<div><strong>(Magyarul lentebb</strong>, <strong>English below) </strong>Notre fils Erik a été diagnostiqué avec l’ASNSD, une maladie génétique nano-rare qui n’a actuellement aucun traitement curative, un pronostic très défavorable et pour laquelle seuls des soins de soutien sont disponibles. Nous collaborons avec l’University College de Londres et l’Université de Genève dans le cadre de projets de recherche visant à développer une thérapie génique pour Erik et pour d’autres enfants atteints d’ASNSD.
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<div>Merci de nous aider à réunir les fonds nécessaires — votre soutien compte énormément pour nous.
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<div>Un immense merci d’avance au nom de notre courageux petit guerrier !
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<div>Lisez-en plus sur Erik sur ma page Facebook, Instagram et LinkedIn :
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<div><a href="https://www.facebook.com/vegh.sandra" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/vegh.sandra" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/vegh.sandra</a></a>
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<div><a href="https://www.instagram.com/sandra_vegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/sandra_vegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/sandra_vegh/</a></a>
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<div><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.linkedin.com/in/mariannvegh/</a></a>
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<div>Site de notre Association: <a href="https://www.asnsdresearch.org/fr" target="_blank" rel="noreferrer noopener"><a href="https://www.asnsdresearch.org/fr" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.asnsdresearch.org/fr</a></a>
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<div>Kisfiunkat, Eriket ASNSD-vel diagnosztizálták – ez egy rendkívül ritka genetikai betegség, amelynek jelenleg nincs gyógymódja és a kilátások sajnos nagyon rosszak. A University College London és a Genfi Egyetem kutatócsoportjaival együttműködve olyan kutatási projekteken dolgozunk, amelyek célja génterápia kifejlesztése Erik és más ASNSD-ben szenvedő gyermekek számára.
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<div>Kérjük, segíts nekünk előteremteni a szükseges összeget, minden adomány, barmilyen kicsi is, óriási jelentőséggel bír számunkra.
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<div>Előre is szívből köszönjük segítségedet kicsi Erik nevében!
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<div>Olvass többet Erikről a Facebook, Instagram és LinkedIn oldalamon:
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<div><a href="https://www.facebook.com/vegh.sandra" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/vegh.sandra</a>
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<div><a href="https://www.instagram.com/sandra_vegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/sandra_vegh/</a>
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<div><a href="https://www.linkedin.com/in/mariannvegh" target="_blank" rel="noreferrer noopener"><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.linkedin.com/in/mariannvegh/</a></a>
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<div>A non-profit szervezetünk honlapja: <a href="https://www.asnsdresearch.org" target="_blank" rel="noreferrer noopener"><a href="https://www.asnsdresearch.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.asnsdresearch.org</a></a>
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<div>Our son Erik has been diagnosed with ASNSD a nano-rare genetic disease that has currently no cure, very poor prognosis and only supportive care available. We are partnering with University College of London for a research project that aims to develop gene therapy for ASNSD. Please help us collecting the funds necessary, every little matters and your help means the world to us. Thank you in advance on behalf of our brave warrior!
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<div>Read more about Erik on my FB, Instagram and LinkedIn page :
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<div><a href="https://www.facebook.com/vegh.sandra" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/vegh.sandra" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/vegh.sandra</a></a>
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<div><a href="https://www.instagram.com/sandra_vegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/sandra_vegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/sandra_vegh/</a></a>
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<div><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.linkedin.com/in/mariannvegh/</a></a>
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<div>The website of our nonprofit research organization: <a href="https://www.asnsdresearch.org" target="_blank" rel="noreferrer noopener"><a href="https://www.asnsdresearch.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.asnsdresearch.org</a></a>
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Ünal Yilmaz

Anonymous

Justyna Ignasiak-Kretowicz

Caroline Wallis

Zsófia Papp

Caroline Rosset

christophe musy

Ciprian Zampetti

Péter Scharnitzky

Andras Budinszky

Thibaut L

Sylvie Jolivat

Join Erik in beating a rare disease (ASNSD)

platform

Platform is iOS

Android

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Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

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Desktop users

Person ids

United States (US) users

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

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Android at or above 12.2.0

Profile photo entry point audience

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Activity Tracking v1 Beta Testing

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Android v11.0.0 and above

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Native 11.3.0 and above

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GB Donation Upsell audience 

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Thank you V3 testing whitelist

isRecurringFriendly

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Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

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Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

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Survicate

appVersion is at or above 12.8.0

Non-charity fund

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CAD Donation Upsell Audience

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NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Join Erik in beating a rare disease (ASNSD)

Still CHF144,035 to go. Help us build momentum.