Help make Dystonia known Melbourne
Donation protected
We want to paint Melbourne DYSTONIA with posters explaining what dystonia is.
Our aim is to approach schools and offices with JUMP FOR DYSTONIA pamphlets to get them on board.
Print business cards with a description of Dystonia and hand them out to cafes and others small business to help get the word out.
In months ahead we will be holding a dystonia awareness day.
Help us make Dystonia known
Dystonia is a neurological movement disorder that causes muscles in the body to contract involuntarily muscle movements. Which causes pain, twisting, repetitive and patterned movements as well as abnormal postures.
Even though research from the United States suggest that dystonia is as common as Multiple Sclerosis in certain parts of the world, including Australia. Due to lack of literature and awareness, dystonia is still misunderstood, misdiagnosed and consequently mismanaged.
I have been living with dystonia since i was 9 but got diagnosed when i was 25. Sixteen years of not knowing what's happening to your body can cause a lot of emotional trauma.
Understanding helps with accepting.
I'm not the only one who has gone through this. Which is why we are determined to make dystonia known. Our aim is to approach schools and offices with JUMP FOR DYSTONIA pamphlets to get them on board.
Print business cards with a description of Dystonia and hand them out to cafes and others small business to help get the word out.
In months ahead we will be holding a dystonia awareness day.
Help us make Dystonia known
Organizer
Micheline Elasmar
Organizer
Batman VIC
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