<div>ESPAÑOL:
</div>
<div>¡Hola! soy Alejandra Lamus y he abierto este caso para apoyar a mis amigos Lorna y Vicente (a petición de ellos). Su hijo Aitor de 9 años, se encuentra en Terapia Intensiva desde el 3 de abril.
</div>
<div>DIAGNÓSTICO:
</div>
<div>Neumonía Bilateral con Derrame Pleural, agravada por su Lisencefalia.
</div>
<div>Requiere con URGENCIA Cirugía de Tórax, para drenar el derrame y salvar su vida.
</div>
<div>Todo se debe a la fragilidad de sus vías respiratorias, por su condición llamada lisencefalia, que hace que gripes comunes y la disfagia se compliquen de manera peligrosa.
</div>
<div>La superficie del cerebro de Aitor es lisa. A diferencia de nosotros, su cerebro no tiene surcos o circunvoluciones. Una malformación congénita, que provoca un trastorno neurológico grave.
</div>
<div>Una enfermedad rara. De hecho, afecta aproximadamente a 1 entre 100.000 recién nacidos. Es decir, 10 de cada millón de personas.
</div>
<div>La Lisencefalia no tiene cura, no se puede revertir.
</div>
<div>Lleva a una cantidad de complicaciones, entre las cuales lo más importante es controlar las convulsiones y el cuidado de sus vías respiratorias. Esas son su mayor debilidad y las principales causas de muerte.
</div>
<div>Aitor presenta Retraso psicomotor severo, Epilepsia refractaria, Disfagia, Hipotonía, Escaso control cuello-cabeza, Parálisis cerebral.
</div>
<div>Debido a la dificultad para tragar, mal manejo de secreciones y el reflujo asociado a la condición, es común que los líquidos o sólidos terminen produciendo una aspiración pulmonar y patologías respiratorias.
</div>
<div>Aitor es bienquerido y cada día se le consiente y estimula más. Demuestra ser fuerte. Es un niño muy bonito, tierno, risueño, simpático y un guerrero sin igual. Tiene sus maneras de comunicarse y demostrar satisfacción.
</div>
<div>Ustedes pueden ser un salvavidas. ¡Muchas gracias!
</div>
<div>ENGLISH:
</div>
<div>Hello! My name is Alejandra Lamus, and I have created this fundraiser to support my friends Lorna and Vicente (at their request). Their 9-year-old son, Aitor, has been in the Intensive Care Unit since April 3rd.
</div>
<div>DIAGNOSIS:
</div>
<div>Bilateral pneumonia with pleural effusion, worsened by his lissencephaly.
</div>
<div>He URGENTLY requires thoracic surgery to drain the fluid and save his life.
</div>
<div>All of this is due to the fragility of his airways, caused by his condition called lissencephaly, which makes common colds and dysphagia become dangerously complicated.
</div>
<div>The surface of Aitor’s brain is smooth. Unlike most of us, his brain does not have folds or grooves. This is a congenital malformation that causes a severe neurological disorder.
</div>
<div>It is a rare disease. In fact, it affects approximately 1 in 100,000 newborns—that is, about 10 in every million people.
</div>
<div>Lissencephaly has no cure and cannot be reversed.
</div>
<div>It leads to many complications, among which the most important are controlling seizures and caring for his airways. These are his greatest vulnerabilities and the leading causes of death.
</div>
<div>Aitor has severe psychomotor delay, refractory epilepsy, dysphagia, hypotonia, limited head and neck control, and cerebral palsy.
</div>
<div>Due to difficulty swallowing, poor secretion management, and reflux associated with his condition, it is common for liquids or solids to cause pulmonary aspiration and respiratory illnesses.
</div>
<div>Aitor is deeply loved, and every day he is cared for and stimulated even more. He shows great strength. He is a beautiful, sweet, cheerful, and kind child—a true warrior. He has his own ways of communicating and expressing happiness.
</div>
<div>You can be a lifeline. Thank you so much!
</div>

Anonymous

Marcia Arocha

Rene Weffer Cifuentes

Jimmy Ayoubissa

Ana Montoya

Steffany Oliviero

maria sosa

Maria Aguirre

Maria Cristina Rincon

George Harry Shaw

Alicia Franceschi

Cirugía de Tórax por Derrame Pleural en Aitor ( Lisencefalia

Support urgent earthquake relief and past recovery in Venezuela.

Apoya la ayuda urgente tras el terremoto y los esfuerzos de recuperación en Venezuela.

platform

Platform is iOS

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Adyen Google Pay Development Audience

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Deprecate Stripe Legacy

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Canada (CA) users

UC Tipping v20250115 International

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Platform is iOS v11.2.0 and above

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Team EGG - IP Address list

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PYMK has donors

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Cirugía de Tórax por Derrame Pleural en Aitor ( Lisencefalia

Still $40,244 to go. Help us build momentum.