of us take for granted like walking, talking, and gaining independence.
</div>
<div>We have been offered an appointment this September, which means we have just a short time to raise the funds needed. The treatment, travel, accommodation, and care are extremely expensive, and as a family we cannot do this alone.
</div>
<div><br />
</div>
<div><strong>What Your Donations Will Go Towards</strong>
</div>
<div>&gt;Flights and travel expenses to the U.S.
</div>
<div>&gt;The intensive treatment and therapy program
</div>
<div>&gt;Accommodation and living costs while Jacob is in America
</div>
<div>&gt;Medical supplies and equipment to support his progress
</div>
<div>&gt;Ongoing care once he returns home
</div>
<div><br />
</div>
<div><strong>What This Could Mean for Jacob</strong>
</div>
<div>This treatment could be life changing. It could mean Jacob taking his first steps. It could mean hearing his first words. It could mean giving him the chance to grow up with more independence and a brighter future ahead of him. We know there are no guarantees, but this is the best chance Jacob has ever had and we cannot let it slip away.
</div>
<div><br />
</div>
<div><strong>‘The</strong> <strong>Jorie</strong> <strong>effect’ &amp; her story after the treatment: </strong>
</div>
<div><a href="https://youtu.be/7bfVtKZZeMU?si=vm_t6XUxywafI7aU" target="_blank" rel="noreferrer noopener"><strong><a href="https://youtu.be/7bfVtKZZeMU?si=vm_t6XUxywafI7aU" target="_blank" class="" rel="nofollow noopener noreferrer">https://youtu.be/7bfVtKZZeMU?si=vm_t6XUxywafI7aU</a></strong></a>
</div>
<div><br />
</div>
<div><strong>How You Can Help</strong>
</div>
<div>We are reaching out to everyone friends, family, communities, and kind strangers asking for help. No matter how big or small, every single donation will bring us closer to getting Jacob to America in time. Even if you cannot donate, simply sharing this page with others means the world to us.
</div>
<div><br />
</div>
<div><strong>Thank you❤️</strong>
</div>
<div>We want to thank you for taking the time to read Jacob’s story. Your kindness, generosity, and prayers mean more to us than words can say. With your support, we can give Jacob the chance he truly deserves a chance to walk, to talk, and to experience life without the limitations of his condition holding him back.
</div>
<div>Together, we can make this dream a reality.
</div>
<div>With love and gratitude,
</div>
<div>Jacob’s family
</div>
<div><br />
</div>

Anonymous

Pauline Brown

Tawakalitu Ishola

Darragh Murtagh

Ashling Duff

Joanne Quinn

Ciara Courtney

Almudena Perez

Lisa Mayer

Amanda Dohring-Ray

Neil O'Sullivan

Rachel Fetherston

Daniel Flynn

Róisín Haughey

Help Jacob with DESSH lifechanging Treatment

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Just €280€ to go! Make an impact.

Help Jacob with DESSH lifechanging Treatment

Just €280 to go!
Make an impact.