<div><strong>(Magyarul lentebb</strong>, <strong>English below) </strong>Notre fils Erik a été diagnostiqué avec l’ASNSD, une maladie génétique nano-rare qui n’a actuellement aucun traitement curative, un pronostic très défavorable et pour laquelle seuls des soins de soutien sont disponibles. Nous collaborons avec l’University College de Londres et l’Université de Genève dans le cadre de projets de recherche visant à développer une thérapie génique pour Erik et pour d’autres enfants atteints d’ASNSD.
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<div>Merci de nous aider à réunir les fonds nécessaires — votre soutien compte énormément pour nous.
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<div>Un immense merci d’avance au nom de notre courageux petit guerrier !
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<div>Lisez-en plus sur Erik sur ma page Facebook, Instagram et LinkedIn :
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<div><a href="https://www.facebook.com/vegh.sandra" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/vegh.sandra" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/vegh.sandra</a></a>
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<div><a href="https://www.instagram.com/sandra_vegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/sandra_vegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/sandra_vegh/</a></a>
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<div><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.linkedin.com/in/mariannvegh/</a></a>
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<div>Site de notre Association: <a href="https://www.asnsdresearch.org/fr" target="_blank" rel="noreferrer noopener"><a href="https://www.asnsdresearch.org/fr" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.asnsdresearch.org/fr</a></a>
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<div>Kisfiunkat, Eriket ASNSD-vel diagnosztizálták – ez egy rendkívül ritka genetikai betegség, amelynek jelenleg nincs gyógymódja és a kilátások sajnos nagyon rosszak. A University College London és a Genfi Egyetem kutatócsoportjaival együttműködve olyan kutatási projekteken dolgozunk, amelyek célja génterápia kifejlesztése Erik és más ASNSD-ben szenvedő gyermekek számára.
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<div>Kérjük, segíts nekünk előteremteni a szükseges összeget, minden adomány, barmilyen kicsi is, óriási jelentőséggel bír számunkra.
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<div>Előre is szívből köszönjük segítségedet kicsi Erik nevében!
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<div>Olvass többet Erikről a Facebook, Instagram és LinkedIn oldalamon:
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<div><a href="https://www.facebook.com/vegh.sandra" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/vegh.sandra</a>
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<div><a href="https://www.instagram.com/sandra_vegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/sandra_vegh/</a>
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<div><a href="https://www.linkedin.com/in/mariannvegh" target="_blank" rel="noreferrer noopener"><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.linkedin.com/in/mariannvegh/</a></a>
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<div>A non-profit szervezetünk honlapja: <a href="https://www.asnsdresearch.org" target="_blank" rel="noreferrer noopener"><a href="https://www.asnsdresearch.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.asnsdresearch.org</a></a>
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<div>Our son Erik has been diagnosed with ASNSD a nano-rare genetic disease that has currently no cure, very poor prognosis and only supportive care available. We are partnering with University College of London for a research project that aims to develop gene therapy for ASNSD. Please help us collecting the funds necessary, every little matters and your help means the world to us. Thank you in advance on behalf of our brave warrior!
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<div>Read more about Erik on my FB, Instagram and LinkedIn page :
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<div><a href="https://www.facebook.com/vegh.sandra" target="_blank" rel="noreferrer noopener"><a href="https://www.facebook.com/vegh.sandra" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.facebook.com/vegh.sandra</a></a>
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<div><a href="https://www.instagram.com/sandra_vegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.instagram.com/sandra_vegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.instagram.com/sandra_vegh/</a></a>
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<div><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" rel="noreferrer noopener"><a href="https://www.linkedin.com/in/mariannvegh/" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.linkedin.com/in/mariannvegh/</a></a>
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<div>The website of our nonprofit research organization: <a href="https://www.asnsdresearch.org" target="_blank" rel="noreferrer noopener"><a href="https://www.asnsdresearch.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.asnsdresearch.org</a></a>
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Christel Newman

Dora Sas

Anonymous

Oleksandra Dolga

Akos Hamar

Karen Rütimann

Ágnes Herman

Irem Kirkkopru Tekin

Paola Cammarano

Aniko Sorok-Rencz

Merve Yesil Fazli

Aron Kiss

Sharon Clark

Doriane Ischer

Tímea Aranka Kollár

Nadeen Jibry

Justine Leclere

Margaux L. Montfort

Join Erik in beating a rare disease (ASNSD)

platform

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Vault on success card payment method

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Desktop users

Person ids

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New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

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Localized Currency

v11.5.0 and above

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Survicate

appVersion is at or above 12.8.0

Non-charity fund

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CAD Donation Upsell Audience

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PYMK has donors

iOS v12.3.0 and above

Join Erik in beating a rare disease (ASNSD)

Still CHF142,354 to go. Help us build momentum.