Zebra Run

Someone dear to my heart has CVID, which is a Primary Immunodeficiency. CVID is just one of the many diseases related to PI but ultimately this means you don't have a functioning immune system. I have seen her go through every aspect of this chronic illness. From always feeling tired and run down to having to battle through what seems like never ending infections. But through all this, she lived her life every day and would never let on. This is what inspired me the most. I was able to go to a few of the functions that the Immune Deficiency Foundation put on and was able to meet and hear from some amazing people. Because this is still a new illness they are still learning and a lot more research needs to be done. It can take anywhere from 9 - 15 years from the onset of symptoms to be diagnosed, which has to be the most frustrating and depressing feeling, to be stuck in limbo not knowing what is wrong.

MY GOAL: run 189 miles in 24hrs. My MISSION: raise money and awareness for the Immune Deficiency Foundation. The IDF is dedicated to improving the diagnosis, treatment and quality of life for persons with primary immune deficiency. As you follow me through this journey I will give weekly updates and talk about how the IDF helps those with PI as well as video blog about my my experiences from the perspective of being with someone living with this illness.