<div>My 15-year old son AJ suffers from CONDBA Disease, which is <strong><em>Childhood-Onset Neurodegeneration with Brain Atrophy</em></strong>. It is as scary as it sounds. It’s a severe, progressive neurodegenerative disorder that starts in early childhood and causes slow brain atrophy, loss of white matter and resultant ongoing loss of cognitive and motor function.
</div>
<div><br />
</div>
<div>It’s extremely rare. There are approximately 30 kids worldwide that we know suffer from this disease.
</div>
<div><br />
</div>
<div>Early in his life, AJ was mobile, chatty and loving. By pre-school, he only showed mild developmental delay but then eventually started to lose motor skills. He eventually lost his ability to walk and talk in late 2023 and lost his ability to stand in 2025. AJ now needs a personal wheelchair van to continue to engage in the community and to live the richest life he is able to live.
</div>
<div><br />
</div>
<div>AJ remains a happy, loving boy. He is well loved, likes to receive hugs, tell jokes and being silly. He loves his parents and big sister. He likes seeing people and enjoys his school and outings to his adaptive programs like baseball and basketball.
</div>
<div><br />
</div>
<div>Being disabled is expensive. There is a decent amount of support for families of kids like AJ, especially medical and adaptive programs. However, one area of significant gap is wheelchair van transport. Parents are essentially on their own to provide this for their disabled child.
</div>
<div><br />
</div>
<div>While his disease is life-limiting, we can only hope and pray AJ lives for many more years. As a result, me (his Dad) needs to make a significant investment in a wheelchair van for his use during my parenting time (<em>note: AJ lives separately and goes back and forth between his parent’s separate homes. This van supports AJ at his Dad’s home as his mom has chosen other transportation for AJ</em>).
</div>
<div><br />
</div>
<div>The van that works best for AJ and Dad would be a base model Chrysler Pacifica with a rear-entry manual fold-out ramp. This is the lowest new van cost and sells for <strong>$67,000</strong>. The only program available to us is a State of MASS program to partially off-set costs endured by kids with catastrophic illness. I believe I could possibly receive around $24,000 from this program, which I accounted for in my crowd-fund goal amount above.
</div>
<div><br />
</div>
<div>Thanks for reading. If AJ’s need speaks to you, any help is graciously appreciated.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81220055_175917188080634_r.png" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81220055_1759171911488909_r.png" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81220055_1759171939376034_r.png" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81220055_1759171963712673_r.jpeg" width="100%" />
<div><br />
</div>

Anonymous

Tara Miller

Ken Boermeester

Rosemary Sullivan

Amelia Ward

Wendy Muher

Paul McDonnell

Naomi D Ahuja

Helen Haag

Denise Sullivan

ELIZABETH BROWN

Aspen Ference

Belayneh Naramo

Roger Kisamore

Please donate for AJ's Wheelchair Van

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Please donate for AJ's Wheelchair Van

Still $22,350 to go. Help us build momentum.