<div>***Apologies to those people that have very kindly donated but had money refunded, this was due to a process error by gofundme, where they automatically returned your donation with no contact.  The cause is very much ongoing and your donation very much welcomed, Avery will undergo spinal surgery early next year and any donations towards his physio, will help his recovery and build his strength back up (as unfortunately he will lose some strength during his time spent in hospital). ***
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<div>Meet Avery, our youngest son, a bright, kind, fun-loving 9-year-old boy, with a positive attitude and a big smile! In November 2017 at 18 months old, Avery was diagnosed with the rare genetic condition Spinal Muscular Atrophy (SMA) type 2. SMA is a rare, inherited neuromuscular condition. It causes progressive muscle weakness and muscle wasting.
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<div>Avery has never crawled, stood or walked and simple tasks like taking a pen lid off or getting dressed in the mornings are impossible for him to do alone. He requires extra support during the day, and his lack of strength leaves him unable to reposition himself at night, meaning his (and our) sleep is severely disrupted. It’s not uncommon to be called 5 or 6 times a night to reposition and get him comfortable.
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<div>As a consequence of the SMA, Avery also suffers from scoliosis as the muscles in his back are unable to support his spine. For this he wears a Spinal Jacket day to keep him upright and protects his internal organs from being compressed, which isn't the most comfortable, but unbelievably, he never moans.
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<div>When Avery was first diagnosed, there was no available treatment in the UK so we fought hard to get Avery onto a drug trial in Italy. He has been taking this drug now for almost 7 years and it's helped massively in terms of maintaining Avery's strength. We are even seeing small signs of strengthening which is amazing, but it is in no way a cure.
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<div>Life is very different for us as a family now, when we leave the house, we have to consider his needs first, will there be steps? Are toilets accessible? What equipment will we need? Will Avery's chair fit in? Is there a dropped kerb? Will Avery be included at parties or will he have to watch from the side?
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<div>Inevitably Avery and his older brother Louis do miss out on a lot of the normal activities that boys do, for Avery even play dates at his friend's houses are rarely possible. Avery also has to attend numerous appointments at the John Radcliffe Children's Hospital, as well as weekly hydrotherapy and physio sessions.
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<div>But despite all this, he just brings sunshine into everyone's lives with his infectious smile, wicked sense of humour and never give up attitude! He has a huge talent and love of playing powerchair football and is the youngest competing in the national league, like most little boys, he dreams of playing for England one day!
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<div>Life for Avery is made easier with the right specialist equipment e.g. all-terrain wheelchair, hoist, non-slip mats and support such as physio and hydrotherapy - but unfortunately, these all come at a significant cost. We have had and continue to have amazing support from friends, family and our local community in helping raise funds for his treatment and equipment. Incredibly generous, kind people have organised a wide variety of events including horse shows, coffee mornings, dog shows, football matches, comedy nights, runs, walks and parachute jumps - all for our little boy, which has been just incredible!
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<div>This page has been set up to support their efforts. If you can help, we are truly grateful, your donation will help Avery have the best possible quality of life, to have fun and continue working towards an independent future.
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<div>Huge thanks,
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<div>Love,
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<div>Lisa &amp; Alex x
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<div>Please note:
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<div>All funds raised are paid into an independently managed fund. Monies will only be drawn from this fund upon receipt of an invoice or signed purchase order that is directly related to equipment or treatment for Avery.
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Portia Benning

Sarah Beattie

Cara Harris

Oliver Briggs

Joanne Inglis

Anonymous

Emma Gaynor

michael ingate

tracy palethorpe

Audra Lennox

Oliver Gray

Claire Errington

Kathryn Jones

Rosie Day

ABDUL RAHAL

Jessie Coles

L Sanghera

Adam Beveridge

Steve Fairhead

A very special journey

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

A very special journey

Still £16,568 to go. Help us build momentum.